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Chronic pain characterized by tender points, sleep disorder, fatigue

Dr P Visit

I made the long trip from Tennessee to California this week to visit Dr P. I was prepared taking all of my lab results from the past including the ones by Dr Cheney and Dr Mirkin. He reviewed them and was amazed by some of the labs Cheney has done. He really liked the Genovations gene study. He stated my high coproporhyrin levels would have Dr Stratton screaming chronic CPNi. He also noted my Mycoplasma Pneumoniae infection, low glutathione and growth hormone levels and stated my immunei system is a "Wreck". I was prepared to start CAPi but he spent more time talking about  resarch he is working on that basically states that CFSi patients go into a state of "hybernation".

Need a Word of Encouragement

A word of encouragement?? I haven't checked in for quite a while. Been doing ok, but have been undergoing Vitamin C IV treatments for 4 weeks followed by Rifampin 150mg twice a day for 4 days.  My energy is zapped and the Rifampin feels like poision to my body.

1st week on Mino & wondering?

Well, I don't have to tell you that I am pleased things turned out pretty good for me. The first few days of Minoi were misery but then things began to settle down. The last couple days I haven't had to take extra Emergen-C but I am still stiff and achy. Plus my eyes are so red some folks at the store look at me as if I am crying OR stoned... sympathy or disdain. Of course either way I don't appreciate the vibes so quickly move on. Also I have daily coughing sessions and about gag at times trying to break loose the mucus stuck in my bronchial airways. (sorry) Sometimes it just feels like a hair stuck in my throat. It is worse for me in the mornings.

9/4 - started CAP - OUCH!

Between 24-36 hours after my last dose of SMZ/TMP DS 800-160 otherwise known as Bactrim double strength I felt the tide turn and the infection was rushing back in much too quickly. Fear of what would be if I did not take action. With new found confidence that I CAN take full dose antibioticsi I swallowed my first 50 mg of Minocycline. Gulp and deep breath ... here we go.... Oh my gosh ... what have I done? ha ha ha ( in a diabolical tone) Why does something with such a formidable name as the first above stated antibiotic have less reaction than a silly little dose of Minocycline? 

All Multi-Factored Up

As I'm in experimental mode a lot with the CAPi, I don't report in often on my own protocol. This is partly because I like to wait a bit longer to see how things play out before posting observations. And partly so that people new to the CAP don't get confused that these experiments of mine are any kind of example! So here's the warning: this is not intended for anyone new to the CAP, and is not a model of anything anyone here should follow! As you will see, I'm not always the best example to follow anyway.

Dr. in the house?

     Does anyone know a Dr. in mid-Michigan that will treat cpni-fibromyalgia? Hitting a dead end.

Antibiotics to be available without prescription

This is the news:  In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!

This is the story form<

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

Slammed in the head!

As I write this today I am not fully recovered but will try my best to convey what my latest experience involved. Am writing this with my right eye closed as a matter of fact. So anyway ... what I want to write about in my blog today is reflective of years of chronic illness that I merely pushed off as hormonal induced migraines that we women had to bear in life. Of course ... I think I know better now. Not that hormones cannot play a role in this illness but that I know the true instigator I believe.



Hope everyone gets the answers that are looking for, and the needed support; this thanks to you guys making this site possible for all of us!!!

It's marvelous!


2400 mg. NAC daily - first week done deal.

Finally! Sweet success. I am able to take 2400 mg. NACi every day. Took me three months to get here. I have had to avoid using the FIRi sauna for two weeks and keep all things low key. Seems too much anything gives me burning red eyes, sore throat and wheezing bronchials. So I limit certain foods, too much sunlight, working too hard, too much stress, too much this, that and the other. But I am here ... I did it! Yay!

Doing the Bron-Y-Aur Stomp baby! Cool  MM

PS... will go change my signature now. My new badge. Wink

No sweat FIR sauna

Hope this is the right forum. If not, sorry, can you move it?

For a week I have been doing my FIRi sauna for 10-12 min. at 115 degrees. My back and the back of my arms get a tingly burning sensation (bugs twitch'n?) My concern is I never sweat a drop. Not one teeny tiny bit of sweat anywhere. Do I need to do something different? Has anyone else been "sweat deficient"? Wink 

Thanks in advance for any help you can offer me.  MM

Update added FIR sauna & moving along slowly.

We got our FIRi sauna set up last weekend and I have been eagerly but cautiously using it for 10 min. at the start of my day after drinking water to hydrate first thing. Probably the most interesting result thus far is it restarted the eye burning, sneezing, bronchial irritation with resulting cough. These are all at minor degrees but nevertheless it is a direct response to using the sauna I believe as nothing else has changed in  my environment. The heat from the sauna feels soothing on my sore back and shoulders but causes some itching and then later in the day they ache again especially at night. But less so than on the MPi and prior to starting the NACi, supplementsi, etc.

Pulse 2...(five days post-pulse)

Blogging for the record....  My second pulse was  1-250 mg of Tinii for 4 days.... May 24-27, 2008

1.   First two days I noticed an increase in energy

2.  Day 3  my LEFT knee and hip became painful and stiff. Up until this point I have not experienced problems with my left leg, it's been all in my right knee and sacriliac .   I could barely walk and was unable to go up or down stairs.   I still have major problems with my right leg - knee (can't squat or bend, difficulty walking up stairs.)

2.  Again increase in coughing... as well as chest congestion - benedryl helps

3.  Red rimmed/watery eyes.

4.  Third day I had a really bad headache (and I usually don't get headaches)

My first - established double doses of NAC 6-09-08

My first double dose of NACi. Oh boy. The day after. I was feeling quite cocky as I was managing one 600 mg. of NAC daily without too much trouble. But then my brain began to feel that most unwelcome feeling ... like beginning to puff up which leads to feeling poisoned. So remembering when I began NAC it helped a great deal with relieving that awful symptom  .... so yes ... why not?

Miying's 3rd + week on NAC

Third + week on NACi<

5/04/08 - Sun. (600 mg. NAC x1)

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