I've written about my sister before.  She asked to be tested for CPni at Cleveland clinic and came back positive, something like 1/125 or close to that.  Cleveland Clinic asked her if she wanted to be treated with 1 abxi for a few weeks. 

She has lung and sinus problemsi, fibromyalgiai, fatigue and serious heart and vein problems and inflammationi.  Basically the falling apart syndrome.  I tried to get her started on CAPi, but she didn't follow through, claiming she didn't have time to get sick.  She did take NACi for awhile.  Now she is really sick, with pretty bad heart problems.  She has been diagnosed with everything under the sun over the years, but then they always end up changing their minds and saying it probably isn't what they thought it was.

 

It has been some time since I have updated my blog so here goes.  What to say???, breath, wind me up &&& …. I have been disengaged on the site as I just haven’t had the mindset to handle the stress.  I apologize for this as I know that my support has made a difference to some.  I found myself reading the posts and was getting stressed out & frustrated with it all.

Presently I have been on Minocycline for over two weeks. The inflammation has been increasing in small increments daily. I was not keeping on top of the load of toxins/porphyria with my usual doses of glucose, Emergen-C and charcoal. So a couple of days ago (9/20) my recent supplement order was delivered which included some Yaeyama Chlorella to try out. Only after two days of use before lunch I am impressed of how effect it seems for me. It is the perfect pre-lunch mopper. Which is a time of day I really need help. It is when it is not convenient to take any of the other moppers I use. But to be clear, I definitely will continue all of them at the usual times I take them as well.

I made the long trip from Tennessee to California this week to visit Dr P. I was prepared taking all of my lab results from the past including the ones by Dr Cheney and Dr Mirkin. He reviewed them and was amazed by some of the labs Cheney has done. He really liked the Genovations gene study. He stated my high coproporhyrin levels would have Dr Stratton screaming chronic CPNi. He also noted my Mycoplasma Pneumoniae infection, low glutathione and growth hormone levels and stated my immunei system is a "Wreck". I was prepared to start CAPi but he spent more time talking about  resarch he is working on that basically states that CFSi patients go into a state of "hybernation".

A word of encouragement?? I haven't checked in for quite a while. Been doing ok, but have been undergoing Vitamin C IV treatments for 4 weeks followed by Rifampin 150mg twice a day for 4 days.  My energy is zapped and the Rifampin feels like poision to my body.

Well, I don't have to tell you that I am pleased things turned out pretty good for me. The first few days of Minoi were misery but then things began to settle down. The last couple days I haven't had to take extra Emergen-C but I am still stiff and achy. Plus my eyes are so red some folks at the store look at me as if I am crying OR stoned... sympathy or disdain. Of course either way I don't appreciate the vibes so quickly move on. Also I have daily coughing sessions and about gag at times trying to break loose the mucus stuck in my bronchial airways. (sorry) Sometimes it just feels like a hair stuck in my throat. It is worse for me in the mornings.

Between 24-36 hours after my last dose of SMZ/TMP DS 800-160 otherwise known as Bactrim double strength I felt the tide turn and the infection was rushing back in much too quickly. Fear of what would be if I did not take action. With new found confidence that I CAN take full dose antibioticsi I swallowed my first 50 mg of Minocycline. Gulp and deep breath ... here we go.... Oh my gosh ... what have I done? ha ha ha ( in a diabolical tone) Why does something with such a formidable name as the first above stated antibiotic have less reaction than a silly little dose of Minocycline? 

As I'm in experimental mode a lot with the CAPi, I don't report in often on my own protocol. This is partly because I like to wait a bit longer to see how things play out before posting observations. And partly so that people new to the CAP don't get confused that these experiments of mine are any kind of example! So here's the warning: this is not intended for anyone new to the CAP, and is not a model of anything anyone here should follow! As you will see, I'm not always the best example to follow anyway.

     Does anyone know a Dr. in mid-Michigan that will treat cpni-fibromyalgiai? Hitting a dead end.

This is the news:  In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!

This is the story form http://www.guardian.co.uk/society/2008/aug/06/health

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

As I write this today I am not fully recovered but will try my best to convey what my latest experience involved. Am writing this with my right eye closed as a matter of fact. So anyway ... what I want to write about in my blog today is reflective of years of chronic illness that I merely pushed off as hormonal induced migraines that we women had to bear in life. Of course ... I think I know better now. Not that hormones cannot play a role in this illness but that I know the true instigator I believe.

GOD BLESS YOU FOR DOING THIS SITE!

Hope everyone gets the answers that are looking for, and the needed support; this thanks to you guys making this site possible for all of us!!!

It's marvelous!

Maria 

Finally! Sweet success. I am able to take 2400 mg. NACi every day. Took me three months to get here. I have had to avoid using the FIRi sauna for two weeks and keep all things low key. Seems too much anything gives me burning red eyes, sore throat and wheezing bronchials. So I limit certain foods, too much sunlight, working too hard, too much stress, too much this, that and the other. But I am here ... I did it! Yay!

Doing the Bron-Y-Aur Stomp baby!   MM

PS... will go change my signature now. My new badge.

Hope this is the right forum. If not, sorry, can you move it?

For a week I have been doing my FIRi sauna for 10-12 min. at 115 degrees. My back and the back of my arms get a tingly burning sensation (bugs twitch'n?) My concern is I never sweat a drop. Not one teeny tiny bit of sweat anywhere. Do I need to do something different? Has anyone else been "sweat deficient"?  

Thanks in advance for any help you can offer me.  MM