Just wanted to ask people who have Iritable bowel syndrome if their ibsi symptoms reduced while on capi.

I myself have (only one of my CFSi symptoms)IBS (mainly too soft stool or diarhhea) since I became ill 5 years ago.

Everything was checked several times - no colitis ulcerosa, no crohns disease etc.

I am on cap now for 6 month and the IBS symptoms didn t changed very much so far. But I had only 5 or so pulses. Maybee more pulses is the clue.

I think IBS is a common problem with cfs and CPNi.

I would glad to hear your experiences especially how long it took on cap to see a decrease in ibs symptoms....

Warmest regards to this great community.

I have been more debilitated, for a longer continual period of time than ever in my life, since starting the CAPi.

I have been bed ridden almost completely for 6 weeks. I am in pain, I am weak, I throw up almost every day. I finally learn which anti-porphyric and endotoxini measures work best for what, and how and when to take them, when the very measures that are supposed to help me end up making me sicker. I do all the things right so that I don't get side effects -- from anything -- and I am run over and flattened. I should not feel this bad, I'm doing everything not to.

This is the news:  In England, possible antibioticsi to be sold over the counter, to treat CHLAMYDIA!

This is the story form http://www.guardian.co.uk/society/2008/aug/06/health

Oral antibiotics are to be made available for the first time without doctor's prescription under guidelines approved yesterday by the medicines regulator.

A pill to treat chlamydia, the most commonly diagnosed sexually transmitted infection, will become available for purchase in pharmacies across England later this year.

I started a CAPi in June and got as far as taking doxycycline, azithromycin, omeprazole and NACi for 5 weeks plus a pulse of metronidazolei before I had to stop because of bad abdominal symptoms. I've had IBSi since childhood (now in my 40s) but was diagnosed with CFSi three years ago and recently had a positive test for Lyme Disease. The doctor who is overseeing the protocol (a doctor who has many patients in the UK on his protocol) suggested I stop for four weeks before trying again (I'm now taking a herbal supplement to boost immunei function).

Hello all! Im Wanda and Im an advocate for my hubby, who went from perfect health to progressive decline starting 2003, we have been married 27 years and still adding on. 3 kids (2 grown) 1 dog, 2 cats.

Im learning how to navigate this site and post, so please forgive me as I learn. Im not sure if I will find hope here, any input is appreciated!

2003 he started with flu like illness extreme fatigue few small bite? on chest, fever, which developed in to what appeared to be hives? Doctor said hive, stress...xanax!, prednisone does pack...Prednisone did nothing, Next doc drew blood for lymes etc. put hubby on Doxyi for 10 days...

Hello, and thank you for taking the time to read this post.

I was not able to locate information referencing contraindications to my Rx topicals.

Please pardon me if this is covered elsewhere.

I'll start with a bit about where I'm at and have been.

Mental

I'm a graphic designer who works from home. I have a happy homelife and a positive worklife. I believe that i am a healthy person, I just do not physically feel like one. I have long suspected that everything I experience is tied together, so am really happy to see this Web site. I want to live my life again: I want to go outside into the sunshine; ride a bike; shop in a store!



Physical

Zdenicka, as you will see, is a spirited, passionate and stubborn young woman. Her story is very heartening to read, and she holds nothing back in speaking of the trials of dealing with standardized medical treatment with a non-standard condition and protocol. Fortunately, her father Coufal was an early member here and started the Czech version of Cpnhelp, so she had an avenue to find her own help. I've left her very thorough description as she has written it, an amazing job for a non-native English speaker, so that I don't sully the pure charm in her rendition. (Jim K, Editor)

Hi to all!

Does anybody of you have or had before elevated Coxsackie and/or Echovirus titres?

I have them along with the cpnii. I hope the Enteroviruses will pass when CPN gets better!

Could it just be a viral henchman? Just thinking about what gives me more problems?

Please post your titers against Coxsackie / Enterovirus / Echovirus.

Greetings from hamburg / germany

Cesare

Hi to all!

Does anybody of you have or had before elevated Coxsackie and/or Echovirus titres?

I have them along with the cpnii. I hope the Enteroviruses will pass when CPN gets better!

Could it just be a viral henchman? Just thinking about what gives me more problems?

Greetings from hamburg / germany

Cesare

Sunday night I went to the emergency room with severe abdominal pain (upper/lower left quadrant, front and back – [as an aside, I have experienced pain on my left side since almost the beginning of my ABXi in April of last year –2007].  I kept contributing the discomfort to possibly die off and/or my spleen.  My dr. could never find anything on x-rays or a cat scan, so I just kept plodding along, as it was not intolerable.

It was only three weeks ago that I wrote about my 30th pulse and how easy and 'pleasant' it had been, so easy in fact that I was able to carry on taking Flagyli for 14 days.   Well it just goes to show that one good pulse does not a pattern make... Day two post pulse 31 and my mouth is still full of bitters, my maxilla still aches, my eyes are itchy, my ankles are swollen, my ears are throbbing and my urine is still dark.   But MIRACLE OF MIRACLES the pain in my gut is hardly there and I have regularly been sleeping 7 or 8 hours a night.

I think that my experience is an example of that Tipping Point that Jim and others talk about.   Enough Cpni cells have died in the cell for apoptosisi to take place... 

Another milestone has been reached, I've just finsihed my 30th pulse, and I have a few observations which I think are worth recording and communicating.

From the beginning I have been taking 200mg Doxycycline daily and 250mg Azithromycin MWF continuously and done a 5 day flagyli pulse every three weeks, so I would take 1200mg flagyl on MTWTF of one week and take the following week-end and the next two complete weeks off.

In that time the alopeciai recovered to so such an extent that I need to go to the hairdresser once more. The hair still goes through phases of falling out, but the balance is on regrowth.

Nothing spectacular to report, but I have not written a blog for a while so thought I would update.