General Forum for discussing Cpn issues and questions.

Gathering information

Submitted by giacomo on Fri, 2019-03-08 09:24

Hello, I'm new on this site and I'm trying to gather information about the CAP. I've been diagnosed with MS in 2008 and I'm quite fine at the moment, living an almost normal life. My only problems are my hands/arms (numbness and pain) and my bladder (not that serious, just urgency and frequency). I always refused conventional dmd, I'm on ldn since 2009 and on Coimbra protocol since 2014. I read several pages, articles and as far as I understand, there's no certain way to be diagnosed with cpn chronic infection.

Summer sun and doxycycline.

Submitted by Sarah on Thu, 2019-03-07 13:34

I want to get in quick this year before this becomes a problem.  Not being a person addicted to sunbathing I tend to forget mentioning it, but you can  get rather severe sunburn whilst taking doxycycline, or any tetracyclines come to that.  It is easy to avoid it though: sit in the shade, wear lightweight linen clothing with arms covered and wear a sunhat, wear high factor sunscreen and don't fall asleep in the shade if you are likely to not wake up until the sun has changed it's position too much.

New Patient Stories.

Submitted by Sarah on Sat, 2019-01-26 14:39

"Patient Stories" is vastly out of date.  It seems as though Jim had not put anything new up for years.  Many people have come, got better and gone without having their stories told.  Now we have much more spare space, so please send me your story and we will put it up.  People still part-way through treatment are as welcome as anyone, maybe more so. 

Let's start this year as we mean to go on!