Cpnhelp.org - Chlamydia Pneumoniae Treatment

It must feel great to be vindicated even if the physical pain is still bothering you.   Do you get to see Dr Stupid again so you can say "I told you so"?   It is so galling to be treated in such a way.

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

clammed,

You did it!  Minimal pain, no fever--this must feel so great!  Congrats and here's to a speedy recovery!  :)

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Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qd for Babesia.

SO glad to hear it. Congrats! I hope that your healing process goes well. Am learning from it, too. The dentist who found the severe infection in my jaw when removing wisdom teeth does not use/believe in ABXi. So, the infection is still there. It flared up, again, when I temporarily stopped taking the ABXi. But started the Doxi and Roxi, again, and they are keeping it at bay. Glad to hear that you are not in severe pain. And, thanks for sharing such a horrible experience. I hope that Dr. Stupid has finally learned his lesson. You are probably helping others, because of it. --Minai

 

 

RRMSi, diagnosed 2/04. NACi 4/06. Started Wheldon/Stratton regime 8/30/06. Doxycycline, 8/06, Azith, 10/06. Switched to Roxithromycin 11/06. Psuedo relapse/die-off with hospitalization 1/07. GAD-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY. LDNi 4/07. 1st Tinidazole Pulse, 8/11/07. Keflex 2/08. IV Rocephini 3/08. IV Clindamycin 5/08. USA

I hope Dr. Stupid learned something, but he is probably too arrogant.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei for muscle pain, insomnia, interstitial cystitisi, sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

congrats!

you must be happy as a clam!  couldn't resist!  Right about now you are probably also quite relieved you decided to take your health into your hands.

Stupid, the doctor will likely never learn a thing.  I wouldn't waste my breath or time with him again!

Onward & Upward

 

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Wow! This is all somewhat beyond me -- it sounds just horrible -- but does it mean that bacteria entered your cnsi via the fistula?

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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. 5 pulses.

Goodmorning all

Sorry Ive not been here in a few days, I had a few rough days with taking so many drugs. (Clindamycin, advil, zithro, doxyi) my liver started to hurt and the nausea got annoying but thankfully yesterday was on my last day of clindamycin.

So heres where Im at. I only have a very small collection of fluid left to resolve/disolve, but again, it doesnt hurt and I have no fever so Im doing ok. Alot of it is probably leftover anesthetic fluid anyway being that I had to have repeated doses since i cant tolerate epinephine ( i had to have multiple doses of citanest plain instead.)

I would have liked to continue to clindamycin until it was fully resolved but killing my liver and improving my face would be kind of pointless.

How do i think the infection spread to the cnsi? Not too sure but my guess is that it spread via the skin into facial nerves and then into the eyes and through the optic nerves to the brain. With a fistula that communicates with the sinus you would end up having sinus pathogens in your jawbone and teeth/jaw anerobes in your sinuses. I just think that the overall bacterial count and resulting anerobic toxins, and resulting immunei overactivation trying to kill what is techinically in fact part of my own self ( as msi suggests )but part of my own self in the wrong places which then become pathogenic. This is just my guessing though.

As far as dr stupid goes, there are so many dr stupids I cant be bothered. I just want to concentrate on getting better and now work on the right sided issues. If this left side issue fully resolves i will go back to work because this is where my major pain was

Thanks for the support all. Im still afriad to have false hope because there are always alternative attributions right? Could have been the clindamycin even. Ill celebrate this victory when I feel its psychologically safe to do so. When i know that no creul complications are going to pop up and steal my hapiness.

Thanks again everyone for your support

 

 

 

 

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

thanks for reporting in!

One or two problems at a time! Rest, you are going through alot.

 

 

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Good girl!  Another barricade standing between you and good health has been knocked down.  Just keep on mowing down the Dr. Stupids in your path, no turning back...they're not worth the effort of turning your very level head.

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi).  CAPi since August 06, Cpni, Mpn, B. burgdorferi, systemic candidiasis, EBVi, CMV & other herpes family viral infectionsi, elevated heavy metals, gluten+casein sensitivity. 

I would speculate that most if not all started with the initial infection in your tooth/gum area then migrated (sinus,brain) ????

Ive always known that my initial problems came from my rotted tooth when i was 17. I used to cry to the dr's that it rotted into my face and they would tell me thats not possible. However, with the way cpni works its so easy to understand why someone with any kind of chronic inflamation would then quickly colonize with cpn in that same area. There may be a barrier now from my sinus to my teeth but that in no way erradicates the rest of this cpn mess. Its just provides a possibility for healing where before it probably wouldnt have been possible. Chances of spontaneous closure of a fistula via antibioticsi without surgery decrease with the longevity of infection. In other words the longer its been there the more difficult to fix it becomes.

Again everyone thanks just for being here. I dont expect that this will cure me, I only expect and hope that it will substantially decrease my immunei load and pain level and put me in a position where i can go back to work, make some money and get to some better craniofacial dr's with better diagnostics maybe in india or egypt or the mayo or something. Those are my pipedreams... they may never happen, but at least I can dream about it

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

What type of material did they use to create a barrier do you know?  Some of the new synthetics are amazing in that the body inorporates and builds on them.  I would be optomistic for a closure.  Always good to direct one's intentions in the desired direction mentally once an intervention has been begun or completed.  

This is my perspective of my CPni/Bb CAPi.  I have faith that I will have quality of life with or without Abxi, if they are needed for 5 years then so be it.  Now after a year on CAP I am getting my life back.  

My vision is to see you out in the world and checking back here from time to time to tell us how well you are doing even though you may still be on CAP and I still may be on CAP as I am no rushing the treatment, however there will be life and enjoyment.

Blessings to you,  Louise

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Louise  CFSi, CPN+/Bb+,Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai & Endotoxinsi PRN, Doxyi 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

louise, i dont know what kind of membrane they used, but he is going to write a letter to my dr's explaining everything so i will update on this as soon as i get it. Im going to go update my situation right now in a new thread. To everyone who has been so supportive here and on this thread, thank you sooo much, it means alot. Todays new thread is going to discus the cpni situation as it stands.

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.