Support for ThisisMS
Support for ThisisMS.Sometimes I loathe the time zone difference because so much was happening while I was fast asleep. I was planning on a full day's painting today, but...................... ThisisMS is an entirely unaligned site started by a group of people in California who either have MS or have someone close to them with the disease. Before my diagnosis of very aggressive SPMSi and my equally rapid start on antibioticsi, I had never posted on a forum at all. When I started to improve I thought I should start doing so as a way of showing people that there might be a way out of this infernal disease. At first I found a half-baked English site where I was much criticized and eventually completely gave up on. After that I found ThisisMS which was still in its infancy. It is completely independent and basically allows anyone to say what they like as long as they are not hurting anyone else. This is unlike many other sites, such as the Marshall Protocol site, where you are banned if you don't toe the line, and various Lyme boards and CFSi/FMSi boards where people spend their lives stopping and starting and swapping antibiotics and basically getting nowhere. It is certainly unlike the British MS society site, where you can get removed as soon as you mention CPni or LDNi or anything else outlandish. If Arron has received complaints from other members of ThisisMS, which he certainly has, he has to act upon them. He hasn't banned anyone talking about antibiotics, just asks people to moderate their enthusiasm. There are many sites where you aren't even allowed to give links to other sites, but it is easy enough just to type in the name of this site as, say, cpnhelp(dot)org and leave it to peoples intelligence to copy and paste it and alter it as required. I do this with my email address on my own website to cut down on spam. He only started the Regimens forum and later the Antibiotics forum after my arrival. How many other sites have this? There are several people who post on ThisisMS who are following an antibiotic regime but never post here. There are also people who write to me from both sites who never post here. If I was starting now, I would somehow like to be one of those people. If everyone just stops posting on ThisisMS these people might well just feel that the regime isn't working after all. If you rely on just sending everyone over here, they now might well just get scared off by all the talk of the nine circles of hell from certain chronic fatigue people and the fact that every adverse reaction is put down to secondary porphyriai by other people. Marie (Rhodes) and Jim have done an awful lot of work for this site, whilst both suffering themselves: I wouldn't like it to become either just another chronic fatigue whine-fest or a place for what will be considered by most people, loopy ideas. So all you people with MS, I want you to continue posting on both sites. It is possible: I have never been chastised by Arron, although Jim probably squirms at some of the things I say here.