Stratton time?

Submitted by rcquilter on Mon, 2014-02-17 20:36

A lot has happened since my last post. Please read the accompaning text below the video I'm posting. You might have to go to Youtube to see it. I need some feedback and suggestions. I have been on the Cap since Oct. 2012, and I have done 11 5 day pulses on Metro. I don't feel any difference. I felt like hell the first 6 months and now I'm in a stagnant disabeled state. You can see my decline by looking at my previous Youthbe videos. Advice would be apprecieated. My eyesight is my bigest concern. It has declined since I have been on the Cap.

Hi Rachel, I've been looking out for you and saw you U tube video etc.  So sorry things have not progressed as you hoped.  I've been on this since end Aug 2012, eyes have come back in that time - not perfect yet, but has given me confidence that they will improve.

Even more than that I'm dreaming about being able to walk again.  I have come to the conclusion that I just have to keep going and live in hope!  So far it seems there is nothing else out there.

All the best, love Suzanne x

diagnosed RRMS 2000 - had v little trouble til 2009 when changed to SPMS - since then things got steadily worse.   Had ccsvi procedure 3 times, helped with general fatigue but did nothing for walking - started abx 24.08.2

HI there,

I'm just at about the 9/10 month mark so I can't offer much advice but I am wondering if you are stilll experiencing die-off from your pulses.  If so, the antibiotics are still killing stuff and it might make sense to stick with it a bit longer to see what happens. 

I wish you success with your recovery!

Thank you Healthy Girl. Yes, I still have dieoff and I was finally tested for Cpn. It was positive active and chronic. I feel better than I did 10 months into it, but my eyesight, balance, and tremors are intense. I won't quit because I would end up dead. I believe that if you are alive anything is possible.

Great to hear from you Suzane. My eyesight has become worse and my walkin is better with help. I have the most energy in the morning and late at night . Other than that I'm just enduring. I'm reaching out to Dr. Stratton because I'm spooked, especially with the eyesight. I have hope because it feels better than the alternative.

Hi Rachel

Several years ago, I was headed to where you are.  The right side of my body was very bad with the left still mostly functional and fairly dependable, though following in the track of the right by a few years.  Almost five years ago, I began the full five abx Stratton protocol, knowing that I really had nothing to lose.  It has not been easy, but none of us has had it easy.  We simply have no choice.  I don't lnow whether I will ever be "well" - probably not, but I was in a place where .....

Now, I have good days and bad, and it actually can vary by the hour.  BUT - the plane is much higher than five years ago.

Best luck


3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rachel, you are so very brave.  Have you been to India yet or are you still trying to raise the money?.........................Sarah

A Journey through Light and Shadow

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.