Still uti? Porphyria? Imagination?

I’m so sorry for banging on with the same subject!

i thought i had a utii, tests said no! I took the poor man’s porphyrin test‘, it also said no, although the urine was deep yellow, almost golden, but i had been drinking coffee!  Usually my urine is pretty colourless, although sometimes cloudy! My fatigue and weakness is severe, although, it had seemed under control! I really am at my wit’s end,



I feel your pain Jane

I have had issues in that department too.  Had a break from ABs because of issues.  Tested positive for utii, more abs, gave the protocol a break, had ongoing disability, did not seem to improve, the dr has sent urine sample to lab for analysis, waiting to see if anything comes of it.  Mine very cloudy (embarrassing to hand it over),  been treated for thrush also, frequent urinatation and occassionally some stinging very briefly, after Peeing.  Debilitating ontop of MSi<

. If you get on top of this I would love to hear how! 

Good luck in the meantime Jane.


Jane, vitamin b2 makes your

Jane, vitamin b2 makes your urine sometimes almost neon yellow so maybe there is nothing wrong..........Sarah 

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

I didn’t know that Sarah, but

I didn’t know that Sarah, but i have hugely increased my B vitaminsi! However, i still have a bit of burning and a lot of weakness and fatigue! Just when i thought i was improving too!


MSi symptoms from 2001, DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro