Twelve and a half years is the time it has taken to get this far. This has enabled me to see my identical twin grandsons grow into wonderrful young men - they both graduated from the University of Michigan with a straight 4.0 GPA and are now enrolled for their Masters degrees. I would not have been here if not for this program. That is one reason I am so delighted that I have had this chance.
I have at least one other reason to do this blog: the "R" drugs - Rifampin, Rifampicin - Rifampin by another name, and Rifabutin. In my experience, it has been the addition of an R drug that has made the difference for me. As alway, I say Rifampin is NOT A TOY and must be taken as directed. I don't know if it was the way it works or the fact that it was just more abx, but it has brought me ahead by a long, long way. I will never be "me" again, but I am "walking around breathing". I really don't believe I would be doing any of that, but instead would be either dead or an invalid with a feeding tube..
Until recently, I was on Rifampin twice daily for about twelve years, then got Rifabutin. I began taking the dosage listed - two capsules daily, and a week later was in the hospital, unable to move. My husband hid it from me after that, but I am back on it, taking only two capsules per week. Rifampin has a half-life of about seven hours, Rifabutin about sixty-seven hours.
I am hoping that I will be done with this sooon, but have no intention of stopping until my abx has no daily impact. May we all improve with this incredible regimen - we are the very fortunate ones.