Well here it is I am past the end of Dec. My goal for my 10th repeat of liver evaluation tests was before the first of the year to get the bill on last years insurance. I was under the weather with a nasal cold. I am clear now finally on day 13, the blessing is it did not make it to my lungs. I used several boxes of kleenex, even with over the counter meds I was blowing my nose frequently but all and all I did well enough even with the "protection of my currently high Dose of D3" I caught this one, likely on Christmas Eve at the candlelight hymn centered service. Likely from the children singing so sweetly behind me?
So I have had some reason to drag my feet in writing to my MD with my update of my situation and to request my lab requesitions. I find all manor of trivial persuits to destract me from the task. Then I review once again the values that I have inserted into my makeshift grid. Dates, test values. The trend sablized at about 6 months with slight up and down variation probably of not much significance.
Last Feb 08 I took myself to a major liver transplant center for an evaluation of my GB for possible removal. They did a thorough job of testing the complete gamut of liver affictions in relation to my elevated enzymes. And in the end it was likely due to medication, doxycycline in particular per my medical record which I signed release for and was sent. Of course if I had my GB out they could do a needle biopsy to add to the Ultrasound and lab results but except for the enzymes all is negative even the markers for cancer.
I have taken pulses slowly and give much time for healing for most of the past year so to frequent pulses cannot be a precipitating factor unfortunately, I have tried that adaptation.
In Aug and Sept I cut my doxy to 100 mg once a day. No significant change even up a few points.
After the October values were in I cut out Doxy completely and doubled my Roxi for extra coverage. And my Vit D3 was temporarily upped to 10,000 IU per day to get my levels well into the high normal ranges and now needs a repeat evaluation.
Some folks told me here early on that they were not tested because of the tendency for elevation. i do in a way wish that I had not started this observation as well. I feel good, better than I had for years before starting treatment. I am not in denial, I truely have more energy, attention and focus and clarity. I have done more physical and mental sorting than I have in years this fall. Even with such concerning elevations.
This is the jist of my last communication from my wonderful MD "
I think this is a disclaimer for self protection for himself, although there is truth to odds of damage increasing with increasing levels, I am still in what is considered moderately elevated range. He actually never mentioned a break verbally to me or in any other writing. I was not shocked however.
I am the one who did not answer, I had not time for weekly daylong trips for IV therapy, or the possibility that I would once again since into incapacity,I had a life transition to finally get done which has haunted me daily for 3 years.
Now I am ready to hear what he may have to offer and look once again at the data and consider the options. I feel a bit naughty, yet I know that the stress of not getting the work done would have been heavey on me as well.
I have read the liver text book that Jim has referenced, I have combed the internet and know that I have another condition that could be contributing to unexplained elevations from the start. I know there is not much that anyone can say, and please do not say the leave it up to the doctor correct answer, I'd say that too if the situation was yours.
So I am blogging mostly for myself. And for those who choose to know how this is progressing for me.
Thanks for listening if you made it through this whole discourse. I am in the middle of my email letter to him, next week should have a plan formulated for me I think. Guess I am ready to get down and out if necessary again. However, I prefer not to!