Steve is nearing the end of a one-month course of tetracycline + azithromycin + fluconazole. Something is happening which I have been waiting to post, but I learned something this morning that pushed me over the edge. Here is an excerpt of a PM I sent to a cpnhelp buddy yesterday:
Steve has been experiencing some emerging/waivering improvements, but they're not solid enough to mention publicly yet: bladder function, balance, upper body strength, depth perception. Yesterday his walking got terrible, and then this morning it was very good. Steve buzzed around too much with his good walking, though, and burned it out pretty quickly. He's been having trouble with muted speech and swallowing/coughing issues for the past few days, so I'm hoping we'll get something good out of that in a little while. A couple of days last week, he had some faint sensations in his [nether regions] (as opposed to completely insensitive), but it's gone now.
I took Steve and his Aunt Connie to a screening of "Under Our Skin" this Saturday. WOW! I more or less knew what to expect from this documentary, but the information blew Steve and Connie away. She kept saying "I had no idea!" It made a huge impression on Steve, and since he's not one to read about such things, it's good to now have a shared base of information with him. One of the best things about him seeing the film was that he saw and heard people with whom he identified, and he heard them speak of improvement, of getting their lives back...after 3 years, 4 years and so on. That was good for me to hear too.
What pushed me over the edge to post his progress on this current course of medication? This morning on our drive to work, I learned that his nether regions are re-sensitizing again, and he has been experiencing right-side sciatic pain. It's been several years since that pain faded into numbness. Since starting the CAP, I wondered if this pain would recur as a rewind symptom. I think this is it!