Started David Wheldon protocol

Submitted by DillyDuck on Mon, 2011-01-24 15:00

Had been seeing a Chronic fatigue specialist that is supposedly world renowned. After one treatment I felt fantastic, but her approach is one week of antibiotics per month, giving it 3 weeks to get aggressive and it did.  I done my own research, found this awesome site.  Decided on Dr Wheldons protocol because it seemed similar to the chronic fatigue specialist I had been seeing but it was more intensive, and December and January have proved difficult months with increase in pain in my joints (fibromyalgia) and the fatigue got worse, feels like lead in my legs, I battle to walk and even gym.  I finally got a GP to put me onto Dr Wheldons protocol only after I went for her tests.  After she saw this website, looked at my blood results from my previous chronic fatigue specialist she agreed this was the right approach. I asked for Orpic 500 (Doxycycline) this was the first brand I had used when I had a month of energy and had kept the box.  So taking:

 500 mg x 2 day (asked for a higher dosage for the first 3 weeks) and then will drop to the recommended 100mg twice a day

Tetralysal 300 mg x 2 day

 Flagyl 1 tab (400mg) 3 a day.

Was only going to do 3 tablets of flagyl for the 1 day and build up to 5 days for the pulse but I am already tolerating Flagyl well and will immediately move to the 5 days.

 My energy levels are still low but more stable.  The sever muscle and joint pain had reduced accross my body but not in my wrists and ankle area. And I have been itching so bad I want to use steel wool to get rid of the itching (this has been before the antibiotics).

My Dr added (Levocetirizine 5 mg) for the itching (antihistamine) which has helped for the pain in my wrist/hand area and my ankles.  The itching has reduced considerably and the sweating behind my knees at night is almost gone.  Probably combination of all of the above, Noted the sweating stopped after taking Flagyl and the antihistamine.  

 I am still taking into consideration some of the items the previous specialist had told me and I am trying to stay away from dairy to get maximum absorption of the medication and using a few select vitamins.  

 I also have Ricketsial Connori which is related into my chronic fatigue. You get it from meat that is not cooked properly, ticks bite the cattle, we eat the meat and it infects us.  I avoid caffine, so no more tea or coffee, only decaf and I only use powdered milk.  I use Stevia instead of sugar.  I was told to stay away from sugar completely but I am battling with this. 

 The brain fog is awful, but since on the medication its been better.  I feel like my brain has been fried.  

Trial and error I will get there.  The best moment was seeing in my Dr's eyes the light go on ... hopefully next time she sees a patient, she wont just give someone antidepressants but think of testing for Cpn and trying a different approach.   

Welcome to the club!

It's nice to see that you have been getting good reactions. This is a great sign and one that many of us can attest to.

If you have any questions, please feel free to ask. There are many knowledgable people here.

Christian

Started CAP on 06/29/2010 for RRMS. Dx w/ Brevundimonas Vesicularis in Jan '11 hiding in #20 tooth with root canal. Extracted 04/04/2011. Clinically dx with Bartonella at the same time. Recently found MPn.

Abx: 100 mg Doxy bid<

Dilly, The supps and vitamins on Dr. Wheldon's protocol are very important, so please make sure you're up to speed on those, as well. Did you have your Vitamin D level checked? Congrats on getting started! I'd say your IBS will resolve itself on this protocol, as well.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

"Trial and error I will get there.  The best moment was seeing in my Dr's eyes the light go on ... hopefully next time she sees a patient, she wont just give someone antidepressants but think of testing for Cpni and trying a different approach."

Yes, there is something rewarding about helping a doctor become informed on this!  I am thankful there are open-minded doctors who support us on the protocol while the research on this is still not commonly known.

Started CAP for Cpn on 11/14/10 - Per my doctor, paused Abx 5/18/13 - NAC, T3, St Johns Wort, B-complex, Vit C, Vit D3 (8,000/day), Vit E, Astragalus, Chlorella, Chelation with Alpha Lipoic Acid. Started Buhner protocal (2nd edition) on 8/30/16.

This is wonderful that you have a good doctor.

minocycline, azithromycine, metronidazole 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitis (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

Hello DillyDuck and welcome, do I understand right, that you are taking 1g of doxycycline daily plus 600mg of lymecycline daily? That is a lot. How do you tolerate it? I have never seen such high doses of tetracyclines.

Stratton/Wheldon protocol 02/2006 - 10/11 for CFS and many problems 30 years

HI there your news is excellent may I ask you to please send me a personal message with dr's details. Thank you very much. RP2010