My last entry is quite long ago and as i have some questions too its time for an update.
first the good news: my scrotal pain improoved quite well but still gets worse sometimes while pulsing or after walking to much. right after pulses it gets better mostly.
my older symptoms are more or less the same though (ibs-b (with sibo and consequently malabsorbption and low weight), cfs , light fibro,chest pain, very cold limbs ).
the ibs eventhough taking probiotics even got a little worse i think. im a bit affraid the abx are messing up my gut flora too much.
if cpn was my main problem shouldn't i have more benefit or reactions after half a year of treatment? im just little scared that i may be one of those who end up worse from long term abx?
what about trying to take metro continuously? apart from little more cfs, the worsening pain and dark urine in the morning (porphyria?-had a positive poor mans porphyrine test in summer while pulsing ) i dont get real bad reactions from it.
or maybe add niacin allready?
thanks for your opinions!