Some improvement!

I'm killing time, so will tell you about the news from my guru! i'm very superstitious, so waited a while to share, besides which, I've been feeling terrible....! Julia massaged my leg, helping my drop-foot, which feels like it stems from my knee. Both legs are affected, the left is the most bothersome, and the problem is intermittent, but, extremely, frequent. However, I slur less and less, in fact now only slur when I'm shattered. i've seen Julia, as a herbalist, masseur and friend, on and off, for a few years now. When my husband saw her last, she confirmed what I knew, that of her MS clients I'm the only one who's improving, that I haven't degraded in the time she's known me, that my speech has become clear and that I'm doing something right!  Husband and I walked my dog, this morning, on the beach, as we do regularly, and I walked fast! FAST! My leg didn't give way, even though it's usually tough to get back to the car! and can only be done with my wonderful husband and iron grit. So, this may pass, but it's a sign of the wonder that is David Wheldoni's / Charles Strattoni's CAPi

Comments

What great news!

What great news!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Jane, you are not kidding

Jane, you are not kidding that you have had some improvement!  I kind of felt that this was coming, but I must say that this is the time not to get too elated and slacken  on the protocol, which many people do.  But I guess you are too sensible for that!..............................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Congratulations!You are

Congratulations!

You are indeed a lucky girl. I think that it is plainly obvious to all that you are well and truly on the way to wellness. Well done that girl!

Smile

G

“Don't believe everything you read on the internet.”

―    Abraham Lincoln<

I. Guess we all knew. I'm

I. Guess we all kneW it would be tranditory, I'm back to where i was a few weeks ago, but this has proven i'm on the right track. I hope it happens for everyone here, and we will be vindicated.

MSi symptoms from 2001, DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Transitory maybe, but

Transitory maybe, but the fact that you moved in the right direction shows that you are more than able to move in that direction again.  After all, you should be just getting steadily worse.  Remember what your physio told you!......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

KEEP GOING!  Mine did that,

KEEP GOING!  Mine did that, then (finally) came back.  Seems forever- but....are you aware of another way? Probably not - we are the fortunate ones!

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Sarah and Rica,you've made

Sarah and Rica,

you've made this feel so much more positive, you are my heroes And, Sarah, yes, this was a one way street! Sometimes i just need to be reminded! Thank you, both.

Jane

MSi symptoms from 2001, DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Jane, when I was about at

Jane, when I was about at your stage in the treatment, I went through a few weeks where I had the most excruciating thalamic pain in my right arm, movig about from my fingers to my shoulder.  My artwork went completely kaput: I just couldn't do anything again.  I had a  new scan looming which I was sure was going to show bad news.  In fact, it was quite the contrary.  The radiologist was amazed at what he saw, as were some of his radiology colleages at Cambridge.  The neurologist refused to even look, because he hadn't ordered it................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Oh wow, Sarah! So you were

Oh wow, Sarah! So you were dealing with a terrible phase when that happened!  That, once again, is great to know! it's so good to know it was far fromplain sailing for you too! As all good script writers know, the ending should be a happy one!

MSi symptoms from 2001, DXi RRMSi in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Recovery can indeed be

Recovery can indeed be erratic. After starting Sarah on treatment (about a month in, 14 years ago) I made this note:

Walking is a little more disorganized. Recovery is not just a case of the simple return of function. Repair takes place at a cellular level, and is not centrally organised. As repair takes place there are any number of strange sensations - Sarah says they are quite indescribable - which, until they become organised, actually hamper function. Function has to be relearnt. She makes the point that ‘it is easier to walk on numb legs than on legs where unordered sensation is returning.’

D W - [Myalgia and hypertension">i (typically 155/95.) Began (2003) taking doxycycline and macrolide and later adding metronidazolei. No medication now. Morning BP typically 110/75]

That could be why David's

That could be why David's stories now all have happy endings!..................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.