Submitted by Jim K on Sat, 2008-04-05 19:24

With any luck, we will be getting a site upgrade sometime in the next couple days. So there may be a time when you can't log in or find the site for a couple hours. Don't panic, we'll be back.We are badly in need of updating to the current Drupal system, enhancing security, getting functions to work as they should, and even adding a few extras (I'm hopeful we'll get a chat system going again). Those of you who have donated $, this is where a chunk is going! Thanks! 

You're the best. Thanks to you and Bleu for keeping us together!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Jim, you're not under the influence of any illicit. illegal, dangerous, or otherwise mind-bending drugs are you? Like maybe flagyl? And thanks to you two. It would be nice to have the chat-box back but we can manage if it doesn't work.

 Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 50 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

thank you jim for all that you do.. Mphs, TN. CFS, hypoT (Hashi), adrenal fatigue, 37 w/hormones of 80,. right arm neuropathy. + cpn, myco, EBV, CMV. NAC 4000mg, doxy 100-2xday, azith 250 m/w/f/sun, progesterone, estriol, synthroid, pulse flagyl, tini<

Mphs, TN. CFS, hypoT (Hashi), adrenal fatigue, hormonal inbalance. right arm neuropathy-getting better. cpn, myco, EBV, CMV, HHV-6. Cap began in 6/07. NAC 2400mg, mino 100mg bid, biaxin 500mg bid. cytomel, flagyl bid continuously.

thank you Jim & BleuCFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

 Rest assured-- this one is being done by a team of professional Drupal programmers. Bleu doesn't work with Drupal much, and with the donations I was able to hire out. So no amateur or "under the influence" efforts on my part! CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxy, 250mg MWF Azith, Tini 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

Looking forward to the changes and site upgrade.LouiseCFS/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxy, Roxi, TiniPulse#4 Ended2/3/08. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Jim, your under the influence is a way better than my feeble attempt at electronics.  That part of my brain says nooo, noo, nooo.Is there any room for us to add bigger pictures.  Mine are not liked by the system, even when I access them in my documents & out of picture project.  I have a new digital slr so I have to save them at their best quality so I can blow them up for framing!The electronic geek in our house! my husband just got me a portable hard drive of 250 gb & another desktop for 360 gb.  Ahhh, to think, it wasn't that long ago when my commodore that I played the first version of Duke Nukem on was 120kb I believe! 4 Ram, LOLCFIDS/ME 25yrs, FMS, IBS, EBV, Cpn, (insomnia - melatonin, GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NAC 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Ruth, I know there are a few glitches with the site and its handling of pictures at the moment, but in any event large format pictures are not good on the web, they take too long to upload... Have you got a photoediting program you can use for making them smaller?   If you have a new desktop pc with a fairly new operating system like windows XP or Vista it will automatically suggest reducing the size of the picture to make it suitable either for e-mailing or for uploading to a website like this one.   Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Thank -you Jim and Bleu!

On Wheldon protocol for MS since April, 2006.  doxy 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyl Pulses start end Sept., LDN 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30.

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tini pulses,100 mg diflucan, 4.5 ldn; Wheldon protocol for MS April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Join photobucket   Its free and is a much better way of uploading pictures to the web rather than burdening this site IMHO. Also it has built in image editing software. CFS. Started CAP 03-07.Currently: Roxi 600mg + Doxy 200mg . 10 Pulses done. Sauna every other day. D 7200IU

Hunter: Don't think - experiment

Jim, Have we been upgraded yet?  Can't seem to notice much change apart from the window that pops up to warn you when you have an unposted comment and are tempted to leave without posting it.Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Problem:  I just tried to vote on a post and got these messages............"

  • user warning: Unknown column 'timestamp' in 'where clause' query: SELECT uid FROM nodevote WHERE uid = '298' AND timestamp > '1210776866' in /home/cpnhelp/www/www/includes/database.mysql.inc on line 121.
  • user warning: Column count doesn't match value count at row 1 query: INSERT INTO nodevote VALUES (298, 4431, 9, 1210863266) in /home/cpnhelp/www/www/includes/database.mysql.inc on line 121. "

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Hi Joyce, I have tried multiple times to vote on a post and have never been successful.  I get red letter messages too.LouiseCFS/ME.CPnPositive.BbPositive.WheldonCAPbegan6/24/07. NowNAC,Doxy, Roxi, Full TiniPulses. Cholestyramine at BedtimeforPhorphoria&liposacarideEndotoxinDie-OffExperiences.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

 No, we haven't been upgraded yet. Slow down in the programing department He is still corecting another site he's been working on for me. Sigh! It will happen eventually. The error text means that the module is no longer working. After the upgrade we'll start afresh.CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxy, 300mg Roxithromycin, Tini 1000mg/day pulses; Vit D1000 units, Iodoral 50mg, T4 & T3

Jim, Andesine, MacK, and whoever else helped: Wow!! It looks terrific! And see, i followed your instructions and posted this comment to an ongoing discussion. It helped!PPMS-misdiagnosed 2001-diagnosed 2006. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuro. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAP 3/2/07 - 200 doxy; azith MWF. 4 pulses. Rockville,Md. Loo

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

What looks terrific? Where? Did I miss something?Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April

Andesine: Isn't that whole new section at the bottom of the opening page new?PPMS-misdiagnosed 2001-diagnosed 2006. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuro. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAP 3/2/07 - 200 doxy; azith MWF. 4 pulses. Rockville,Md. Loo

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

No idea. I never scrolled down that far. Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supplements. Doxy 200mg. Zith 250mg M/W/F.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April 2008.

Berkshire, UK. Diagnosed RRMS Feb 4th 2008.NAC 2400mg. All supps. Doxy 200mg. Zith 250mg. Metro 400mg.No GP/Neuro support. Self medicating with help from David Wheldon. Started CAP 20th April

In long threads of more than one page, is it possible that new unread comments on pages 2, 3, etc. could be tagged with the red "new" the way they are on page 1? Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

  What's happening?  You really do seem to have two parallel sites now: this one and the one Rica put an update on which I only foundby clicking on the post in the New Content email which doesn't have signatures on posts unless put in manually.  At least I understand Rica's last comment now!  (I think)............SarahAn Itinerary in Light and Shadow..........Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after nearly four years, three of which intermittent.   Still slowly improving and no exacerbation since starting. EDSS was 7, now 2, less on a good day.

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Two sites???

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Yes, where is this page?http://www.cpnhelp.org/newsite/node/4503All about Rica's successes in the ring..................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Omigosh, Sarah, it's like the Twilight Zone! There are a bunch of posts we're not seeing here. Plus, even though I was logged on here, it made me log in 'fresh' over there.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Just back from a visit to the "other site".  Took a tour and like what I see. Then somehow I was thrust back here! Louise, CFS. CPnPositive. BbPositive. WheldonCAP began6/24/07. NAC,Doxy, Roxi,FullTiniPulses. Intermittent Cholestyramine,1-2packets, at bedtime,most often with pulses,and as needed, for Phorphoria & liposacaride Endotoxin Die-OffExperiences.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

LOOK BUT DON'T TOUCH! Yes, yes. This is the testing location for the upgraded site to make sure everything works. Not everything is working there, so please don't post on it.  But some good news: I found a module that will give us signatures on the blogs, and another that will make forums more like the familiar ones around. And if I can get the new theme working... we'll have a completely reorganized site! CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tini 1000mg/day pulses; Vit D2000 units, T4 & T3

Jim, Great! It does look interesting over there. Is there some way to import Rica's blog post about the goats, etc., over here in the meantime?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

 I think the only way is for her to cut and paste it. I thought the database was the same, but looks like it's not. CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tini 1000mg/day pulses; Vit D2000 units, T4 & T3

Sorry Jim! When we got home and I went to the site, I clicked on the blue notification as usual. I never READ the words, but 2 days later I did and it says "new site". I don't know how to "cut and paste" and may "disappear" everything. If you want to delete my blog or move it, feel free.

 Rica PPMS EDSS 6.7 at beginning - now 2. Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 50 pulses NC USA

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am