Cpnhelp.org - Chlamydia Pneumoniae Treatment

If you are feeling a bit tentative, why don't you do a short pulse of one or two days.  If you feel OK after the first day, you go into day two and so on.   Just a thought...

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Michèle (UK) GFAi: Wheldon CAPi 1st May 2006. Daily Doxyi, Azi MWF, metroi pulse. Zoo keeper for Ella, RRMSi, At worse EDSSi 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Its a good thought michelle, I thought the same thing. Im so filled with fear of two things that Im so cautious about every move i make. The first fear is that with pulsing the metroi i might make some anerobic or even cpni resistance. I know its fairly unlikely based on research and that this is the correct protocol and i will follow it, but i still get scared because i know its " possible".

The other thing that scares me is for anything to happen that has to have me stop the abxi such as liver issues, or clostridia. Im terrified of cpn brain infestation I simply wont live like that, not being in control of my own brain function... no way. Its all just scarey for me because of the point i was at prior to starting this protocol. Its like a post trauma for me at this point, just looking back at what was happening to my brain

 

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Clammed, do it - one pill, one day. Your KNOW, after all you have done, that you have to do this at some point. The sooner you do it, the sooner it's over. (I know - in between comes the "good part"). As for the "brain invasion", I have been there - in spades. I don't blame you for resisting. MacKintosh circled like a scared cat for twp days, then finally got her courage up, took it, and said "Oh, God, what have I done?" We all have our stories, from funny to scary, but we eventually get it done - and then... COME BACK FOR MORE! Welcome to this very _____club.

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

well, just telling you to be careful. Dont push to hard. If you finish after 1-2 days coz you feel it is getting hard, that alright i think...but then if you wait for a while and it doesnt seem to be that hard you can start again a pulse, i dont see any reasons why waiting 4 weeks between pulses if you can tolerate it, however if you push hard for 5 days or longer without knowing the reaction for sure you might end up in a nasty pulse...so just be careful please.

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doxy200, azith250, NACi 2400, Metroi 1250(once a month), supplementsi, vitaminsi.

Well i guess im going to be joining the pacing cat club this week because I know Im going to end up popping the pill as soon as i get some good vittles next week. Ive decided that if i cant handle the metroi with 400 doxyi i could maybe decrese to 300 doxy during the pulse... what does everyone think of that? Is decresing my doxy for a week bad for resistance?

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

why would it be bad for resistance? Normal dosage that most of us take here is 200mg not 300mg....

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doxy200, azith250, NACi 2400, Metroi 1250(once a month), supplementsi, vitaminsi.

I just mean from switching from a higher dose to a lower dose would the germs gain some sort of knowlege and act accordingly. I see what you mean though because 200 is the regualar dose, but i still have it in my head that mine are more viscious than a normal capi would require... maybe that is wrong of me, but maybe im right..I think im right, but im open to being wrong anyway lol. No harm done

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Clammed- the best thing to reassure you would be to have a current liver panel. Then you'll know what shape you are in moving into this. Liver results good, go for the pulse.

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CAPi for Cpni 11/04. Dx: 25yrs CFSi & FMSi. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii 1000mg/day pulses; Vit D2000 units, T4 & T3

Hi Clammed,

Before reading all of the replies, my first thougt was to get a liver function panel done for baseline along with kidney function, just to see where you're at would be helpful.  I like to see the labs so I can reassure myself when I'm feeling poorly that I'm doing alright.  If you have medicare these are routine and are covered.  You can get them done with or without the other tests in a CBC and CMP or just a couple of basics.  You can read them HERE under sidebar 2.  

Kidney -  BUN and creatinine

Liver - ALT, AST  

My understanding about resistance is that taking a combined antibiotics approach helps to protect from resistance so as long as you're taking more than one type of abxi, you ought to be fine. 

I would also suggest to trust your intuition.  If you feel a little anxious about pulsing, maybe you ought to wait until it passes and it will eventually.  I think your idea of waiting until you have adequate resources such as moppers and food there would make the most sense.

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NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 1g/day pulses, Iodoral 25mg, Supps, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Secondary Addisons

Don't believe everything you think!  

Hmm, I dont know why I didnt think of that. I have 4 requisitions already. I'll do it tomorrow. Thanks.

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

I also failed to mention that I have a recurrance of that retchid bladder infection. Ive been trying to ignore it because I cant deal with any more antibioticsi right now. I know what germ it is and I know it responds to quinalones, so that is stressing me out as well. I know where and how I got it, from my chronic carrier relative whenever i go over there this happens. I shouldnt have gone.

So,  I got a script for keflex instead though because i told the dr i didnt want anything that works against cpni like bactrim or quinolones ( because i dont want to ruin them for later cpn treatment).

I guess thats the reason Im so stressed out. I guess i should deal with the bladder infection before doing the pulse because that could be the reason Im having slight tummy soreness now that i didnt have before and some mild nausea this afternoon. Ok, Im thinking with more rational now, thanks. I guess I was wanting to ignore it hoping it would just go away but... It doesnt.

Heres what Ill do

1. do liver function test tomorrow

2. take course of keflex start tomorrow

3. do another liver function test after keflex

4. if ok, then, do metroi pulse

 

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Hi clammed,

Sorry about the bladder infection, those are horrible.

I have been following this thread and it inspired me to bite the bullet. So today I started my first pulse. I'm only taking one 250 Metroi, planning on a 3 day pulse to start.  So far all it does is make me queasy (but it could be the pizza. )

Best wishes,
Corinna

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Corinna | GFAi. Wheldon Protocol: 4–8/08. Can't kill the yeast.

Hi all, my bladder seems to be almost better but I still feel it lingering. Im not nauseas anymore and only very minor pain in my scar tissue bowel area. Hopefully the cephalexin works to get it all. I have an old unused unexpired bottle i just found from last year as well so Im going to take a few extra days of it just to be sure its totally gone, since i have neutropenia. Feeling much better though, I guess it was the bladder infection causing the nausea.

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Clammed  Doxyi 200 mg BID alone drove my liver enzymes up and up. At that level it is bacteriocidal beyond bacteriostatic which is what Wheldon CAPi is seeing at least initially.

If you have liver involvement of any extent you may pay the price.  It has been a year and my number are borderline need to stop the medication for a break level.  

What is the rational for the double doxy as I call it?   Mine was the MD wrote it that way, a few folks here questioned me diplomatically.  For me that dosage level was excessive at that point.  Even backing down has not taken them down. 

Just my experience.  Louise

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Louise  CFSi, CPN+/Bb+,Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai & Endotoxinsi PRN, Doxyi 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

Hi Louise

Rationale was " in case this is lyme" even though we both ( me and dr)agreed that its probably not. Mind you, I have such severe cranial facial involvement, its hard not to think lyme, plus the fact that this dose is working great, but yes you are right, I may pay the price. Ill take one day at a time for now. I need to get off this bladder med first before I can acess whether or not my body can handle 400 doxyi plus zithromax. If not I'll drop down to 300 and if that doesnt work ill go back to 200. Its just very hard to stop doing something that is bringing such relief, but yes, I'll only do what my body says is acceptible. Fortunatly, Ive always ate healthy ( up until recently since gone broke) and have never been a drinker ever so my liver is one of my better functioning organs. Knock on wood

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Also worth mentioning which is sort of freaking me out a bit

I got relief when i upped the dose to 400 doxyi which might be expected in cpni,  but what is interesting is this..

I also got additional relief when i started the keflex. Heres the scarey part. Keflex doesnt work on cpn, it does however have some activity on lyme.

Either i have lyme as well as cpn, or an altenative attribution might be that the kelfex killed the bladder infection and my immunei system better responded to the cpn

Other attributions might be regular flora in mixed sinusitis etc..

I guess ill still never know, but i do know that this 400 doxy feels super great on my neck, face and cranial nerves, but then so does seem the keflex...? Ah well, I feel good... is all that matters I guess, for now

 

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CPNi pcri and antibody positive , treating MSi, CFSi, TMJ, trigeminal neuralgia, IBSi neutropenia, pus found in facial bone, Doxyi 100x2,Doxy 200x2 zithro 250x1 alternate days. Metroi pulses each month.

Sad but true there are really many "things" that one can have and so good that there is cross effect with many ABXi.  How can one really know everything for sure that is living in their blood stream.  DW called it the blood stream something but I am blanking on that interesting somewhat poetic quote just now.

Louise

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Louise  CFSi, CPN+/Bb+,Wheldon CAPi 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai & Endotoxinsi PRN, Doxyi 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support