shortness of breath/cough/low grade fevers post stem cells/flu
Just thought I would introduce myself, as I am new here.
My name is Deb from Geelong (Australia), 51 years old. I wanted to join this great forum because I suspect I am suffering with a cpn infection.
I received adipose derived stem cells in May of this year for severe unexplained joint pain and referred headaches, whilst I had a very sore throat, fever, malaise etc, along with an iron transfusion.
I did have some asthma like symptoms pre the stems, but not bad enough to seek medical attention. (have a history of childhood asthma)
2 days after the stems, i developed my first episode of rapid af, which reverted with iv magnesium.
2 days after this, i then became aware of chest tightness, a feeling that i cant completely exhale, low grade fevers etc. I thought initially it may be anxiety, but this has competely debilitated me on a daily basis now.
Multiple dr visits, only to be told that my chest is clear, my sats are normal etc. Kept getting sent home. Eventually, I talked a specialist into admitting me to hospital. He treated me for asthma/reactive airways for 5 days with steroids etc. Made no difference whatsoever. At its worst, I feel like I am suffocating, which is the most distressing symptom.
I was started on keflex, when i mentioned in hospital that i had low grade fevers. The fevers settled, but the respiratory symptoms did not back off.
So far, I have ruled out the following:
. normal stress echo
. holter monitor showed atrial ectopics
. normal chest xray and high resolution ct
. normal bronch. cytology and micro pending
. inflammatory markers normal (esr was mildly elevated just before the stems)
. chronic iron deficiency anaemia. cause unknown?
. no cpn or mpn detected in serology
. normal antibody testing
. npa showed rhinovirus and parainfluenza
. normal lung function tests x 2 with no bronchodilator response
I stumbled across asthmastory.com. The site mentioned this web site.
I am hoping this is infection for which there is a treatment for.
What I have noticed:
. higher resting heart rate
. palpitations when sob on exertion
. ongoing low grade fevers
My specialist isnt convinced this is asthma, because of the normal lung function and lack of bronchodilator response to ventolin.
I am hoping to connect with others who can relate to what i am going through, as i feel very isolated and alone in all of this.
I have found a lab in Australia (australian biologics) who offer a CILA test which apparently is more sensitive for the detection of cpn. I have tried taking NAC but unsure if it makes me feel worse because I already have cold symptoms that are ongoing anyway.
My plan is to wait till i get the blood test done as above, and then look at starting doxy and guage how my tinnitus goes with this.
looking forward to getting to know you all.