Paula has been taking Samento 15 drops per day since July 2007 recommended by her Lyme doc (she doesn't have lyme, just CPNi). Since going up to the full dose of Samento back in July she has had a terrible mucal discharge down the back of her throat. I am going to ask her doc, who we have an appt. with Thursday, to stop her Samento for a month to see if things improve (mucal wise)
He perscribed her Ivermectin which did halt her symptoms for a couple of weeks (problem was that the mucal discharge sometimes halted anyway for a week or two at a time every now and again anyway before taking Ivermectin). I think I was jumping the gun. :-(
What I need to know from everyone is does anyone else here take Samento and do you have the same reactions that Paula is getting at the minute?
PS isn't ME/CFSi (CPN) a piece of cr*p!