Rick is considering Tysabri...
Rick met with his new Neurologist at Stanford, and the Doctor has suggested Rick consider Tysabri - and - is OK with him staying on his CAP protocol. In fact, he's evidently going to have a conversation (or try to), with Rick's Doctor in Sacramento. Plus, this Doctor is going to provide Rick a prescription for Ampyra, something his old Neurologist refused to provide for some reason. Rick also mentioned that the Doctor is aware of clinical trials at Stanford around remyelination.
I think Tysabri is scary, but, Rick is eager to get some abilities back, and Tysabri is known to do that, with some folks (about 1/3rd as I recall) - getting as much as 2 points improvement on the EDSS scale. Obviously, my concern and fear as his father is secondary to Rick's decision. I am still concered though!
Rick is fully aware of the risks of Tysabri. As am I. If anyone here is using that stuff, I would appreciate hearing of your experience with it.
Best & Highest Regards,