Cpnhelp.org - Chlamydia Pneumoniae Treatment

From my reading, it sounds as though your GP was dismissive AFTER he received the letter. True? If not, unless my still-flagyli-fogged brain misunderstands, it sounds good. Hang onto the letter and keep looking. The specialist is correct: there is nothing to do for progressive MSi, and at least for me, the progression accelerates with blinding speed and this protocol is relatively harmless especially when compared to what is facing you. Are you on NACi and other supplementsi? The first order of the day is to stop progression; that is a start.

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyl total 44 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

Hello Rica, no my GP just would not entertain this before he received the letter. Yes I do see the letter as having some value as it was not an outright no. Perhaps a small lever in the future? Yes I am on NACi and the supplementsi, this site does nothing if not drum this into you.

Robert NAC since Jul 07 for MSi

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Robert - MSi for 16yrs. CAPi since Jul 07, NACi 2400mg, Doxyi 200mg daily, Azith 250 mg MWF, Flagyli 10th pulse.

Find another doctor!! I don't know where you live, but in the Northeast USA the most amenable doctors seem to be the Lyme Disease doctors even if you don't have Lyme. On CAPi since June 2006 for high blood pressurei, nasal allergies, restless legs, memory and cognitive problems. Currently: Doxyi 200 mg/day; Azith 250 mg 3X/wk; Flagyli pulses every three weeks 400 mg 3X/day for 5 days

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On CAPi since June 2006 for high blood pressurei, nasal allergies, restless legs, memory and evcognitive problems. Currently: Stopped daily treatment in July 2008 and am now taking three weeks of the CAP antibioticsi every two or three months.

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Oh Robert you lucky person! Go see DW!! The telling statement is in the comment " my view of unconventional treatments is that generally, provided they're safe, I wouldn't strongly object if this is something (he) wishes to try and you are happy to prescribe." Yes the almighty poo-bah has spoken he would not object if you TRY TO SAVE YOUR LIFE!!! Geez. Ok here's a pop quiz: am I on tinii or not? marie On CAPi since Sept '05 for MSi, RA, Asthmai, sciatica. EDSSi at start 5.5. Currently on: Doxyi 200, Azith 3x week, Tini cont. since April '07, all supplementsi. "Color out side the lines!"

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On CAPi since Sept '05 for MSi, RAi, Asthmai, sciatica. EDSSi at start 5.5.(early cane) Now 6 (cane full time) Originally on: Doxyi 200, Azith 3x week, Tinii cont. over summer '07, Revamp of protocol in Summer '08 by Stratton due to functional loss; clarithromy

You ARE on tinii. Feisty and a tiny bit cranky, but in a good way.    And, of course he should go see DW!!!

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

By all means see David! You may also hear some good jokes!

 

Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 44 pulses NC USA

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Rica PPMSi EDSSi 6.7 at beginning - now 2. Began CAPi Sept, 2004 with Rifampin 150 mg 2xd, Doxyi 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith, cont. flagyli total 55 pulses LDNi Rifampin 8/08 again NC USA

Hey Robert,

The letter is somewhat on the positive side.  It has been mentioned that doctors who know about treating Lymes with long term abxi are quite familiar & approachable.

You are lucky you live at least fairly close to DW, he's your man, well... Sarah's.  Anyway, he is a good one to have on your personal team!

Best Wishes for the best outcome possible!

Peace

Ruth

CFIDSi/ME, FMSi, IBSi, EBVi, Cpni, Babesia, insomnia (sleep- melatonini, GABA, tarazadone, temazepam, novocyclopine, allergy formula, 2 gm tryptophan), Natural HRT peri-M, NACi 2.5 gm, Doxyi 200 mg day pm, Azith 250 mg M/W/Fday

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CFIDSi/ME 32 yrs, FMSi, IBSi, EBVi, CMV, Cpni, chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Robert, my consulting neurologist at Johns Hopkins said the same thing and used it as a reason to put me on the protocol. After all, she said, "you can't afford to wait for double-blind studies. This is what is being tried now."

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PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi 3/2/07 - 200 doxyi; azith MWF. 5 pulses.