Really ?? Does it take so long ??
I had a ASO titer positive that means strep throat .. But when i went in for an STDi panel it showed C pn +ve as well it was blood test.
All this started after my trip to africa you can read my story at
http://www .medhelp. org/posts/HIV-Prevention/persistent-sore-throat/show/1727053#post_7913181
I tested +ve for C pn on 2nd august .
My symptoms
Contineous vibration in my left legs feet.. ( it comes and goes in other parts of the body )
Numbness on my right hand fingers..
right swollen tonsil with tenderness ..
get tired very easily ..
weak legs..
In the beggining it was just mild sore throat ( starting 2nd april ) then got other symtoms in May .
I have never taken any medication before in my life i am 24 yrs old male .. But this all started after my trip to africa.
But what doctors say and what i have read on many sites is that C pn can be treated easily with Azithromycin , Doxcyl etc. In 10 - 14 days.
I am taking 100 mg Doxcly 2x a Day & Azithromycin 500 mg once in the morning .
Doctor prescribed it to me for 14 days thats it he says you will be fine.
You can see the treatment guidelines in the below mentioned link.
http://bestpractice.bmj.com/best-practice/monograph/606/treatment/detail...
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pls can someone tell me i am going to be that sick ??
Is there no cure for this f disease ?????
Before you made any mistake, There must have been a source of influence that led you to that point. Examine such sources critically next time so that you do not repeat your past mistakes.!!
Welcome Andy
Do some reading and you will calm down. I am not a doctor and can only speak from my own experience.
First, if you have only had this bug a short time, you will probaly not be sick for years, especially if you treat now and as thoroughly as possible. There is much not yet known - we here are volunteer guinea pigs, and many of us were very far down the "sick" road. The amazing thing is that it is working, and we are coming back against all the odds.
Read the "Getting Started" tab at the top and begin the supplementsi. One of the foremost pursuits of this site is to teach people like you about this bug, so you don't have to waste your time.
Rica
3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.
Andy, I know this is all new to you, but please slow down and calm down a bit. We can't say for sure if it's a cure, but you've found the treatment that's helped many, many of us recover our health. Read a few of the patient stories for some reassurance.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Hey, andy, don't panic.
If you've ever seen Hitchhiker's Guide to the Galaxy then you know that's the first rule.
The first thing you should do is read the Cpni Handbook which you can find on the top-line menu. And I mean read it, not just scan it. If you have a Cpn infection and decide to try one of the protocolsi on this site, the information in the handbook may mean the difference between being uncomfortable for a few days and ending up in an Emergency Room. This is serious, invest some time.
And remember, you always need to know where your towel is.
If you have one of the diseasesi that Cpn has been implicated in causing, the Wheldon or Vanderbilt protocols which you can find on this site offer the potential to put the disease into remission. That's it. This is not a cure. Antibioticsi cannot repair damaged nerves; they can, at best, stop nerves from being damaged further. You will have to rely on your own body's power of healing to repair existing damage. To aide in that, the Wheldon protocol lists some supplementsi you should consider taking.
Good luck.
CAPi for M.S. 8/2007 - 3/2009. Twentieth pulse metronidazole + INHi completed 3/12/2009. Intermittent treatment thereafter until 11/20/2009.
Hi ,
I had some very close contact with a woman in africa ( on 15th march ) and after that it all started .. i had sore throat then after a month i had vibration in my left legs feet & numbness in my right hands finger i was thinking nothing but HIV at that time, but when i tested -ve out of window period 8 times , i started to think that it could be something else then i went for STDi panel and found myself +ve for Chlamydia pneumonia on 2nd August.
I have taken 3 days of Azithromycin & doxcycline with it i feel that i am fresh not dizzy anymore ..! I have a prescription for 14 days . And doctor says i will be fine .
Do not know what is gonna happen now i am just 24 yrs old male .. not married. And now i am affriad of getting married because i just can not give it to someone else as well.
Now what i see is if person gets Hiv , & starts teatment early he can live normal average life with no symptoms..!
But this C pn seems to be more horrible ....! life is a bitch.!
Thanks.
Before you made any mistake, There must have been a source of influence that led you to that point. Examine such sources critically next time so that you do not repeat your past mistakes.!!
Okay, Andy, puh-leeez stop with the alarmist posts. EVERYONE is responding to you, telling you this is NOTHING like HIV/aids, but you are refusing to 'hear' it.
You have a bacterial infection, which is the infection that causes pneumonia in the lungs. It is NOT like HIV. It is NOT a death sentence. It is NOT the end of the world. It is not an STDi.
Your encounter with this woman is probably not where you came in contact with cpni. You may have breathed it in on the plane you took, or in an elevator when someone with an active infection sneezed. In other words, this bacteria is pretty much everywhere and there's little way to lay the blame on someone or something and zero purpose in laying the blame, anyway. You have an infection that most people live long, healthy lives with. We're the unfortunate ones who it 'gets to' and causes variations like chronic fatigue, multiple sclerosisi, rosaceai, etc. We treat it and we get back to living our lives. Period.
Please put some time into reading the other parts of the site. The board is for questions, answers and support. The rest of the site is where you'll find the information you need to move forward and get on with ridding yourself of this bug. Then you can get married, have children and use your energy chasing after them, building a bank account for their education and enjoying your long, healthy life.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Hi Mack,
I just saw this site
http://meded.ucsd.edu/isp/1999/CAP/chlamyd.html
It says 2-3 weeks of treatment is suffcient .!
Why it is said that it can take up to years on this website ??
Is it for lyme or for C pn only ?
And why no other website tells about this like CDC etc??
Before you made any mistake, There must have been a source of influence that led you to that point. Examine such sources critically next time so that you do not repeat your past mistakes.!!
Andy, You do realize that is fourteen year old information? Please go to the cpni handbook section of this site and start researching there. If you want to read technical medical info, read the physician pages section. Information about this disease is constantly evolving, as new studies are done and new information is learned and disseminated. You might want to read the Vanderbilt patent, outlining the treatment of the disease, to give you a better oversight of the rationale behind the treatment and the need for two antibioticsi, long-term, to kill it.
The reason our site says the treatment takes longer than a couple of weeks of treatment is simply because it takes longer than a couple of weeks to kill this infection in all its life stages and in all the tiny little places it has entrenched itself in your organs, bones and blood. That's just the way it is and no amount of wishing there was a shortcut is going to change that.
If you choose to rely on a fourteen year old description and definition and treatment path, of course that is your prerogative. The bacteria was newly discovered back then and there were no studies and no real information on it. Physicians still aren't widely aware of it , which is a huge part of why this website exists.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
why don't CDC , WHO publish the treatment guidelines for it ??
Why not anywhere except this website it is said that it takes so long ????
Why ??
like the treatment of TB is given
http://www.cdc.gov/tb/topic/treatment/default.htm clearly .! & also for many other diseasesi .!
Why not C pn if the cpnhelp knows so much why just such big organisations lack the knowledge ??
That means are they trying to kill people who have C pn ??
it is crazy .!
Before you made any mistake, There must have been a source of influence that led you to that point. Examine such sources critically next time so that you do not repeat your past mistakes.!!
Andy, stop it please! Read the patient’s handbook, read this site: it’s not just about MSi but other things that can be caused by the same infection:
http://www.davidwheldon.co.uk/ms-treatment.html and it is written by a doctor who is a Fellow of The Royal College of Pathologists.
But firstly listen to Mack who talks nothing but sense. You are 24 so you could be fighting fit in a year or so if you calm down and sort out treating yourself ......................Sarah
A Journey through Light and Shadow
Yes, Andy, it's crazy. But that's our government at its finest. ;-)
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Andy, keep in mind that many of the people on this site have been seriously ill for many years before beginning any type of antibiotic treatment for Cpni. They probably got what they thought was a cold or a pneumonia (hence the name...) type infection that they thought resolved on it's own. Years later they developed symptoms of MS, heart diseasei or skin problems. When one has been sick for many years with a complex bacterial pathogen, the illness will not be resolved with the traditional 14 day coarse of antibioticsi. You have been exhibiting symptoms for a short period of time. You may not need to be on antibiotics for a long period of time.
Has your physician tested you for EBVi also called Infectious Mononeculosis? My friend was just diagnosed with it and your symptoms sound just like what she was experiencing.
Please take time the read the Handbook. You may also want to read to other patient's stories. BTW- Cpn is not the same as the Chlamydia that is sexually transmitted.
Marianne
Misdiagnosed with RRMSi 2010. Dxi CPni and multiple viral infectionsi in 2011. Dx Autonomic Dysfunction 2012. Did Wheldon protocol for six months 2011. Currently taking Valcyte, Famvir, Equalibrant and supplementsi.
Andrei Kutlin, Patricia M. Roblin, and Margaret R. Hammerschlag. Effect of Prolonged Treatment with Azithromycin, Clarithromycin, or Levofloxacin on Chlamydia pneumoniae in a
Continuous-Infection Model. Antimicrobial Agents and Chemotherapy, Feb. 2002, p. 409–412 concluded that treatment with 14 days of antibioticsi was insufficient to reduce CPni to undetectable levels.
Other articles can be cited, but this should be sufficient to answer your question about whether 14 days is adequate. It may be, but probably isn't. Between 1990 and about 1997, I had sinus infectionsi that recurred every 90 days. I would get between seven and fourteen days of various antibiotics which would clear up the infection - for 90 days. In time I found a doctor who put me on antibiotics for 30 days. The kept the infection at bay for nearly a year, but had to be repeated annually. I started the Wheldon protocol in 2007 and stayed in it until 2009. I have had ONE sinus infection since 2007. As far as I am concerned, Drs. Kutlin, Roblin, and Hammarschlag are right, it take more than 14 days.
CAPi for M.S. 8/2007 - 3/2009. Twentieth pulse metronidazole + INHi completed 3/12/2009. Intermittent treatment thereafter until 11/20/2009.
As to your question about why institutions like the CDC and WHO haven't adopted these protocolsi, the fact is that as a science, medicine moves slowly. New discoveries have to be proven before they can displace conventional wisdom. And even then, the current generation of doctors who learned contradictory axioms in medical school have to pass into retirement before new ideas are fully embraced.
The field of medicine is full of such stories. Look how long it took the conventional wisdom to abandon the notion that ulcers were caused by spicy foods and accept that most of them are caused by a bacterial infection; H.pylori. And further that it took two (or three) antibioticsi to eradicate it.
The current conventional wisdom regarding most of the diseasesi that Cpni is believed to have a role in is that they are autoimmune; that is, the body's own immune system is attacking itself. If this were true then suppressing the immune system would clearly provide relief. But in the case of M.S., despite decades of various immune supressant and immune modifying treatments based on Interferon or Glatramer Acetate, none of the treatments is statistically any better than a placebo. Clearly, autoimmunityi is not the primary answer. And in time the conventional wisdom will catch up. But people like Sarah, Mackintosh and I didn't have another twenty or thirty years to wait for that to happen.
CAPi for M.S. 8/2007 - 3/2009. Twentieth pulse metronidazole + INHi completed 3/12/2009. Intermittent treatment thereafter until 11/20/2009.
Hdwit,
" And even then, the current generation of doctors who learned contradictory axioms in medical school have to pass into retirement before new ideas are fully embraced. "
What does that mean ?? according to you if their is a discovery if of some new deadly virus then doctors will not conisder treating it because they did not learned about it in medical school ?? really ??
And also 50 - 80% people get this bacteria in their life time , so i would not be surprised to see every other person in my office taking CAPi & their would have been CAP treatment centers in everybodys area.
I don't know much but yes i have these problems since after i had the unprotected episode in africa and it has ruined my health.
Before you made any mistake, There must have been a source of influence that led you to that point. Examine such sources critically next time so that you do not repeat your past mistakes.!!
Yes, it really does take a generation of doctors to pass before the majority might embrace a new treatment.
I see one of the foremost neurologists in the MSi field. He is nearing retirement and, when presented with this protocol, the patent information, the many recent studies on cpni, he pronounced it 'impossible' that an infection could be the cause of MS. He could not deny, however, that my 'normal range' physical agility tests had improved noticeably since I went on abxi! He could not explain how I could be improving, but he was determined that it was driven by ANYTHING except antibiotics. He is entrenched in his thinking and can't be persuaded by new discoveries and information. But, soon, he will be replaced by some young, forward-thinking doctor, fresh from med school with fresh information on CPn.
People are emotionally invested in what they learned in the past. Doctors have treated patients for decades during their careers, based on what they learned in the 60's, 70's and 80's in medical school. They don't want to hear that they were wrong, that they allowed patients to die because their treatment protocolsi were erroneous, or that they now appear incompetent, in hindsight. They will cling to what they have done and believed, until they retire. Well, most of them, anyway.
Andy, you are doing the same thing. You keep telling us we must be wrong, because the government is entrenched in 'old' thinking and treatment ideas. You keep saying the long-time physicians are the ones we should be giving the most credibility to. WE are the human guinea pigs for this treatment and the majority of us (not all, but most) have stopped progression and many have recovered a good amount of their lost motor and brain function, but you seem to think we are wrong and the old-school way of thinking MUST be right. I am not going to defend the protocol or the website or my own near-complete recovery any more here. You need to go read the other sections of this site and learn about cpn and its treatment protocols.
And, once again, it doesn't matter how you got this infection, or where you acquired it . What matters is treating it before it takes over every aspect of your life, or it debilitates you to the point you can't recover full function. Sooner, rather than later, is the way to go.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Ok fine but what i have read on this page http://www.cpnhelp.org/chlamydia_pneumoniae_anti
It says
NACi kills EBi
Rifamcini kills EB transforming to RB
Doxycycline and Azithromycin Kills the RB's ability to replicate.
Metronidazole or tinidazole kills the cryptic Cpn .
Why don't just take NAC it will kill EB so their is no new RB's so no progression .!!!
( If some aborts a baby it is not going to pop out after 9 months. )
Before you made any mistake, There must have been a source of influence that led you to that point. Examine such sources critically next time so that you do not repeat your past mistakes.!!
Also read this why your doctor does not think your neuropathy has improved because of antibiotic .
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3044191/ because NACi treats brain functions.!
Before you made any mistake, There must have been a source of influence that led you to that point. Examine such sources critically next time so that you do not repeat your past mistakes.!!
Andy,
NACi will halt any new Cpni infectionsi in their track, but won't do a thing for any of the other stages of infection. Your chronic infection will just keep multiplying and hiding away doing damage. Have you read the introduction and patient handbook thoroughly so that you understand the life cycle of the bacteria? I'd strongly suggest this before you go any further. A good analogy is headlice. You can put as much stuff on your head to kill the lice as you want, but unless you comb out the eggs, they are just going to hatch and keep spreading.
I wish you well, though it seems to me you've already made up your mind that the protocol won't work and/or isn't necessary long term. Noone can convince you otherwise but you really need to do some in depth research. I wouldn't waste your energy trying to convince anyone on here that the protocol is pointless - you'll have a hard time when many of them are improving or better after years of time wasting in the conventional medical world. Put that energy into getting better!
Best of luck.
It is better to believe than to disbelieve; in doing so, it brings everything into the realm of possibility (Einstein)
CFSi/FM (2001); 'probable' MSi; Cpni; EBVi; HHV6; Chronic sinusitis/bronchitis/allergies
This is what happens the longer CPNi is in your body.....
http://cpnhelp.org/how_chlamydia_pneumoniae_
So, yes, it can take a long time, depends on how long you've had it.
This is what happens the longer CPNi is in your body.....
http://cpnhelp.org/how_chlamydia_pneumoniae_
So, yes, it can take a long time, depends on how long you've had it.
Redrider hows your treatment going on ? what symptoms did you had ?? how long did you had C pn or you have lyme as well ??
Before you made any mistake, There must have been a source of influence that led you to that point. Examine such sources critically next time so that you do not repeat your past mistakes.!!
Yes, it takes this long for those of us that have been sick for years. I got sick at 16, I'm now 40. This TX is awful, and my only hope. 1st make sure you have the bacteria and not the STDi, the STD can be treated in 14 days-the bacteria TX depends on how long/how sick you R with it. I wish to God I was in your shoes when I was 16. My life is over-you still have a chance to have yours. Quit fighting everyone on here, pull up your big boy pants (like you should of done in Africa-everyone knows you don't have a fling in that country and come back healthy)and start the full CAPi TX. Also, as a side note HIV tested immediately after sex is just to determine U dont already have it. You have to re-test 6 mmonths later to be sure your not infected.
Back to CAP, you can do the TX, hardly have your life interupted, and get the bacteria under control or you can not and end up as screwed up as we are-your choice.
You do realize if at any point you had mono, or pneumonia, or another bad respiratory infection-you got this fom yourself? The reason everyone reacts differently to the diseasesi and the TX's is because everyone's immunei system is different. My whole family is infected but so far I'm the only one with a disease (M.S.) and I hope to God it stays that way.
You write like a 12 year old who heard he wasnt getting his way for the first time in his life. Grow up. The doctors get their CEU's from the drug companies, who make way more $ treating symptoms with their expensive drugs, then actually finding a way to almost cure or cure the problem.Example: copaxone-$3,500.00 a month, antibioticsi-$200.00. Gee, wonder why Dr.'s dont know about the CAP. If you don't treat this bacteria and fully eradicate it expect at least 20 more symptoms with varying degrees of pain/imobility/embarrasement (bowl, bladder, unable to get an errection, etc.) then start this TX and multiply that pain, etc. by 100, cuz you get way worse before you get better.
Well done, Erica: I was just too polite to say it!.............................Sarah
A Journey through Light and Shadow
TY Sarah-all this great advice he's being given and he's still acting like chicken little, "the sky is falling", eerrr. I'd give everything to have found this site right after my problems started, I think all of us would.
I have to say, I am not always PC to someone who doesnt get 10 nicely worded responses. It's frustrating to know how lucky he is, his life doesnt have to end and he deosnt see it. Maybe it's an age thing. He's young. My son is 22, he's pretty clueless sometimes when it comes to things he's never experienced before. I do have to say; had my son somehow finageled a trip to Africa, instead of my usual double bag it speech, i would have said, "don't put "it" in anything but your hand". I mean Africa-really?
I reall hope he reads all the literature on here and decides to follow the CAPi, it will save his quality of life. I don't consider what I have as living. I'm just alive.
Erica he says that he had an STDi panel done: that won’t even show a Chlamydia pneumonia infection, since it isn’t a sexually transmitted disease.............................Sarah
A Journey through Light and Shadow
Sarah,
13Yeah-I know that but I wasnt sure he understood that. I think all he may have heard was chlamydia and freaked. Not only doesnt it show on an STDi panel, in the U.S. there's only like 2 labs that can actually find it. Hope he does this TX and stops the bug in it's tracks :)
He hasn't posted on this site since 10 August. I'm fairly sure he's figured it out by now.
The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi