MediTest
Submitted by forumnots on Wed, 2007-10-03 13:54

Had my Dr appt yesterday.  He asked if I had come to this website and I told him just how invaluable it was to not only helping me understand, but my mental stability of finding folks who are facing the same issues.   In building this blog I uncovered the minoxcyclin that I was taking for my face (which cleared it up like magic) and how bad I felt afterwards.  I did scold him for not warning me of die-off and how bad I would feel.  He commented that he wasn't sure I would be affected but that he would make a note to make sure to tell others.   Got the feeling I was a test case and it surprised him with my classic response.When I told him that my lower left leg is like my barometer of "health".  When I physically overdo, it gets very sore, buckly, tingly and like it doesn't want to hold me up.   He wants me to have a test out of a lab in Austin called AAL just recently bought by Genova Labs.    All I could find anti-myelin antibodies tests....is that for MS??  He explained that it would test the myelon sheath to see if it was working properly.  We are checking with insurance now.The plan...get off the Nystatin, start my supplements (from the list published here), continue my 30mg Armour Thyroid and the new stuff.....a prescription for 500mg of Amoxil 2x day.  I am to take that for a month with my 1200 NAC (wants me to back off from 1800) and then we will add Probenacid for a month.  Then in month 3 we add Doxy and Zithro.   I've not seen the Probenacid anywhere in the protocols or the Amoxicillian.   Need your input and thoughts on this?!  On the health status level, I couldn't get out of bed to go to work today until 10...everything weighs about 40 lbs..arms, legs, etc.   Luckily I wasn't missed at work. Your words of encouragement, wisedom, advice and companionship through this journey means more than you will know.  Thank you everyone.Lisa-CAP 10/3/07 Amoxicillion 500mg 2x/30mg Armour Thyroid/1200mg NAC/--positive Aug 07 for EVB/CFS/FM/Mycoplasma p. (all supplements on website's recommended) beginning today

I don't know anything about the Probenacid but I'm sure others do. I believe the Amoxicillion is an antibiotic that kills the EB form of Cpn. It's discussed various places on this site. NAC also kills the EBs so you'd have to ask your doctor why he wants you on less NAC and also Amoxi rather than the full dose of NAC. He sounds aware of the issues and maybe he thinks that's better for you for some reason.

Janet

On CAP since June 2006 for high blood pressure, nasal allergies, restless legs, memory and cognitive problems. Currently: Doxy 200 mg/day; Azith 250 mg 3X/wk; Flagyl pulses every three weeks 400 mg 3X/day for 5 days

On CAP from June 2006 to July 2008 for high blood pressure, nasal allergies, restless legs, memory and cognitive problems. On intermittent CAP from July 2008 to August 2009. Currently: using RIFE Machine and under treatment with a Naturopath, symptom free

Lisa, I'm so excited for you! Good to know your doctor is lurking here, as well.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Reaction?  Or just a coincidence.  My butt was thorougly kicked from the wedding all week long and then starting Amoxil on Tues evening.  Didn't feel better until Saturday morning.  Sunday my lower right leg began itching and now this am, there is a red patch bigger than the size of your entire hand and it itches like crazy.  There isn't a rash, it's just looks very inflamed but doesn't feel hot or bumpy.  I've only had this once before about 4 years ago and it went away on it's own in about a week.   The upper body aches have gone for the past 36 hours but lower extremities are very sore and at night some zingers in my toes but only briefly.   Just weird so I'm curious?!   I think I'm gonna watch it and if it starts to spread give my doc a call. 

 Lisa  Positive Aug 07 -  Candida/EBVi/Mycoplasma Pnemoniae/CFS/FM, low NK cells.   (NAC - 1200MG for one month/Started 10/2/07 Amoxil 500 mg 2xday/protocol supplements/Armour Thyroid 30mg) 

Aug 07 -  EBVi/Mycoplasma/CFS/FM, low NK cells. CAP 10/3 Amox 500mg 2x/NAC 1200mg.&nb

Forum, I've been through the itchy patch thing, too. Not hives, but areas of itchiness. Several people here have reported skin involvement: blotchiness, itching areas, raised bumps, etc. Since it happened before for you, it's likely another spot where antibiotics are doing deadly battle with bacteria. I wouldn't rule out using a topical, like aloe vera, on it for the moment, though.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Lisa- Probenecid slows the excretion of amoxi by the kidneys, keeping it in circulation longer so you get max effect. That may be why your doc wanted to knock down the NAC until you see whether you get bigger hit.

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 200 Doxycycline, 500mg MWF Azithromycin, Tini pulses.