Cpnhelp.org

Norman,

I too have been having increased irregular heartbeats (only on bacteriostatics so far) and some minor chest pain. Cardiac tests are clear so far, and always have been. I am also wondering if you reacted to the niacin which can cause irregular rates in sensitive individuals.

Wish you well,

Chris

CAP since 11/06 for CFS. Cpn, Myco P, CMV, HHV-6 infections.
Zith 500 mg Tues, Thurs/Doxy 200mg MWF. All supplements.

Norman thank you for relating your treatment and reactions to us.   I think that the moral of your story applies to the rest of us whatever we are suffering from, which is: we don't really know how we are affected by Cpn until we start to treat it.

Often we have visited the doctors offices with symptoms which are frightening and could be serious but dismissed as nothing, possibly because most doctors are unaware of the existence of Cpn and its possible consequences.   When you are young these events are scary enough and often go unexplained but when you get older and you get more of them, both in terms of variety and frequency, they are then usually associated with heart disease, arthritis, hypertension, which we are told is part of getting old or alternatively due to our poor diet or irresponsible lifestyle.  

Cpn is a parasite, it could not live without you and therefore does not want to kill you quickly.   But quietly without making too much of a fuss it gradually takes over different parts of your body.   Then when we start on the CAP, it gets found out and starts to protest...And the harder we hit it the louder the protest, at least that is my experience. 

Michele: on Wheldon protocol since 1st May 2006 for a variety of long standing ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy, also spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS

I'm Norman's mom. He's been in obviously better health over the past year, and his experience and knowledge convinced me to start on CAP a month ago. He's been guiding my protocol, and so far I'm just on minocycline 100 twice a day, along with the Wheldon supplements.

As Michele points out, it's interesting to see just where CAP will show Cpn-caused disease. I believe I've had a preview of sorts by taking prednisone. In January, before I started CAP, my gastroenterologist prescribed 40 mg of prednisone to kick my inflammatory bowel disease into remission. While prednisone is not something anyone would want to take for long, it gave me a sense of how much I'd been putting up with: rather suddenly, my nasal passages cleared, my arthritis disappeared, and my gut became so normal that I realized what I'd been missing for decades. Now that I'm ramping down the prednisone (now at 10 mg) these conditions are returning as the prednisone's anti-inflammatory effects abate. I'm hoping that CAP will eventually get me back to what I experienced with prednisone.

Reading the CPN handbook, I'm now connecting my rosacea and the "walking pneumonia" I contracted in my late teens with Cpn. For the last few days, the minocycline seems to be provoking flu-like effects, with congestion in my lungs and sinuses. Time will tell, and Norman advises me to go slowly with CAP.

It's reassuring to have the support this site offers.

Sue: started CAP Feb 3 2007 for arthritis and inflammatory bowel disease, with minocycline 100 mg twice daily.

I can't say that I've noticed much effect of the niacin on my heart, but I sort of presume it has had some. The time when I started playing around with niacin was after the time when I had most of the heart irregularities.

I got a call today from my neurologist: my last liver function test came out elevated. That was a test done on blood drawn a week after the last pulse mentioned above. I'll be backing off a bit on the intensity of this regimen. It certainly has felt a bit excessive.

 As they say, Norman, "Nothing exceeds like excess!" It certainly sounded like a rather challenging protocol this early in the game. I'm glad you have good monitoring so you know when your system is overloaded. Great report.

CAP for Chlamydia pneumonia since 11/04. 25yrs CFS & FMS- Currently: 150mg INH, 300mg Rifampin, 200 Doxycycline, 500mg mwf Azithromycin, plus 500mg Tinidazole 2x/day pulses every two weeks. Whew! That's a lot!

That was great reading, Norman, and nice to meet your mom! How delightful that some have the good sense and intelligence to see what is before their eyes and do something about it.

Rica PPMS  EDSS 6.7 at beginning - now 2.  Began CAP Sept, 2004 with Rifampin 150 mg 2xd, Doxy 100 mg 2xd, added regular pulses Jan 2005. Jan 2006 switched to Doxy, Azith,  cont. flagyl  total 43 pulses NC USA

Yea KK2 I like that, it explains all the problems we have really, a Cpn tantrum, I can just visualise it like a two year old thrashing about on the floor because s/he can't have a cookie...

Michele (UK) GFA: Wheldon CAP1st May 2006 . Daily Doxy, Azi MWF, Flagyl at 400mg for 7 days prior to 5 day pulses at 1200mg three weeks cycle. Spokesperson for Ella, RRMS Wheldon CAP 16th March 2006

Hi van buren, and welcome.  It's amazing that feeling normal opened your eyes to how bad you had been feeling.  How long did it take you to be convinced that what Norman was doing (the CAP) was something that could help you as well?  I'm struggling with that situation in my own family, but sadly, as they wait to see the long term results for my husband and me, their health will continue to deteriorate. 

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, antivirals, heavy metals chelation, LDN, Metanx, Lunesta, GF/CF diet, Lauricidin, oral IgG/lactoferrin/IGF-1 booster, astaxanthin, gamma oryzanol.

Joyce (self)~generally falling apart (cardiovascular, diabetic, arthritic & a variety of other health issues). CAP since May 07, antivirals, heavy metals chelation, 7-keto, Lauricidin, astaxanthin.