RA: What kind of reactions to expect?

I've had RA for 33 years. Able to keep relatively under control until recently. My disease has always been about inflamation. I don't test positive for the RA factor. Don't want to use Enbrel or those other drugs if can avoid. Tested positive for cpn via Quest labs. On CAP for 2 weeks. Swelling of joints is worse. Some strange numbness in hand and as the day goes on can't move 1 arm. No flu like symptoms. Does this sound normal? What else can expect?

Welcome to our site! Read the Getting Started tab at the top and Michele will send you a messae if she hasn't already. If you have tested positive, your work is cut out and laid before you. We here are among the most and least fortunate people on earth and you are here, therefore you are fortunate, too! Have you begun NAC? A signature will help everyone to know about you. (My arthritis is ALL gone - I am 68 years old, I'm supposed to be arthritic!).

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Yes, started NAC a week later than the antibiotics. My Dr didn't advise me but reading through on the site, I knew it was vital. I tried to add a signature. Was having some problems with the site.
Beth -mom of 2 beautiful girls one who I suspect is positive CPN;RA 33 yrs tested positive for CPN; Supp for 12 mos; CAP started 10/6/08 Doxy 100mg,Azith 250mg MWF, NAC 1200mg 10/20/08 Doxy 200mg, 10/27/08 NAC 2400mg ; pulse #2 12/05/08
Red

Hi Beth,

Welcome!   Glad to see you on the site (although sorry to hear about your illness).   Your new symptoms don't really sound out of the ordinary.   A list of many of the symptoms you may encounter can be found here:

http://www.cpnhelp.org/reactions_and_remedies

Be sure to read up on secondary porphyria and all the necessary counter measures.   A good start page for this can be found in the Handbook from the tab at the top.

Hang in there.   Hopefully you'll start noticing improvement in only a few short months!

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Yes, you're 'normal'. When the meds start to do their job, inflammation is the result of the combat between the bacteria and the antibiotics. It subsides, but you WILL have reactions at the site of cpn infection. And that's exactly what you want. That means it's working.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi