MediTest
Submitted by Jim K on Wed, 2007-12-05 21:05

The same thing for MS CAP users. Please don't take the survey if you have not been diagnosed with MS, and only take once!http://www.cpnhelp.org/UCCASSv1.8.1/index.phpIt's #7 on the list.Results are public, and can be filtered to see responses of subsets of users. No personal identifying info is taken or required.Direct link to current results.

Jim, I had to answer 80% improvement on CAP because there was no option between 80% and 100%! If asked, I'd actually say 95%.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

 Oh well, it is a quick and dirty one! I'll change it for future folks, but can't alter the one's already in. CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxy, 500mg MWF Azith, Tini 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

Jim, I couldn't answer the questions because 1) I might have had problems since birth -- do I just count it from when I started limping or 5 years before that when my stamina decreased. 2) I have no idea of the degree of my impairment. That's such a hazy question and who am I to compare myself to? Nor do I know how much I've improved since I'm in worse shape energy-wise than ever. Too quick and dirty for my clean incisive mind! But thanks for trying.PPMS-misdiagnosed 5 years-diagnosed last spring. Minocycline 7 mos.- resulting bronchitis 5 months. Talked Hopkins neuro. into: HRT (estriol and progesterone as neural protectant re Voskuhl,UCLA).Wheldon CAP 3/2/07 - 200 doxy; azith MWF. Rockville,Md.

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

As you say Jim, a quick and dirty poll, but it however imprecise it is it will give us an idea of the number of people seeing some improvement or not.   Michele (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse. Zoo keeper for Ella, RRMS, At worse EDSS 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

 Exactly, Michele! I knew that lot's of folks hate the imprecision of these things. Artile, just answer "as best you can." As you are in the early phases of the CAP, your responses are important, even if they say that you are worse than you began. Answer the "degree of functional impairment" question according to how much it affects your own functioning in day to day life on the average (not compared to someone else), ie, no affect, a slight affect, mild affect, moderate ( I usually see this as the point at which the affect is requiring some kind of compensation for me), high (I can function, but barely), severe (I'm incapacitated).  CAP for Cpn 11/04. Dx: 25yrs CFS & FMS. Protocol: 200mg Doxy, 500mg MWF Azith, Tini 1000mg/day pulses; Vit D1000 units, Cytotec 100mg, Plaquenil 100mg, Magnascent Iodine 12 drps/day, T4 & T3

Quick & dirty is the way to go! Strangely I couldn't view the results of the MS survey but was allowed to view results of CFS survey.  CFS since 2001. Infected CPn Jan 2006. Started CAP March 2007. Currently: 500mg Azithro MWF, 200mg doxy every day. 4 Pulses done.

Hunter: Don't think - experiment