Submitted by Jim K on Wed, 2007-12-05 19:56

For those currently on or completed a CAP who have been diagnosed with Chronic Fatigue Disorder or Myalgic Encephalitis:Take the survey #6 on this page: http://www.cpnhelp.org/UCCASSv1.8.1/index.phpIt's open, and shouldn't require a password. This will only be around for a week, so get to it you tired and slow friends! Once we accumulate the results, you can use the filtering system on the results page to look at subsets of the data, eg filter for only those on CAP for 1 year or more, etc.Current results link We did a big and complex survey about a year ago, but the analysis demands expanded to meet the complexity of the survey and I bogged down on it completely. I'm very sorry about that. At least we can get some more simple updates via "Quick and Dirty" type small survey's. We'll do the same for MS.

Only little comment:
I have problems whole my life-since my birth, so I cannot answer the last question..

Prague, The Czech Republic, On Wheldon protocol for Cpn and Mycoplasma since 02/18/2006.

Stratton/Wheldon protocol 02/2006 - 10/11 for CFS and many problems 30 years

Hi lala, I would say over 20 years it gets the point accross that it has been a long time for you!Louise  CFS/ME.  CPn posititve, Bb positive. Started CAP 6/24/07 Doxy & NAC 11/3/07 Macrolide 150mgBID added to Doxy100mgBID,NAC600mgBID 11/22/07 #1 Tini Full pulse 500mg BID 11/26/07Cholestyramine HS for porphoria/Lipo Endotoxin sxs x 1 week after pulses.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support