Pulse 4!

Submitted by JaneK on Fri, 2017-10-20 06:08

Nearly done! Two more tabs and I get three weeks off! And, yes, it has been tough, as DW and Sarah warned me. I've been much better at taking my ABX on an empty tummy. I lost so much weight when I was first diagnosed, I was very skinny! But, 10 years later, I'm putting weight on, maybe too much, but I've a feeling it's good, and I feel sure, I'll be walking my very loved guide dog, soon.

It goes like this ...

I pop Metro as soon as I wake and again, about, 8 hours later.  The third, again, 7 or 8 hours later, just before bed, taking Roxy an hour, or so, before tea and Doxy, after, and supplements then, although I sometimes forget, but always take Bs.

after an hour-ish, the Metro starts to hit, I feel dizzy and wobbly. After another 3 or 4 hours, I feel capable of walking and thinking again, until the next one.

yes, it's hard but I think it's helping! ... I hope so, anyhow! SG I'm sending a PM with a number, for your armoury. 

Jane, do you actually take all your antibiotics without food?  The only one that I did was rifampicin, but as soon as the requisite hour was over I would tuck into breakfast,lunch or dinner.  I'm glad that I only took it for six months!

The one thing that I could never take on an empty stomach is doxycycline. I would either have to eat a chocolate biscuit or a bowl of plain yoghurt in order to keep it down.  Also, the only side effects of metronidazole I had was depression, anxiety and a black stool.  Some people are much more badly affected.....................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah,

Apart from Doxy, I generally take my ABX on an empty stomach, but I eat, as soon as the requisite time, is done, Maybe too much!  I only began doing this recently, after I posted that I didn't!  The last pulse was harder, but I already feel it helped! Although, my leg is bad today, but, again, I slept very badly, after a couple of drinks, but only a couple. Yes, your side effects are very familiar, but,my GP told me, early on, that I was likely to get depressed, which I wasn't, but , he couldn't answer if that was because of MS, knowing I had MS, or the fault of lowered capability! But, now, it does seem to be the Metro!

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Well Jane, to be absolutely truthful, the only antibiotic which I took on an empty stomach was rifampicin, which since it i taken three times a  day, probably accounted for me going ultra skinny for a while: I had a pair of size 10 Rohan jeans which I could take off without unzipping them, ridiculous at 5ft 8ins!

Since I tended to take as many things together as I could, and because I had to eat something with doxycycline, I only ever avoided food with rifampicin. One pack of doxycycline I got from Thailand or India, said it should be taken on an empty stomach, like the original tetracycline, and just washed down with plain water.  I hope not too many people obeyed this instruction!

As for metronidazole and depression, I could easily burst into tears within half an hour of taking the first tablet of the pulse!  After about eighteen months, I changed to tinidazole, which tasted better, was only taken twice a day and made me cry less!......................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Hi Sarah, 

i may buy some Tini, as it's recommended to determine remaining die-off. But, i wouldn't take it , for quite a while. Do you think you benefitted from it?

Jane

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

I, for one, certainly benefitted from it.  In my blogs, I believe, I mentioned when I switched.  It was decidedly easier than flagyl.  This whole protocol can be very difficult for some if they are really bad, but it is definitely much better than any alternative!

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Very true Rica!!  Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.

Yes, Rica, I agree.  although, had I continued with NAC I would, very probably, have felt differently!

MS symptoms from 2001, DX RRMS in 2008, following, a change of hospital who sent me for an MRI, precipitated by some sight loss. Took Interferons, on and off. Prescribed  chemo infusions to slow pro

Jane, I changed to tinidazole largely because I hated the taste of metronidazole so much.   When I started intermittent protocol my GP seemed to have had enough of David and me.  She would ask if I still needed roxithromycin, and why could I not take the less expensive azithromycin, and so on.  So I decided to buy the antibiotics on the Internet, being at the time, bang up to date on the best places to buy them from.  I could now get tinidazole easily, and that meant just two doses a day and a much less metallic taste lingering around.  I could take all the antibiotcs in just two doses, leaving much more time for taking supplements etc.  That, and the fact that I didn't need to spend ages in the GP's waiting room, surrounded by sniffly toddlers, is why I benefitted from it!........................Sarah

Completed Stratton/Wheldon regime for aggressive secondary progressive MS in June 2007, after four years, three of which intermittent.   Still improving bit by bit and no relapses since finishing treatment.