Pulse #12 Culminated with an ER Visit

Submitted by jeanneroz on Sun, 2009-10-11 19:01

For my records here….. I started pulse #12 on Sunday, October 4th.  I have been tolerating my pulses (for the most part) decently.   The first 2 days the left side of my head felt clogged with cement.  My left ear, eye, lymph nodes, sinus were painful.  Right knee painful.   Total inability to concentrate... first 3 days I felt as if I were in "suspended animation" and all I really did was “zone out” and stay in the house.

Wednesday evening I took 1 glass of Potent C Guard for bowel tolerance..... 1 glass; 8 oz w/1 teaspoon of Potent C Guard powerder.  I usually try to do a bowel cleanse after a pulse.  Most times it takes 4-6  8 oz.glasses to initiate a  bowel evacuation.  I immediately started having severe colonic pain (peristaltic overload) and was on the bathroom floor calling for my husband.  I have never given birth, but this has to be what it feels like.

Without going into specific details of the rest of the night,  the following morning when I woke up I had rectal bleeding..... (A LOT - not just a few drops).  My husband was very concerned, but I did NOT want to go to the emergency room.  Called my gastro and they advised I should go to the hospital. I was admitted, given the usual gambot of IV fluids, blood work, etc.  Had a colonoscopy done (2nd one this year) on Friday.   I asked the doctor prior to being anethisized, if he could culture for chlamydia pneumoniae in my colon....... well, you can guess the reaction I got from him on that one.  My gastro also wants me to have a duplex visceral doppler ultra sound to rule out mesenteric ischemia. 

This hospital stay was not a pleasant one (staff, nurses, etc.) and I just wanted to get out of there... since the ultrasound could not be done until Monday I requested to be released for the weekend to have the ultrasound done next week.

I am home, weak and now suffering, I believe, the aftermath of my pulse (tachycardia,and probably some porphyria).  Waiting for the final results of the colonoscopy and the upcoming results of the ultrasound. 


I read Norman Yarvin’s mother’s account of her treatment of IBD with CAP….. it appears she had bleeding with her pulses which eventually subsided.

Another one to add to my list…..  at least I'm finding the CPN JeanneRoz

Jeanne, it seems you just can't catch a break!  I'm so sorry you're going through all this again.  I'm sure it was smart of you to get out of the hospital for the weekend.  A hospital is no place to recover, unfortunately. 

I hope your test results confirm what you are thinking and that there's nothing more dangerous happening.  That had to be a really alarming incident! 

As usual, your ability to continue on amazes me.  I know you had some good months, and I really hope the better times will be returning for you very soon!

Take care and be well,


ME/CFS since 1991. Cpn diagnosed 6/07. CAP started 7/07. NAC 2400mg per day, doxycycline 100mg 2x per day, azithromyicin 250mg M-W-F. 8/09 switched from Flagyl to Tindamax 500mg 2x per day for 5-day pulse.

Jeanne, Your determination is amazing. I'm sorry to hear about your hospital visit. Don't give up and remember there are many here praying for your recovery.

You can do it.....and your story is an encouragement to help someone else.


started Wheldon cap 4/21/08 for Cpn, CMV, EBV, CFS. Cap hold 4/09vascultis. Restart 9/09 with Dr.Powell, restore gut, 4000 D3, supplements,  Pos. Bartonella and Babesia, Rifampin 600 mgs and Biaxon 1 gram. 

I have a lot of Diarhea and a little bleeding from flagyl but nothing compared to your expreinece.

Fibro, CFS,  Myco, CPN, Stratton protocol, Zithro 500mg M/W/F/S, Doxy 100mg 2x day, NAC 1200mg 2x day, Flagyl and INH 2 week pulses 400 mg 3x day, Rifampin, 300mg 2x day,  Still cant shake it but improving.