Nancy that's amazing! I also think the acupuncture helped your nerves to be waken up. Your strange sensations you were writing about and you might have been scared of it a little must have been the first sighns of the nerves recovering. I think our nerves need some help to be waken up after those many years of not being functional. Now when it started it will continue. If I could I would also take some acupunctures but there is no one who does it in my region. But I have a hydromassage which also helps. From now on we should only recover and improve. I am always happy when some new unknown sensations which are completely different from the sensations I knew for so many years come. Nevermind how unpleasant at that time it is and sometimes I would cry and am a nervous person (not nice) but I know it will last for short not more than a day and then I am better. As Sarah writes the best is not to wait for an improvement and to be desperate if it doesn't come because as if the desperation threatens the improvement and it is afraid to come then. The best thing is to live every day and do any activity and the improvement is happy to come and surprise us.
MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi
Gosh, I bet that surprised you! The best improvements happen unexpectedly but you mustn’t try too hard to repeat the act, or you won’t be able to. Try not to think about it and eventually it will become second nature again: I know this from experience ......................Sarah
A Journey through Light and Shadow
Completed Stratton/Wheldon regime for aggressive secondary progressive MSi in June 2007, after four years, three of which intermittent. Still improving bit by bit and no relapses since finishing treatment.
3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.
ACUPUNCTURE!! I'm as sensitive to it as to the capi. 3 needles last Thursday and I still can't stop sleeping. I'm pretty sure I'm exercising in my sleep. BTW, acupuncture is only subbing for pulsing. I'm still with the rest of the CAP
PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe Lyme. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 - Now doing 100 doxyi; 125mg. azith; substituting acupuncture for pulsing.
5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.
M.S., Dxi 1/2006, CAPi 6/2010. Currently: 200 mg Doxyi, 1 g Amoxi, 250 mg Azithro (MWF), 1 g Tinii (5 d pulse), 2400 mg NACi, 3.5 mg LDNi, 10 g Vit D, 800 mg Vit E, 1 g Vit C, 400 mg ALA, 800 mg ALC, 1 g EPO, 30,000 mcg B-12
It's always surprising to me how they sneak up on the CAPi users, who so earned them and are patiently WAITING for even a small glimmer. When you think about the complexity of deliberately grasping a knife handle and using a sawing motion to cut, the accomplishment of same is HUGE! It reminds me of baby development when the child makes that enormous jump from stimulus/ response to deliberate response. It's an enormous accomplishment. And MSers manage to do it with substitute nerve pathways: AMAZING!
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Comments
Nancy that's amazing! I also
Nancy that's amazing! I also think the acupuncture helped your nerves to be waken up. Your strange sensations you were writing about and you might have been scared of it a little must have been the first sighns of the nerves recovering. I think our nerves need some help to be waken up after those many years of not being functional. Now when it started it will continue. If I could I would also take some acupunctures but there is no one who does it in my region. But I have a hydromassage which also helps. From now on we should only recover and improve. I am always happy when some new unknown sensations which are completely different from the sensations I knew for so many years come. Nevermind how unpleasant at that time it is and sometimes I would cry and am a nervous person (not nice) but I know it will last for short not more than a day and then I am better. As Sarah writes the best is not to wait for an improvement and to be desperate if it doesn't come because as if the desperation threatens the improvement and it is afraid to come then. The best thing is to live every day and do any activity and the improvement is happy to come and surprise us.
MSi for more than 30 years, WP since July 08, break Jan 09-March 09. NACi 2x600mg, Doxyi 2x100mg, Roxi 2x150mg, Entizol in pulzes, LDNi, supplementsi
Good news! A very loud
Good news! A very loud whisper of improvement! Louise
Gosh, I bet that surprised you!
Gosh, I bet that surprised you! The best improvements happen unexpectedly but you mustn’t try too hard to repeat the act, or you won’t be able to. Try not to think about it and eventually it will become second nature again: I know this from experience ......................Sarah
A Journey through Light and Shadow
NancyCongratulations! What
Nancy
Congratulations! What is cauing this?
Rica
3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan In for the duration.
ACUPUNCTURE!! I'm as
ACUPUNCTURE!! I'm as sensitive to it as to the capi. 3 needles last Thursday and I still can't stop sleeping. I'm pretty sure I'm exercising in my sleep. BTW, acupuncture is only subbing for pulsing. I'm still with the rest of the CAP
PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe Lyme. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 - Now doing 100 doxyi; 125mg. azith; substituting acupuncture for pulsing.
Awesome!!!!!!!!!
Keep it coming....
5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.
Excellent Nancy!!!!
Excellent Nancy!!!!
M.S., Dxi 1/2006, CAPi 6/2010. Currently: 200 mg Doxyi, 1 g Amoxi, 250 mg Azithro (MWF), 1 g Tinii (5 d pulse), 2400 mg NACi, 3.5 mg LDNi, 10 g Vit D, 800 mg Vit E, 1 g Vit C, 400 mg ALA, 800 mg ALC, 1 g EPO, 30,000 mcg B-12
improvements
It's always surprising to me how they sneak up on the CAPi users, who so earned them and are patiently WAITING for even a small glimmer. When you think about the complexity of deliberately grasping a knife handle and using a sawing motion to cut, the accomplishment of same is HUGE! It reminds me of baby development when the child makes that enormous jump from stimulus/ response to deliberate response. It's an enormous accomplishment. And MSers manage to do it with substitute nerve pathways: AMAZING!
Arttile: CONGRATULATIONS!
Betsy
Thanks MSmom. Óow do you know
Thanks MSmom. Óow do you know that they are substitute pathways? Perhaps our bodies are repairing some of the damage.
PPMSi-misdiagnosed 2001-diagnosed 2006. Also maybe Lyme. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAPi 3/2/07 - Now doing 100 doxyi; 125mg. azith; substituting acupuncture for pulsing.
We're all rejoicing for you,
We're all rejoicing for you, Nancy! It's great how these glimmer of hope come when we're not looking for them.
Neuroi symptoms & many health problems from 1989. NACi+all supps(04/11) doxyi(05/11) roxi(06/11) tinii pulses(12/11-03/12, 10/12-01/13), amoxi(02/13)