Problems with Doxy now after Flagyl pulse?

Hi,

I am a 50 yr old male CFSi since 2000. I have had horrible headaches, head buzzing and weakness every time I take Doxyi since after my first Flagyl pulse(5 days) -it has been 12 days since the pulse ended. I feel the best right before I have to take my next Doxy. Also I have been getting weaker every week since I started antibiotic treatment almost 9 weeks ago.Before I started I could ride an exercise bike 15 minutes 2x a day, now I am housebound and only can shop and barely sustain myself. I am concerned about my regression and Doxy symptoms.

I have had improvement in secondary symptoms - eyesight, smell, concentration, tmj and back pain.

Started Doxy 100mg 2x day 3-24-17

Started Azith 250mg one M,W & F 4-24-17

First Metroi pulse 400mg 3x daily - 5 days 5-20-17

All major Wheldon supplementsi + 2 raw garlic cloves a day, chlorella, charcoal

Katman experienced something similar.  Perhaps we can get her to comment (when she isn't too busy in the barn).

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Never too busy for our site!  Well, maybe during kidding time.  

As I remember, I put these things into my blog.  This is precisely why - because someone else may run into the same things.  If you can't find it, tell us and  I will look.  But, yes, I remember being barely able to function.  It all took a long, long hard time, but it worked and was so, so woth ir.

Rica 

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

http://cpnhelp.org/?q=ricas_story_0<

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

It seems I have secondary porphyriai and a combination of die off from going to fast - for how long I have been sick. I can not continue CAPi in this condition

Would it be better to temporarily discontinue or taper down to the minimum therapuetic dose of doxyi - 100mg a day? I am concerned about resistance because I have been treat with doxy at least 2 previous times for a few weeks each in the past.

TomF - 50 yrs old

diagnosed CFSi Jan.2000

CN IGA 1:32 IGGi 1:128 feb 2017

doxyi<

I'd back off to minimum doses and load up on antioxidantsi, water and charcoal or chlorella.  You're still going to have to purge the crud from your system, whether you're on abxi or not.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hi tg,

like the others have said you will need to slow things down a bit. Keep up all the wheldon supplementsi but space out your pulses, back off on the abxi dose without allowing the bugs to become resistant. If you are really struggling stopping 1 abxi completely for a while could be necessary. some people dont tolerate the abx very well. But whichever way please knuckle down for the marathon & forget about the sprint!

Good luck,

I had to stop a few days ago all abxi a few days ago. Horrible weakness, shortness of breath, nausea, burning skin/muscles and trembling head and muscles. The treatment definatley irritated my central nervous system and worstened those related symptoms.

I need to get my health to the point I was before the treatment before I start again. I will continue the NACi and supplementsi. Thanks to all who have responded, your posts/opinions are greatly appreciated.

Tom F

TomF - 50 yrs old

diagnosed CFSi Jan.2000

CN IGA 1:32 IGGi 1:128 feb 2017

doxyi<

I am still in rough shape, I went to the ER 6-18 because of double vision and confusion and was told  the symptoms are neurological. I just had a PGB spot test for porphyriai and it was within range. My doctor thinks I might have Lyme because the CNSi symptoms, I doubt it as I have been tested for Lyme so many times in the past.

I am confused by the increase of symptoms since the Flagyli pulse was done 5-24 and all treatment was stopped 6-13(3 months total). 

TomF - 50 yrs old

diagnosed CFSi Jan.2000

CN IGA 1:32 IGGi 1:128 feb 2017

doxyi<

I just wrote a long comment and a bug took it!  Grrrr.  

What I can remember I will rewrite.

When I was doing all five abxi - including flagyli -  I think I never stopped for anything.  It was incredibly difficult but ir has paid off in spades and then some.

More later on the subject I am now opening and doing- physical therapy.  Incredible!  Really hard like all the things we do here, but WOW!

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

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