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Summer is flying by
By wiggy
Created 08/06/2008 - 9:49am

I want to update my blog while I can. My vacation was great and I was able to keep covered up and enjoy the beach. I am leaving again this weekend - so counting pills and doing laundry. I am still taking 400 mgs doxyi [1] + diflucan. I am keeping a journal as I am up and down but managing to get out. For Barbara: My spasticity is much improved and I am giving credit to the meds. I am on the stationary bike - keep in mind a very slow speed, can't get bike to light up also had to use hands to pull up legs to keep going. Just this week I was able to bike with no hands. I starting screaming to husband and daughter "look, no hands"!!!!! I also was pedaling hard enough to get lights flickering - I'll take it. My mobility is still a problem due to heat, poor energy (even thou I take a lot of supplementsi [2]), I am tired. I take my cooling vest out with me as its too hot. Toenail fungus - about 95% gone, I have changed my diet to cut sugars and white carbs to combat yeast problem. I am still eating fruit but not as much. Mainly protein and vegies. I am not even taking glucose. I am taking lots of probotics, B-12 injections, water, epson salts and benadryl is on hand. My new doctor told me to try molybdenum for die off (started yesterday) I did have a herx just before last vacation - legs in mud, not moving well and this lasted 1 1/2 weeks. I am anemic (? Spell) again - taking iron again. I am all bruised up due to b12 injections. Dr. ordered thyroid bloodwork. Now, how long will the spasticity stay at bay? That is the question. Barbara asked why am I not recovering like Sarah and Rica, My answer - I am, just not as quick. I think 1. I have a few co-infectionsi [3] + cpni [4] 2. I was in worse shape for a longer period of time 3. Probably other reasons I can't think of right now Thats all for now

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On Wheldon protocol for MSi [5]i [5] since April, 2006.  doxyi [1] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [6]i [6] Pulses start end Sept., LDNi [7]i [7] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Wiggy,  Sounds like you're

Submitted by cypriane on Wed, 2008-08-06 09:56.
Wiggy,  Sounds like you're making some progress.  Have fun on this next trip.  Are you feeling any more inclined to take the IV plunge?

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [8]).  CAPi [9] since August 06, Cpni [4], Mpn, B. burgdorferi, systemic candidiasis, EBVi [10], CMV & other herpes family viral infectionsi [3], elevated heavy metals, gluten+casein sensitivity. 

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Hi Joyce, The IV plunge [11]

Submitted by wiggy on Wed, 2008-08-06 10:04.
Hi Joyce, The IV plunge scares me at this point but I would consider those IM injections - need to do some research.

___________________________________________________________
On Wheldon protocol for MSi [5] since April, 2006.  doxyi [1] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [6] Pulses start end Sept., LDNi [7] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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wiggy,  I'm a dimwit in

Submitted by cypriane on Wed, 2008-08-06 10:09.
wiggy,  I'm a dimwit in the a.m....nothing's coming to mind.  What do you mean by "IM injections?"

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [8]).  CAPi [9] since August 06, Cpni [4], Mpn, B. burgdorferi, systemic candidiasis, EBVi [10], CMV & other herpes family viral infectionsi [3], elevated heavy metals, gluten+casein sensitivity. 

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Joyce, I think there is a [12]

Submitted by wiggy on Wed, 2008-08-06 10:34.
Joyce, I think there is a IM Bicillin that I have heard of - I think Daisy talked about this option. Its a shot instead of IV but need to do a lot of research :)

___________________________________________________________
On Wheldon protocol for MSi [5] since April, 2006.  doxyi [1] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [6] Pulses start end Sept., LDNi [7] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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Hi WiggySo glad you are

Submitted by loriyas on Wed, 2008-08-06 13:20.

Hi Wiggy

So glad you are doing well.  As they say, slow and steady wins the race!

Lori 

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Started Vanderbilt protocoli [13] 1/9/08  Rifampin twice a day, azithromycin MWF, Tindamax for 7 days out of a month at 250 mg three times a day,  b12 injection monthly NACi [14] daily, DHA, calcium pyruvate, prilosec, low dose naltrexone 4.5 mg

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Hi Lori, Thanks - soccer [15]

Submitted by wiggy on Wed, 2008-08-06 13:52.
Hi Lori, Thanks - soccer has already stated here. We had a camp last week and practice Mon and Wed. Is your daughter playing?

___________________________________________________________
On Wheldon protocol for MSi [5] since April, 2006.  doxyi [1] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [6] Pulses start end Sept., LDNi [7] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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Still not on a team yet.

Submitted by loriyas on Wed, 2008-08-06 14:08.

Still not on a team yet.  She is trying out for a U 18 team in a town about 45 minutes from here tonight.  She will not be playing for the organization she has played for the past 3 years.  

Lori 

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Started Vanderbilt protocoli [13] 1/9/08  Rifampin twice a day, azithromycin MWF, Tindamax for 7 days out of a month at 250 mg three times a day,  b12 injection monthly NACi [14] daily, DHA, calcium pyruvate, prilosec, low dose naltrexone 4.5 mg

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good job wiggy's, Slow &

Submitted by ruthless1 on Thu, 2008-08-07 12:45.

good job wiggy's, Slow & steady wins the race.

Joyce, you probably figured this out, but just in case you are still enveloped in fog...IM I think is intra muscular instead of IV.

Keep up the good work.

peace

r

 

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CFIDSi [16]/ME 32 yrs, FMSi [17], IBSi [18], EBVi [10], CMV, Cpni [4], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

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Ruth, Thanks for this DUH

Submitted by cypriane on Thu, 2008-08-07 13:15.
Ruth, Thanks for this DUH moment. Okay, IM as opposed to sub-Q, gotcha. Yes, something else I've known before that got lost somehow. My last thought on the subject was "ivermectin?".

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [8]).  CAPi [9] since August 06, Cpni [4], Mpn, B. burgdorferi, systemic candidiasis, EBVi [10], CMV & other herpes family viral infectionsi [3], elevated heavy metals, gluten+casein sensitivity. 

»

Wiggy, good to know that

Submitted by Michele on Thu, 2008-08-07 13:47.

Wiggy, good to know that the holidays went well and that you are even up to doing it all over again.   Great to get that bike flickering, it will be a steady light shortly.

And you are winning the fungus war too..... 

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Michèle (UK) GFAi [19]: Wheldon CAPi [9] 1st May 2006. Daily Doxyi [1], Azi MWF, metroi [6] pulse. Zoo keeper for Ella, RRMSi [20], At worse EDSSi [21] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Thanks Ruth

Submitted by wiggy on Thu, 2008-08-07 15:40.
Thanks Ruth

___________________________________________________________
On Wheldon protocol for MSi [5] since April, 2006.  doxyi [1] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [6] Pulses start end Sept., LDNi [7] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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Michele, Yes, We are going [22]

Submitted by wiggy on Thu, 2008-08-07 15:44.
Michele, Yes, We are going up north again. I am packing here - it takes a few days to get it all together. I am thrilled that I am getting rid of that foot fungus!

___________________________________________________________
On Wheldon protocol for MSi [5] since April, 2006.  doxyi [1] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [6] Pulses start end Sept., LDNi [7] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

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