I feel for you Barbara because I too have been desperately waiting for mobility improvements and it's only now following my 12th pulse that I got a glimmer of them...didn't last of course. I only noticed that my left foot wasn't flapping recently but today - because I wasn't watching myself carefully I suppose, it returned and I almost tripped going up the stairs. But then I was getting tired after a day of unaccustomed energy!

I have had some awful inflammationi [2] in old affected areas too but I haven't done anything different and just rode it out I'm afraid. Maybe upping the C, magnesium and turmeric has helped to shorten the inflammation, I don't know but it has calmed down in those sites.

Now I think of it 12 pulses is not quite right, quite a few of the early ones were not full length, full dose so it's really less than 12 in number. So all we can really do is keep at it, keep the faith and not beat ourselves up about schedules because we are all different. 

Carol

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Progressive MSi [3] dx2006. LDNi [9] & CAPi [10]: Wheldon version. All supps. Doxyi [11] 200mg. Zithi [12] 250mg. Metroi [8] 400mg.Pulses #10/16...I can because I think I can.

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NACi [5] and glutathione push for years all supplementsi [6] in protocol)IV vitaminsi [7] b1-12,F10/29/07 roxy300,doxy200,rifampin300aziyh mwfMS flagyli [8] 1day 500x2 11/23/20074th pulse 2.8.081500mg 8days 7/08 finished 10th pulse on 300 rifamp bid, doxybid 7/2008

What do the Doctors say?  I mean it cannot be "wait", 'cause you all have waited! Are your Doctors looking for something else?

I think your question is very valid as for what others are more mobile;  you too need to be mobile and happy!

See if cold or hot helps you - the hot bathtub with Epson Salts maybe? What about other non steroidal medicines to help?

I am going to tell this story in the forums so everyone can read it, -hope it helps many!- and it is about this wonderful woman called Ellena who told me she eats everyday a piece of "Sabila" which is "aloe" and she says this made a huge difference in her life.  She was diagnosed with Deformative arthritis and lot of other things, and she had a pair of twins which she thought she was not going to be able to take care; but when she came to the US her sister even laughed at her when she saw how many medicines she was taking and told her that the only thing she will need for the rest of her life was just a piece of the crystal - inside- of the aloe plant.  Well I have witnessed her mobility - she is 62 years and walks like a very young person - she is now playing and taking care of her granddaughter.  She says she is a living miracle.  Many say that eating the piece of the plant doesn't taste very good, but she eats it with love and happiness.  The amount she eats a day is not bigger than my pinky.  A Doctor saw her recently and said that effectively she has "the illness but not the symptoms", can you believe it? 

I bought the Aloe pills, and two days later I showed my hands to my daughter - they were very good, just a little swelling in the right one; but I didn't think it was the Aloe, I just forgot about it and even stopped taking it.  Well yesterday when I was swollen I remembered the Aloe and took two pills and today I took one more and I feel some change.  I read it is used as a natural help for the swelling even putting it on top of the skin when sunburns and other types of burns or bites.  So, I think it might be very good to try especially when you have not had results from the other medications.

You are trying to make it and that's the best you can do!!!  You will make it!!! Hope very soon!!!!!  You'll have to report about us about your walks in the beach!!

God bless you

Maria. 

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God bless you all.

MariaPatri - living in a rollercoaster! (In Orlando, Fl).

Thyroiditis, sinus infection, heart, muscles and joints. 

It's a long and frustrating process. At the moment I'm actually feeling worse than I did before on some days. An old back injury has flared up since I started pulsing and it just won't go away but I keep throwing the pills down and hoping for the best. Something is obviously happening.

Through all of this I count my blessings reading what some of you are going through. I also compare what I have to a good friend of mine who died on Sunday from cancer which just suddenly flared up and took a lovely lovely man from us. What he went through over the last few months makes my problems pale into insignificance.

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Berkshire, UK. Diagnosed RRMSi [13] Feb 4th 2008.

NACi [5] 2400mg. All supps. Doxyi [11] 200mg. Zithi [12] 250mg. Metroi [8] 400mg.
No GP/Neuroi [14] support. Self medicating with help from David Wheldoni [15].
Started CAPi [10] 20th April 2008. First pulse June 2008

I would like to chime in on the aloe vera topic.  Two interesting experiences.  My male cat developed gingivitis/stomatitis of the mouth which is an autoimmune condition.  His mouth was so painful he couldn't eat.  My vet is trying an experiemental treatment which is injections of Acemanen from the aloe plant.  I don't know if it is a cure but it makes my cat feel great and he is back to eating and has put on weight.  It seems like a better approach than steriods. 

The other story is a woman who told me that she had been suffering from psoriasis for many years.  A friend suggested that she drink 2 oz a day of whole plant aloe vera juice.  She said that she has been drinking aloe vera juice for six months and the psoriasis is almost gone.

It seems apparent the aloe vera has anti-inflammatory properties.

Tina

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 Tina-MSi [3] 37 years;EDSSi [16] 4.5   1/1/08 Wheldon CAPi [10]; Azith 250mg 3 x a week; Doxyi [11] 200mg daily, NACi [5] 2000 mg daily, started Flagyli [8] pulse 4/14/08.

There have been reports on the LDNi [9] forums about an increase in spasticity by some and they have stopped using it. I have to say that I didn't notice that effect but it's an interesting thought about aloe vera and inflammationi [2], I may give that a try soon.

Happy that the cat is improving on it Tina.

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Progressive MSi [3] dx2006. LDNi [9] & CAPi [10]: Wheldon version. All supps. Doxyi [11] 200mg. Zithi [12] 250mg. Metroi [8] 400mg.Pulses #10/16...I can because I think I can.

I would relish the opportunity of hearing more about the aloe vera that people here are using- Tina and Mariapatri for sure.The aloe vera digest from your experiences and knowledge would and could deserve the forum -blog for sure.

Hope to hear back soon.

Loulou

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diagnosed MSi [3] Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi [11] 100 mg. 1BID. roxyi [17].150 mg.? BID,adding rifampin soon, pulsed tinii [18]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to