Those who "know" me know that I have Potbelly Syndrome issues and other issues that are equally pedestrian. The only difference between me and billions of other middle-aged women with pudgy midsections is that I discovered that my common maladies are linked to chronic Cpni [1] and other chronic infectionsi [2], because I found this site while investigating meaningful treatment for my husband who has MSi [3].
Finally! a change for the better! I finished a one-week Flagyli [4] pulse last weekend. It was # 9 or 10 (I've lost count). About the middle of this past week I began to feel the return of energy...energy like I haven't felt for a long time. I had begun to think I was just getting old prematurely, and nothing could be done. Would I too die in my early 60's of heart diseasei [5] like my father? An insignificant sign of improvement was once when I yawned, and saliva actually squirted out of my mouth. Bye bye dry mouth. It could be wishful thinking, but I think the "permanently" swollen parotid glands under my jaws are shrinking. One good thing that's been going on for awhile is that my blood pressure is down and very easily controlled by just 5mg amlodipine. Also, my eyes are wetter and wetter all the time. I would love to see if my LDL cholesteroli [6], triglycerides, blood sugar, and calcium levels have gone down, but I don't have any tests scheduled.
Arthritis---now there's an interesting subject. My old sites are generally better. The arthritis in my left wrist and right thumb that started suddenly this early Spring gives me fits off and on, though those spots have also improved somewhat in the past several days. I'm distrustful, though, because I experienced an improvement there after the previous Flagyl pulse that didn't last. I have some gallium nitrate horse "liniment" to experiment with if the improvements don't last.
The return of energy has contributed to a change in my psyche that has been developing for awhile. As I already said in another thread, I'm becoming much more relaxed, much less manic about all this. Steve just passed his 2-year mark on the CAPi [7], and there's no doubt in my mind that he is so very much better off than he would have been without it. And now, it looks like I'll be better off too.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [8]i [8]). CAPi [7] since August 06, Cpni [1], Mpn, B. burgdorferi, systemic candidiasis, EBVi [9]i [9], CMV & other herpes family viral infectionsi [2], elevated heavy metals, gluten+casein sensitivity.
Links:
[1] http://cpnhelp.org/glossary/term/167
[2] http://cpnhelp.org/taxonomy/term/58
[3] http://cpnhelp.org/taxonomy/term/6
[4] http://cpnhelp.org/taxonomy/term/44
[5] http://cpnhelp.org/taxonomy/term/29
[6] http://cpnhelp.org/taxonomy/term/59
[7] http://cpnhelp.org/glossary/term/168
[8] http://cpnhelp.org/glossary/term/183
[9] http://cpnhelp.org/glossary/term/120
[10] http://cpnhelp.org/glossary/term/162
[11] http://cpnhelp.org/taxonomy/term/39
[12] http://cpnhelp.org/glossary/term/184
[13] http://cpnhelp.org/glossary/term/171
[14] http://cpnhelp.org/glossary/term/170
[15] http://cpnhelp.org/taxonomy/term/53
[16] http://cpnhelp.org/glossary/term/163
[17] http://cpnhelp.org/taxonomy/term/24
[18] http://cpnhelp.org/chlamydia_pneumoniae/an_0
[19] http://cpnhelp.org/taxonomy/term/19
[20] http://cpnhelp.org/chlamydia_pneumoniae/supp
[21] http://cpnhelp.org/taxonomy/term/35
[22] http://cpnhelp.org/glossary/term/175
[23] http://cpnhelp.org/taxonomy/term/26
[24] http://cpnhelp.org/taxonomy/term/64
Yipee! I know that it
Yipee! I know that it has been difficult for you to wait the time it has taken for you to see improvements but you are at last rewarded. I was lucky that I had a visual marker to see my progress with because otherwise it may well have been hard for me too to wait the time it took to see some improvements. They come and go at times, which is very frustrating but when you look back on the whole of the journey you can see that the base line has shifted upwards towards the healthy goal we are aiming for.
Long may it continue. By a strange coincidence my doctor has just taken me off bendroflumethiazide because of some problem with my potassium levels and put me onto 5mg of amlodipine to control the blood pressure... I'm hoping this will do the trick for me too.
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Michèle (UK) GFAi [10]: Wheldon CAPi [7] 1st May 2006. Daily Doxyi [11], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [12], At worse EDSSi [13] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006
Hooray! I am so glad you
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On Wheldon protocol for MSi [3] since April, 2006. doxyi [11] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [4] Pulses start end Sept., LDNi [14] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma
Joyce, What can I say?!
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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi
Thanks girlfriends. I may
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [8]). CAPi [7] since August 06, Cpni [1], Mpn, B. burgdorferi, systemic candidiasis, EBVi [9], CMV & other herpes family viral infectionsi [2], elevated heavy metals, gluten+casein sensitivity.
Joyce, nearing my fifth
Joyce, nearing my fifth anniversary I would like to congratulate you both on what you have done to help Steve and to what you now seem to be doing to help yourself. This has really made my day...........Sarah
An Itinerary in Light and Shadow
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Joyce - Funny but I was
Joyce -
Funny but I was just wondering how you were doing on your CAPi [7] !
This is good news! Especially the energy and especially so in this heat!
Congrats!!!!!!!!!!!!!!
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Daisy - Husband on CAPi [7] 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill
Joyce,This is such
Joyce,
This is such wonderful news! I am so happy for you. Congrats to both of you! I needed inspiring today and this is the best kind! :)
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Wheldon Protocol for rrmsi [12] since Oct '05. Added LDN 4.5mg qhs Oct '07. All supp's. Positive IGGi [15]'s for Lyme Disease,Babesia, & Erlichiosis Sept. 2008. Currently: Mepron 750mg bid and Azithromycin 250mg qd for Babesia.
Likewise, Joyce. You've
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CAPi [7] for Cpni [1] 11/04. Dx: 25yrs CFSi [16] & FMSi [17]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [18] 1000mg/day pulses; Vit D2000 units, T4 & T3
Joyce, Sometimes
Joyce,
Sometimes I feel very discouraged. Your blog post gave hope today. Thank you for sharing your story with us. Congratulations on your improved health.
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FMSi [17]/CFSi [16] 12 yrs., IBSi [19], Hypothryoid, EBVi [9], CMV, Sleep Apnea, Cardiac Arrythemia, Sjorgens, Depression, Brain Fog, Cpni [1], On CAPi [7] since 10-1-07, Currently on NACi [20] & Delta Fr. E
Valtrex,Lysine, andGuna VirusWow! If my little blog has
Wow! If my little blog has made only a few of you a little inspired, I'll have to commit to blogging more like I used to do. Anyway, I'm glad to have splashed some refreshment on this interminable, broiling Summer.
Daisy, on your "janitorial" thread, you referred to my bombardment of Steve's biofilm with proteolytic enzymes as an experiment. Funny...I hadn't thought of it in those terms, but I guess you're right. It's especially funny that you should refer to it that way. I got started on my own, but since very shortly after, I've been following your lead. I must admit, though, that sometimes I wonder at what level those enzymes might start digesting Steve.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [8]). CAPi [7] since August 06, Cpni [1], Mpn, B. burgdorferi, systemic candidiasis, EBVi [9], CMV & other herpes family viral infectionsi [2], elevated heavy metals, gluten+casein sensitivity.
Joyce, Is bromalain part of
Joyce, Is bromalain part of your enzyme regemen?
I found it very effective the one time I took it last fall before starting Tinidiazole. And since it was uncharted territory for me and I had no map I make it a one time only event.
I had some superficial knowledge that some herbalists were using it with Bb herbal protocolsi [21] but felt a bit insecure with my understanding.
I would like to hear more about what you are doing regarding the proteolytic enzymes specifics if you are able to clarify them as you are using them.
Thanks, Louise
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Louise CFSi [16], CPN+/Bb+,Wheldon CAPi [7] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [22] & Endotoxinsi [23] PRN, Doxyi [11] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support
Louise, Steve gets some
Louise, Steve gets some bromelain with his quercetin once a day, and the broad-spectrum digestive enzyme formula has some bromelain in it, but it's not an enzyme I have singled-out to help Steve.
There's nothing too scientific about my proteolytic enzyme campaign. It's just one of those things that has grown out of researching biofilm and immunei [24] complexes, and from asking questions of others with similar interests/needs. I follow the instructions on the bottles. I'm keeping my eyes open to any signs that it might be time to back off. So far it beats the hell out of Warfarin. You are probably aware of the "enzymestuff" website. Some of my reading was done there.
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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [8]). CAPi [7] since August 06, Cpni [1], Mpn, B. burgdorferi, systemic candidiasis, EBVi [9], CMV & other herpes family viral infectionsi [2], elevated heavy metals, gluten+casein sensitivity.