I would like to introduce myself, as I have been reading on this site for awhile now, and am considering doing the CAPi [1].

I have been on the Marshall Protocol (MPi [2]) for about two years, in a sort of half-baked fashion, in that I have been on Benicar only for about half that time, and only did the low dose abxi [3] for 13 months (minoi [4] + clindamycin, no Zithi [5]).  I am VERY CONFUSED about the Vitamin Di [6] issue, as anyone familiar with the MP will know that we are conditioned to think of D as BAD.  My Vitamin D3 level is <4, and has been for almost two years.  I am slowly attempting to bring Vit D back into my life, via slightly more sun exposure, however this tends to aggravate sxi [7] for me, so it is very limited.

The main illnesses which limit and disable my life are Multiple Chemical Sensitivity (MCS) and Uveitis, though I do have CFSi [8] and secondary porphyriai [9], which makes me a slave to the carbs (with associated 50 lb weight gain over the past 14 years I have been sick with it all).  I also have a pretty bad peripheral neuropathy going on, made worse by eating wheat and toxic exposures.  I have had uveitis in my left eye for 5.5 years now, had four major flare-ups of it, each worse than the last, and requiring steroid injections to quell the inflammationi [10], and eventually, surgery on the eye last November.  I have been unsuccessful in getting off daily steroid eye drops and still take 2/day in the eye to keep inflammation down.   (I use Lotemax, slightly less potent than Pred Forte.)

I am still taking high-dose Benicar from the MP, as it has been great in keeping my eye inflammation under check, but probably should get off this before starting the CAP?  It has totally brought my chronic high blood pressurei [11] down into the normal range, so I’m reluctant to give it up completely for that reason alone.  Would taking a normal dose of 40mg/day be permissible on the CAP?  It won’t “potentiate” the abxi [12], as Trevor Marshall states?  (perhaps that’s only at the high doses?)   But it does such a good job of keeping my eye inflammation away that I’m reluctant to even wean right now.

My life is kind of a balancing act with trying to keep my eye under control and not inflamed.  Full uveitis flare-ups are very scary and have the potential to destroy your eyesight in a matter of days, so it is imperative to keep them away.  It is two years since the last and worst one, during which time I have worked the MP the best I could, so I am well into the time where another flare-up could happen.  So I tread pins and needles with this uveitis, hoping to keep it at bay and eventually cure it with either of these protocolsi [13].  I am basically stopping the MP now because of this “runaway herx” (overactivated immunei [14] response) people tend to get on it after awhile, I cannot risk that happening with my eye.  So CAP, here I am!

I am convinced there is a bacterial connection with what is happening to my eye, as I had a mycoplasma diagnosis a few years ago and my regular GP prescribed a 5-day course of Zithromax, and on two of those days my eye cleared up so beautifully and didn’t even need it’s steroids (the other three days I was having severe neuro-herx and could barely tell you my name!).  But on the two good days I had more energy than I knew what to do with, and my eye looked and felt normal, so I’m sure there is something going on in my system with bacteria.

I am now taking most of the supplementsi [15] recommended here, except NAC, ALA and Vitamins D and A.  Should I implement them all before starting any abx?  Because my D-levels are so low, I was thinking to get them up very slowly using foods which have D, rather than supplementsi [16], since even eating salmon or eggs has a tendency to make my eye red and bothered from the high D levels they contain.  I’m not sure why this is.  I am still very confused about the Vitamin D issue, because my experience has been that my eye feels better with less D in my system, even though all the literature says the opposite.  When I had my last and worst flare, I had been taking D supplements and it was mid-summer and I was getting more sun on my skin.  So I am extremely reluctant to do that again.  I would like to do the CAP sans any D supplements, if possible.

Have been trying to read as much as I can in the handbook section so as not to ask too many dumb questions, but I’m sure many will still pop up, so have patience with me . . .

Also, I am still searching for a doctor in the Seattle area to prescribe the protocol abx for me, as neither of my two GPs are comfortable doing so.  Any suggestions would be appreciated.

Hope this isn’t too long.  I would welcome comments from any other uveitis sufferers who have had healing from CAP, or anyone else who has been on the MP.

Thanks,
Joy

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MCS, CFSi [8], FM, RAi [17], Uveitis, MGUS, peripheral neuropathy, High BP, low thyroid, mycoplasma. Still on 80mg Benicar (leftover from Marshall Protocol). Most supplementsi [15], NACi [18]/1800.