Ah, what you are 'hearing' is what Rica calls 'whispers'. (If these new improvements fall away for a time, don't despair; they will be back, more and more frequently, until they stay.) In the meanwhile, I am SO happy for you. Light at the end of a long tunnel!! And you've been such a trouper about it, hanging in despite the lack of forward progress. As we say, it comes when you stop looking for it...

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

robert d. This is the best news I have heard in such a long time. It renews my hope and I am sure does so for many others who are suffering.Hanging in is oh so difficult. We are all so different and we all possess our own unique set of experiences and life circumstances.

YOU ARE WINNING!!!!!!!!!!!!!!!!!!!!!!!!!!! I am so happy for you!!!

Keep us posted with more good news, always!!!!

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diagnosed MSi [5] Jan.2000 ,  chronic neurological lyme disease Nov.2002.

doxyi [3] 100 mg. 1BID. roxyi [8].150 mg.? BID,adding rifampin soon, pulsed tinii [9]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to

Robert D. - this is wonderful news! I remember that slapping sound; I can't wait to go back to it after the slush drag of the Mummy walk. And running up stairs -- wow! Just fabulous. Congratulations!

Nancy 

 

 

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PPMSi [10]-misdiagnosed 2001-diagnosed 2006. Also maybe csf and Lyme -- who knows?! Minocycline 7 mos.- resulting bronchitis 5 months. Deserted by Hopkins neurology dept. and going to private md. out-of-plan. Wheldon CAPi [2] 3/2/07 - 200 doxyi [3]; azith MWF. 5 pulses.

Robert, great news and of course we have all experienced the vagaries of different pulses, but you are right I certainly see a cyclic patters which is unique to me.   There is also the problem of different loads of Cpni [11] and sometimes also the areas of the body which are worst affected.

For example, I am sure that my daughter's load of Cpn is not as great as mine, but what she does have is in such a sensitive area of her brain that it affects her in many way and to a far worse extent than my heavier load does me.

When we pulse I get nauseous, fuzzy headed, tired, achey in joints, face and gut, have very dark urine and suffer from the awful taste to a serious amount, whereas she gets little taste problems, no pain but serious balance, ambulatory and fatigue problems as well as nausea and loss of appetite.  

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Michèle (UK) GFAi [12]: Wheldon CAPi [2] 1st May 2006. Daily Doxyi [3], Azi MWF, metroi [4] pulse. Zoo keeper for Ella, RRMSi [13], At worse EDSSi [14] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Robert - This is how improvements came for my husband.  Suddenly something that wasn't there was - in a good way.  Congratulations on a move in a positive direction!

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Daisy - Husband on CAPi [2] 5/07.  "When Going Thru Hell, Just Keep Going", Winston Churchill

Robert, Congratulations! Great to hear - keep it coming!

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On Wheldon protocol for MSi [5] since April, 2006.  doxyi [3] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [4] Pulses start end Sept., LDNi [16] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

hey robert,

congrats on your recent window!  You are killing the beast...Keep on going!

That drop foot may turn into you tapping your foot in your happy dance & not because of RLS or MSi [5]!

Thanks for the update.

 

r

 

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CFIDSi [17]/ME 32 yrs, FMSi [18], IBSi [19], EBVi [20], CMV, Cpni [11], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

Hi Robert,

Your great news is an inspiration for those of us who are waiting for our first sign of progress.  Thanks for sharing.

Brian

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ExRacer - MS dx 2002.  EDSSi [14]: 6.0.  NAC, Doxyi [3], Azi MWF, Recommended supplementsi [21].  Completed Flagyli [4] pulse 11 on 10/31/08.

Hi Robert,  Congratulations!  You have reminded me that others have reported similar breakthroughs around pulse # 9, and it just happened for me too.

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [22]).  CAPi [2] since August 06, Cpni [11], Mpn, B. burgdorferi, systemic candidiasis, EBVi [20], CMV & other herpes family viral infectionsi [23], elevated heavy metals, gluten+casein sensitivity. 

Robert, wonderful for you and encouraging for others, including me.  You posted on my blog regarding my third pulse.  I was worried that I was not responding to CAPi [2] but experiencing MSi [5] regression instead.  Thank you for your reply; I was so pleased to get your reply.  Bye for now.      

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Mary Ann

SPMSi [22]. Dx 1991. EDSSi [14] 6.5.  Weldon CAPi [2]; 3/08  NAC 2400, Doxy & Azith. 7th metroi [4] pulse 12/08