Creepy Crawlies

OK, we're now well into this and the pill taking is becoming very tiresome. I have to admit to lapsing with some of the less important supplementsi [1], mainly because I just couldn't face taking another pill which is maybe why I'm currently driven mad with what feels like ants running around under the skin of my left leg.

I have to keep checking to make sure nothing is running around on the outside of my leg, and there isn't, or, if there is then I have eye problems instead.

NACi [3] 2400mg. All supps. Doxyi [4]i [4] 200mg. Zithi [5]i [5] 250mg. Metroi [6]i [6] 400mg.
No GP/Neuroi [7]i [7] support. Self medicating with help from David Wheldoni [8]i [8].
Started CAPi [9]i [9] 20th April 2008. First pulse June 2008

Hm, Andesine, normal, odd,

Submitted by Louise on Tue, 2008-07-22 07:22.

Hm, Andesine, normal, odd, neither I think, yet expected. I enjoy your colorfully described blogs. I might say neurosignals that are distorted may be expected events particularly with neurological involvement in the process of reversal on a CAPi [9]? Will be interesting to see how many folks notice this. I will say that with this past pulse I think I may have had the wisper of the "restless Leg" phenomena. Thankfully it passed quickly for me.

Hoping for a quick resolution for you,

Louise

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Louise CFSi [10], CPN+/Bb+,Wheldon CAPi [9] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [11] & Endotoxinsi [12] PRN, Doxyi [4] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

I too get the crawlies &

Submitted by ruthless1 on Tue, 2008-07-22 13:54.

I too get the crawlies & especially from the flagyli [6]. Sometimes it is the strangest thing, down the flagyl & then I can feel it start to course through my veins!

I have more RLS this time around as well, so I am...."antsy" Last night I was a mm. from tossing my supper from the nausea so the beast is still living happily in my gut!

SLAY THE BEAST, take the supplementsi [1], choke them down. I know how you feel about days where, ACCCKKKKK TOO EEEE, choke them aaaahhhhh down.

Up the moppers & expect the unexpected!

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CFIDSi [13]/ME 32 yrs, FMSi [14], ~~IBSi [15]~~, EBVi [16], CMV, Cpni [17], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

I get them on my face.

Submitted by Twickle Purple on Tue, 2008-07-22 15:27.

I get them on my face. Drives me nuts!

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Corinna | GFAi [18]. Wheldon Protocol: 4–8/08. Can't kill the yeast.

My pet theory about this,

Submitted by Jim K on Tue, 2008-07-22 18:29.

My pet theory about this, no not internal pets (horrors!), is that those tiny EB'si [19] get lodged in small vessels in the subdermal layers, and killing various cells in these regions gives the creepy crawlies. I got this originally more from NACi [3] than from flagyli [6] or the other abxi [20], hence my connecting it solely with the EB's. Just speculation, but I'm sticking to it. Er, well I guess it's sticking to me!

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CAPi [9] for Cpni [17] 11/04. Dx: 25yrs CFSi [10] & FMSi [14]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [21] 1000mg/day pulses; Vit D2000 units, T4 & T3

I get this too. It feels

Submitted by loriyas on Tue, 2008-07-22 18:36.

I get this too. It feels like I am jumping out of my skin. Weird!

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Started Vanderbilt protocoli [22] 1/9/08 Rifampin twice a day, azithromycin MWF, Tindamax for 7 days out of a month at 250 mg three times a day, b12 injection monthly NACi [3] daily, DHA, calcium pyruvate, prilosec, low dose naltrexone 4.5 mg

Much better today, I think

Submitted by Andesine on Wed, 2008-07-23 11:42.

Much better today, I think the ant colony moved out overnight thank Heavens. That was driving me loopy.

Interestingly I started my second pulse last night. Wonder if the Metroi [6] drove them out?

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Berkshire, UK. Diagnosed RRMSi [2] Feb 4th 2008.

NACi [3] 2400mg. All supps. Doxyi [4] 200mg. Zithi [5] 250mg. Metroi [6] 400mg.
No GP/Neuroi [7] support. Self medicating with help from David Wheldoni [8].
Started CAPi [9] 20th April 2008. First pulse June 2008

I believe the crawly

Submitted by speedbird on Wed, 2008-07-23 13:04.

I believe the crawly feeling is common to MSers and is just one of those things that you hardly noticed before you were told that you had MS. I remember being convinced that there were fleas in my bed at times, even though the cats were well protected against them. I'd strip the bed and go on a hunt for any evidence of creepy crawlies. Now I know that it's just an MS thing and the abxi [20] are stirring things up so I down more Vit C which seems to help.

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Progressive MSi [23] dx2006. LDNi [24] & CAPi [9]: Wheldon version. All supps. Doxyi [4] 200mg. Zithi [5] 250mg. Metroi [6] 400mg.Pulses #10/16...I can because I think I can.

Ooooh poor cats. I've been

Submitted by Andesine on Wed, 2008-07-23 14:54.

Ooooh poor cats. I've been drowning them in flea powder! LOL. Ollie is most unimpressed.

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Berkshire, UK. Diagnosed RRMSi [2] Feb 4th 2008.

Andesine, This happened to [25]

Submitted by wiggy on Fri, 2008-07-25 17:22.

Andesine, This happened to me for the first time last week - I told my husband I feel like a butterfly is stuck in my right calf - went on for a few days. About four days later I felt it on left calf. Creepy

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On Wheldon protocol for MSi [23] since April, 2006. doxyi [4] 200 mgs daily, zithromax 250 mgs 3x/ week , Flagyli [6] Pulses start end Sept., LDNi [24] 2004. Gad-enhanced MRI of brain and spine shows NO NEW DISEASE ACTIVITY and one lesion diminishing in size on 9/30. Ma

Mine has gone now. As soon

Submitted by Andesine on Fri, 2008-07-25 19:36.

Mine has gone now. As soon as I started this pulse it eased up, I had a couple of short episodes and then it was gone completely. Not has any problem there since.

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Berkshire, UK. Diagnosed RRMSi [2] Feb 4th 2008.

Taking extra magnesium

Submitted by MacKintosh on Sun, 2008-07-27 00:22.

Taking extra magnesium helps with this.

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Thanks for the

Submitted by Twickle Purple on Sun, 2008-07-27 01:21.

Thanks for the recommendation. I'm going to add a bit more to my morning supplementsi [1]. It will be great to stop rubbing at my cheeks and nose in public...

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Corinna | GFAi [18]. Wheldon Protocol: 4–8/08. Can't kill the yeast.

I had to go back and pull

Submitted by WANDA on Tue, 2008-07-29 09:03.

I had to go back and pull this one up, when last 3 nights hubby has jiggled me from the bed with ?RLS which he hasnt had in long while severe RLS which started after about 10th day of doxyi [4]......

I did talk to his doctor about this theory of infection and he didnt tell me I was crazy...he did say hubbys' symptoms seemed systemic? and put him back on Doxy. 100mg twice daily for 30 days...he said if this seems to help we will consider what to do next....its a start...

At hospital I talked with neurologist and another doctor who just couldnt even consider the posibility of this....I think they didnt even hear another thing I said after I ask about possibility of antibioticsi [20]...when off on this long spill about statistics, and the FDA... blah, blah, blah....

I thought to myself what a sad life if you cant have hope and faith....

I admit I was surprised at their response....and realized this may be harder than I thought finding a doctor to get totally on board with this...

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Mono 1984, samonella 1985,Hives? flu like symptoms 2003 relapsing, Boarder line erichilosis 2004, discoid lupus 2004, chronic catscratch disease 2005, relapsing polychondritis 2007, HTN, Anxiety, Depression, pain issues, Mother has MS. Meds prednisone, B