thoughts on 2 mo. substitution for components of cap

My LLMD, neuroi [1]. has suggested that for a 2 month period, use sulfa(bactrim) along with rulid daily as for cap and tinii [2]. pulses every 3 weeks again as per cap. Stop the doxyi [3]. during the 2 months.

I have been following wheldon cap since february. My head is clearer. I am grateful for this, no doubt.

My pain and spasticity and inflammatory feelings have increased. Not sure of EDSSi [4] numbers but in my opinion, they are higher, most noticeably in issues of mobility which are diminished.

I hope I will get some informed discussion going with the hopes that we will be able to help one another.

doxyi [3] 100 mg. 1BID. roxyi [6]i [6].150 mg.? BID,adding rifampin soon, pulsed tinii [2]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to

Loulou, Why does your dr

Submitted by MacKintosh on Sun, 2008-06-15 21:24.

Loulou, Why does your dr want to alter what's already working well for you? Were you given an explanation? If it's the inflammationi [7], there's enough documentation here to relieve your mind that this is normal, and is a result of the die-off of the cpni [8] you are killing.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

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The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

I've been using the Rulid

Submitted by Jim K on Sun, 2008-06-15 22:18.

I've been using the Rulid (roxy) and Bactrim for a couple of months. Has been a good combo for me. I'm back to the doxyi [3] as I've run out of the Bactrim, but staying with the Rulid. I've heard from others that LLMD doc's like the Bactrim combo for it's effect on other organisms as well as Cpni [8], and it clearly is anti-chlamydial. So nothing wrong with the combo as far as I can tell.

CAPi [9] for Cpn 11/04. Dx: 25yrs CFSi [10] & FMSi [11]. Currently: 150mg BID Roxithromycin, Bactrim DS 2x/day, Tinii [2] 1000mg/day pulses; Vit D2000 units, T4 & T3

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CAPi [9] for Cpni [8] 11/04. Dx: 25yrs CFSi [10] & FMSi [11]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [2] 1000mg/day pulses; Vit D2000 units, T4 & T3

LouLou, You are on an

Submitted by cypriane on Mon, 2008-06-16 11:36.

LouLou, You are on an abxi [12] combo that I expect my husband Steve will be switched to sometime within the coming year, as he also has Borrelia. I look forward to it as a step up in bug killing that he will be ready for. The fallout I expect is just as you describe the fallout that has resulted from your switch. Not fun, but it's for the best.

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [13]). CAPi [9] since August 06, Cpni [8], Mpn, B. burgdorferi, systemic candidiasis, EBVi [14], CMV & other herpes family viral infectionsi [15], elevated heavy metals, gluten+casein sensitivity.

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Jim, what do you find

Submitted by Louise on Mon, 2008-06-16 12:05.

Jim, what do you find regarding Rulid that has you wanting to stay with it? I have an Rx for clarithromycin and am contemplating a change to either 250 mg BID or 500 mg BID I have and Rx for both dosages. Still I am continuing to do well with roxi so.... not sure what to do. Roxi is of course self pay.

Louise USA.CFSi [10].CPn Positive.BbPositive.WheldonCAP6/24/07.NACi [16],Doxyi [3],Roxi, Tinidazole Pulses. VitD-3,4000IU. Intermittent Cholestyramine 1-2 packets atbedtimewithpulses&asneeded forporphoria&endotoxinsi [17].

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Louise CFSi [10], CPN+/Bb+,Wheldon CAPi [9] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [18] & Endotoxinsi [17] PRN, Doxyi [3] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

I 've got nothing to add to

Submitted by Michele on Mon, 2008-06-16 13:28.

I 've got nothing to add to this, apart from the fact that this new protocol is unlikely to ease off the die off effects, to a certain extent it might agravate them. Bactrim appears to be a more potent antibiotic than doxyi [3] and it may well be appropriate for an aggressive form of treatment.

Michèle (UK) GFAi [19]: Wheldon CAPi [9] 1st May 2006. Daily Doxy, Azi MWF, metroi [20] pulse. Zoo keeper for Ella, RRMSi [21], At worse EDSSi [4] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [19]: Wheldon CAPi [9] 1st May 2006. Daily Doxyi [3], Azi MWF, metroi [20] pulse. Zoo keeper for Ella, RRMSi [21], At worse EDSSi [4] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Loulou - I am a BIG fan of [22]

Submitted by Daisy on Mon, 2008-06-16 17:34.

Loulou -

I am a BIG fan of the Bactrim DS/Roxithromycin combo.

My husband has been on Bactrim and Roxithromycin since November 2007. I think it's a great combo for CPNi [8] and borrelia.

Honestly credit this combo for a good deal of my husband's improvement. Bactrim DS BID. Roxithromycin 300mg BID.

^{Daisy - Husband on CAPi [9] 5/07. Roxithromycin, Minocycline, Rifampin, Bactrim DS, Mepron, Prednisone, Novantrone, Doxyi [3], Azithromycin, Flagyli [20], Diflucan}

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Daisy - Husband on CAPi [9] 5/07. "When Going Thru Hell, Just Keep Going", Winston Churchill

I guess I'm a fan of the

Submitted by Jim K on Mon, 2008-06-16 18:38.

I guess I'm a fan of the roxy because I improved another notch on this combo plus the pyruvate. It did seem to have more anti-inflam modulation than azith, probably because it is taken daily. It also works well with the pyruvate protocol because it has a shorter half life than azith. Clayrithromycin is the recommended one lately by Dr. Stratton as it has good potency against Cpni [8] and shorter half life than the azith. I think you would do just fine on that one, although I think it's added potency can give more die-off at first.

CAPi [9] for Cpn 11/04. Dx: 25yrs CFSi [10] & FMSi [11]. Currently: 300mg BID Roxithromycin, Bactrim DS 2x/day, Tinii [2] 1000mg/day pulses; Vit D2000 units, T4 & T3

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CAPi [9] for Cpni [8] 11/04. Dx: 25yrs CFSi [10] & FMSi [11]. Currently: 150mg BID Roxithromycin, Doxycycline 100mg BID, Tinii [2] 1000mg/day pulses; Vit D2000 units, T4 & T3

My thought as well about the

Submitted by Louise on Mon, 2008-06-16 20:01.

My thought as well about the potency and die-off to start. I have the OK to start with 250 mg BID Initially and then take it up to 500 mg BID. Think I will wait until after early July vacation week to make the change. Clarythromycin is one of the Bb antibioticsi [12] of choice as well and so is Roxi. Both of course as part of a CAPi [9]. Thanks for sharing your perspective.

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Thank you for the

Submitted by loulou on Wed, 2008-06-18 07:57.

Thank you for the responses. As of now, June 18th, I am changing nothing and just praying for relief.Hosever, if anyone has some positive advice for symptoms I will be more than pleased to listen and/or pay attention.

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diagnosed MSi [5] Jan.2000 , chronic neurological lyme disease Nov.2002.

doxyi [3] 100 mg. 1BID. roxyi [6].150 mg.? BID,adding rifampin soon, pulsed tinii [2]. every 3 weeks, as of oct.17/08, no rifampin as yet, just doxy and 1 gram daily of IV ceftriaxone, soon to