I don't have any experience of this, but I would opt fot the wait and see option.   Epecially since the specialist does not seem concerned about it.

Michèle (UK) GFAi [9]: Wheldon CAPi [10] 1st May 2006. Daily Doxyi [7], Azi MWF, metroi [11] pulse. Zoo keeper for Ella, RRMSi [12], At worse EDSSi [13] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

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Michèle (UK) GFAi [9]: Wheldon CAPi [10] 1st May 2006. Daily Doxyi [7], Azi MWF, metroi [11] pulse. Zoo keeper for Ella, RRMSi [12], At worse EDSSi [13] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Jeanneroz,

My daughter has been in the hospital for a severe bacterial infection for nearly 2 weeks now and when I first brought her to the ER, the Dr said her urine was definitely full of blood. It's been that dark color off and on and I'm not sure if they've actually tested it for blood or they've just gone by the color. When I first saw it, I thought it was porphyriai [15]... ?

She's on all sorts of IV abxi [2] and oral ones too and I'm pretty sure her urine color changes from normal color to a more orange-red color are associated with die off as they keep culturing her blood.

I'm also concerned with what abxi [3] they're using (mainly bactricidals) and wondering what sort of long term chronic problems will result after this.

If anyone has any suggestion on this part, please let me know.

Anyway, I wanted to let you know that my daughter's bloody urine changes almost daily or even during the day as she is being treated and the cultures change nearly as often from negative to positive so I think this is similar to what you're seeing in your urine and will prob clear in time as you resolve your infection. Just my thoughts.

MPi [16] for 3 1/2 yrs. NACi [17] 1200 mg/2x day, Iodoral 25 mg, myco+ I (still) want my life back! CFIDSi [6]/FMSi [18], Hashimoto's, Psoriasis, PA, IBSi [19], Secondary Addison's

When I change what I believe I change what I do

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NACi [17] 2.4g, Zithi [20] 250mg/MWF, minoi [21] 200mg, Tinii [8] 1g/day pulses, Iodoral 25mg, Supps, CFIDSi [6]/FMSi [18], Hashimoto's, Psoriasis, PA, IBSi [19], Secondary Addisons

Don't believe everything you think!  

Reenie, thanks for your input...I am hoping this does go eventually go away.   I'm sorry your daughter is having to experience what she is going through and hope they get it resolved. Is she still in the hospital?

I wish I would have requested the urine cytology to additionally check for CPNi [1] bacteria (if they could).  The report states:

"Negative for malignant cells or dysplasia.  Broad cast(s) indicating severe renal tubular dilatation.  Dysmorphic erythrocytes indicating moderate glomerular and/or renal tubular bleeding.  Fungal spores and hyphae."

I'm wondering if there's any chance the  "fungal spores and hyphae" are actually CPN or if the cytology definitely confirms its a fungus.

Michele... thank you, too,... since I am not in pain I most likely will "wait and see".  My urologist isn't concerned about the renal cyst but she doesn't have a clue about the above. 

Jeanneroz ~CPN diagnosed and started protocol  4/2007, also have  HHV6, EBVi [5].  CFIDSi [6]/FM diagnosed: 6/07; Protocol:  200 mg/doxyi [7] daily~ 250 mg AZITH M/W/F ~1st Tindi pulse 4/17/08- 1 250 mg. tab for 2 days. supplementsi [22]

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JeanneRoz~CPNi [1] diagnosed & started protocol 4/2007, also HHV6, EBVi [5]. CFIDSi [6]/FM diagnosed: 6/07; 100mg/doxyi [7]/BID ~ 250 mg AZITH M/W/F ~1st Tinii [8] pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

jeanneroz,  I would focus on the "fungal spores and hyphae" part of that report.  I would think that the blood could be entering the kidneys through the hyphae.  Do you have any symptoms of yeast overgrowth these days besides that part of the report?  If you're not currently doing the Whole Approach protocol these days, maybe it would be a good time to get back on it again.  Full circle---you recommended it to us, and now I'm recommending it back to you!

Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [23]).  CAPi [10] since August 06, Cpni [1], Mpn, B. burgdorferi, systemic candidiasis, EBVi [5], CMV & other herpes family viral infectionsi [24], elevated heavy metals, gluten+casein sensitivity. 

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Joyce~caregiver-advocate in Dallas for Steve J (SPMSi [23]).  CAPi [10] since August 06, Cpni [1], Mpn, B. burgdorferi, systemic candidiasis, EBVi [5], CMV & other herpes family viral infectionsi [24], elevated heavy metals, gluten+casein sensitivity. 

Cypriane,

Thanks for those thoughts on the hyphae..... the wiki link  [26]on hyphae was interesting and your comment that the blood could be leaking from them seems logical.....

I haven't had any symptoms of yeast (other than a BV.....hmmm an inbalance of the vaginal flora causes by abxi [2]?).  I just started the wholeapproach (bentonite, psyllium and capryol combo) again this past week for my colon problems.  I need to be more diligent with this. Thanks for reminding me and thank you for your input re the hyphae!

Jeanne

Jeanneroz ~CPN diagnosed and started protocol  4/2007, also have  HHV6, EBVi [5].  CFIDSi [6]/FM diagnosed: 6/07; Protocol:  200 mg/doxyi [7] daily~ 250 mg AZITH M/W/F ~1st Tindi pulse 4/17/08- 1 250 mg. tab for 2 days. supplementsi [22]

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JeanneRoz~CPNi [1] diagnosed & started protocol 4/2007, also HHV6, EBVi [5]. CFIDSi [6]/FM diagnosed: 6/07; 100mg/doxyi [7]/BID ~ 250 mg AZITH M/W/F ~1st Tinii [8] pulse 4/17/08- 1 250 mg. tab for 2 days. Pulse 5: 9/28/08, 250 mg TINI BID, 3 days. Sup

A few years ago I had blood in my urine. I had testing at a nephrologist. At the time I hadn't heard of Cpni [1]. Jeanneroz, thanks for bringing this up. Maybe it is porphyrins. Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei [11] for muscle pain, insomnia, interstitial cystitisi [27], sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

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Combined Antibiotic Protocol minocycline, azithromycin, metronidazolei [11] for muscle pain, insomnia, interstitial cystitisi [27], sinus, disphonia, dry eyes, stiff neck, veins, thyroid, TMJ.

Hi Jeanne, I will put on my thinking capi [10] this weekend.  So glad you shared this with the group.  Hoping to hear more from you here again.

Louise

CFSi [28]. CPnPositive. BbPositive. WheldonCAP began6/24/07. NACi [17],Doxyi [7], Roxi,FullTiniPulses. Intermittent Cholestyramine,1-2packets, at bedtime,most often with pulses,and as needed, for Phorphoria & liposacaride Endotoxini [29] Die-OffExperiences.

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Louise  CFSi [28], CPN+/Bb+,Wheldon CAPi [10] 6/07, Cholestyramine 1-2 pks @ HS for Porphyriai [15] & Endotoxinsi [30] PRN, Doxyi [7] 200daily, Roxi 300BID, Tini500BIDx14day pulses,VitD3-10,000IU, Iodoral 25mg, {S.O.D.3/QD[KAL Brand], Pyruvate 3.75G, SAM-e For Energy Support

Hi Jeannie,

thanks for the update.  I am glad you don't have any pain & the specialist doesn't seem too concerned.  You have some ideas noted above which sound logical.  I haven't been able to think of anything to help other than keep the yeast down to a dull roar!

By your writing it seems like you are doing better in the fog department!

Blessings, you are in my prayers.  Have you read any of the Jim Eldredge books?

CFIDSi [6]/ME 26yrs, FMSi [18], IBSi [19], EBVi [5], CMV, Cpni [1], chronic insomnia, Lymes, HME, Natural HRT peri-M, NACi [17] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#10 1000 mg 3 days & 750mg 2 days, 5-17-8

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CFIDSi [6]/ME 32 yrs, FMSi [18], IBSi [19], EBVi [5], CMV, Cpni [1], chronic insomnia, Lymes, HME, Natural HRT peri-M, NAC 3 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse#15 750 mg X 5 days 11-1-08

I had a lot of Urine problem caused by CPNi [1]. Thats for sure can cause bad urine problems. I wasnt bleeding in urine, but i did bleeding a lot in colon a lot before. Now it is much better.

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doxy200, azith250, NACi [17] 2400, Metroi [11] 1250(once a month), supplementsi [22], vitaminsi [32].