New Folks: help us out please?

This site is full of wonderful, generous folks, who are sick too, who spend a lot of time seeing to questions and making sure people get the help they need. We will do our best to help you through the confusion. I've seen few community websites like it.

But for some miraculous reason we have had a huge influx of new people lately, and we are getting swamped, especially with having to answer the same questions over and over again with each new person posting. We are glad you've found us. We are a bit overwhelmed with the bounty.

I'm a bit worried that the stalwart old-timers here are going to burn out trying to keep up with responding to new folks. They are very dedicated and conscientious, and tend to want to be thorough in each response. That's why it's such a helpful culture here, because of the old-timers who take so much care to guide folks through the fog.

I've never, ever wanted to suggest that people "don't post" here. We don't want to put up any barriers to getting help up, but...

I hope this won't discourage anyone here, and if you can't do the above, by all means post what you need to. We are glad you've found us and hope this will be an answer for you. We would rather be a bit stressed in the short term and make sure you get some responses. But if you can take a little time to explore and digest it will make a big difference.

Please let me know how this editorial hits you. If it is frightening you off or if I'm speaking for others inaccurately, I'd rather pull it. So let me know.

Well put Jim, What happens

Submitted by Michele on Thu, 2008-04-24 01:11.

Well put Jim, What happens when we are overwhelmed is that we skim through things and may miss something important. Another aspect that has put extra pressure on is having to deal with things other than Cpni [8] and its treatment. For most of us these other topics are unfamiliar territory and it means doing more research before answering, so if we are working hard to get people the answers they need regarding Cpn, I for one will ignore the other discussions. Its a matter of rationing my time here...

Michèle (UK) GFAi [9]: Wheldon CAPi [1] 1st May 2006. Daily Doxyi [10], Azi MWF, metroi [11] pulse. Zoo keeper for Ella, RRMSi [12], At worse EDSSi [13] 9, 3 months later 7 now 5.5 Wheldon CAP 16th March 2006

Jim, Sarah, Daisy, Michele,

Submitted by veressv on Thu, 2008-04-24 03:24.

Jim, Sarah, Daisy, Michele, Mac. I just would like to emphasize my appreciation for the help that you and everyone provide through this site: it helps a lot and I have been/will be searching before I ask questions. :)) I don’t understand always everything, but I do understand much more by time. Hopefully one day some of us can be as useful as you guys to other new comers. Until then I try to do my best to find answers on my own and not only to get answers but more importantly to understand it…Thanks a lot again for the good job. This site has been truly a blessing for me…

Jim, Thank you; well put.

Submitted by MacKintosh on Thu, 2008-04-24 10:49.

Jim, Thank you; well put. Veressv, thank you, also. We've already gone into a second generation - maybe a third - of newbies who have become educated enough and have a year or more on abxi [14], who can now help others. And they do, regularly! Jim, Sarah, Marie and Rica got me through the first steps and held my hand when I had the same questions all of you have.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Jim, You are so right on [15]

Submitted by Reenie on Thu, 2008-04-24 11:46.

Jim,

You are so right on reading all of those links. I read them several times over and I still have had to ask questions. I can't imagine what more I would need to know if I hadn't read all of those other links and David Wheldoni [5]'s site too.

Although I'm new here, I've found I can help answer some of he questions now that I've learned how to link. IMOi [16], it helps ALOT when answering someone's question in a post to link, link, link, to a previous post or place to find the info.

This way eventually, someone new reading someone's posts and questions will be linked to the original place or site with the info!

MPi [17] for 3 1/2 yrs. NACi [18] 1200 mg/2x day, Iodoral 12.5 mg, myco+ I (still) want my life back! CFIDSi [19]/FMSi [20], Hashimoto's, Psoriasis, PA, IBSi [21], Secondary Addison's

When I change what I believe I change what I do

Thank you Jim and everyone

Submitted by Miying Meng on Thu, 2008-04-24 12:37.

Thank you Jim and everyone here helping me. (one of the newbies)

I totally understand what you are saying. I don't want to add to your burden and will study harder independently. I appreciate you listing the links for us to study so very much. That will help keep me focused.

I want to say that everyone here has been so very nice to me and it has meant a lot to make me comfortable here. Jim, I was telling Reenie before that I love your spirit & humor. It goes a long way in keeping the peace. You are a true diplomat.

I crave a peaceful existence and will do all I can to keep it too. I never want to make anyone here feel bad ... you all have enough pressure in your situations. It is a good reminder that everyone in here is very sick. We need to take care of each other and not be too demanding. I will gladly be more responsible for learning on my own. It is the best way when I can.

Thank you Jim for sharing all this today. May your load lift & you find peace.

Miying

FMSi [20] - dx 2002. Treatments: Mega supplementsi [22] 2002-04. MP 2004-08.

4/19/08 - NACi [18] 1x 600 mg. - NAC cold/flu response.

No abxi [14]. Benicar 40 mg. 8hrs. Heparin sodium BID 0.5cc x2.

thanks JimK for posting

Submitted by ruthless1 on Thu, 2008-04-24 12:54.

thanks JimK for posting this.

I have been mentored by you- JimK, MacK, Michelle, Cyprianne, Katman & others, & I know I probably asked repetitively answered questions. I thank you for perservering.

I have noticed that, at times, the newbies come in waves. This creates a flurry of activity & then it quiets for a bit & so on. I have really noticed many of the newbies reaching out & helping each other even though their journey, thus far, has been a short one. They even advise others what You & others have said in other posts.

Time flies when you are treating on this protocol. The urgency of wanting to just feel better yesterday, comes & goes...but mostly patience has become a virtue; even to those of us who were not. I have been on the site for a year now & looking back, I can't believe how much pea soup my brain was in compared to today! Not completely out of the woods yet, but improvement is a good thing.

Welcome newbies, keep us posted as to your progress!

CFIDSi [19]/ME 25yrs, FMSi [20], IBSi [21], EBVi [23], Cpni [8], (insomnia - melatonini [24], GABA, tarazadone, triazolam, novocycloprine, allergy formula, 3 gm tryptophan), Natural HRT peri-M, NACi [18] 2.5 gm, 6-07 Doxy 200 mg day pm, Azith 375 mg M/W/Fday, Pulse8 750mg 4day,375X1 3-24-8

The difference between what

Submitted by MacKintosh on Fri, 2008-05-02 21:48.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Jim, Thanks for posting [25]

Submitted by horses12 on Mon, 2008-06-02 08:43.

Jim,

Thanks for posting to the newbie. You are on top of things , and as I read the inspiring input from others who brave it throug day by day, you all have been my life line. The information given on this site says it all. What a caring group of people. Thanks so much