Posted for Nelly
Nelly asked me to post this for her as she's had trouble using the site. (Jim K)
I've been reading Charles Strattoni 2006 update, he talks of going slowly with the intro of each abxi, making sure the reaction is not so strong as to disrupt "normal" life (working for eg).
One question springs to mind: How are we to gauge whether we are going to fast with treatment if we are so sick that we are practically bedbound and certainly nowhere near well enough to work?
I am wondering how sick most people are when they start treatment. Do most of them still work? What are their main symptoms?
I have been sick for a very long time (24 years), I think I have quite a complex infectious cocktail which most probably includes Borrelia Burgdorferi (Lyme-many tick-bites and EM rash), Chlamydia pneumonia (had a lot of acute and lingering respiratory infectionsi in childhood continuing through my working years (as a Uni lecturer then as a teacher-so highly exposed), less since I stopped working (due to illness).
In the late 90s developed lots of neuroi/cardiac symptoms, head/eye pain, a lot of inflammationi everywhere etc etc.
I have made very real and measurable progress in my most salient symptoms, heart arrhythmia, vertigo, heart and breathing stopping several times during the night (what I called my Wake In Fright episodes or WIFs) and a few other things, but I am still very ill, very tired, very weak, I get awful headaches, especially with abxi tx (been treating for 6 years with various combos of abx, including a lot of tinidazole, a lot of cyclines and macrolides).
I am trying to adapt what would be the most suitable regimen for me under the circumstances but it ain't easy, so many things to juggle.
But I keep on reading and I keep on trying to decide what would be best and safest.
One thing i have noticed, maybe someone would like to comment:
the abx regimens that give me the best results (especially macrolides and imidazoles) are also the ones that seem to stress my liver (elevated enzymes and pain under right ribs and towards back). Quite a dilemma! And yes I do all the supplementsi.
This is why I have to pulse not just the imidazoles but also the macrolide/doxyi part of things, in fact I have been doing a kind of Stratton protocol for years, empirically, through trial and error, but I have experienced amazingly strong reactions, many times thinking I was going to die and many times hoping to!
I have met some of you on other lists/forums but I usually just jump in without telling my story it is too long, too painful, too complex to recount, that's why I never do, really, this is the best I can do. But I'll be reading what I can
Nelly (in France)