MediTest
27 Apr 2018
Author
Red
Title

Post your 25(OH)D Levels Here

Body

I thought it might be a great idea to have a thread where people can post their 25(OH)D levels over time.     I'll start this thread off: While I don't have a baseline test result for comparison, after taking at least 10,000iu of Vit D3 a day for @ 13 months, at least 8,000 iu a day for @ 15 months, at least 6,000iu for @ 20 months and at least 4,000iu a day for @ 26 months, my recent test through ZRT labs showed a 25(OH)D level of 101ng/mL.

Comments

  My 25(OH)D3:  62,  I got only 3 months of D3 supplementation, started with 2000 ıu reaching upto 6250 ıu daily. I mede 2 shots of 12000 ıu also.

   Interestingly my CPN IgG  titer is: 1/1280, ıt was 1/177 when I just started to CAP. After one year of treatment it's 1/1280 now. (But the tests were done on different labs., so I should check it in the same lab again).

  YILMAZ.

KEREM'S TAKECARER;Suspıcıon of MS (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.

Jeanneroz, Good news that it is now in a more acceptable range.  Perhaps your sunbathing this summer might helpImage removed..     I bought a sunblocker cap that has one of those neck schield and can close over or under the chin.  Since I hyper pigment on my neck and chin areas so I am favoring over the chin in bright sunlight.   It is just about warm enough here if the sun will just stay out for a few days I can get some sun on my arms and legs.  I may test again sometime in July.  My MD saw no need to repeat it this past month although I would have been curious.   Louise

 

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

Prior post:

9/26/08: 20.0 ng/ml

1/26/09 25.1 ng/ml (supplementing 400-2000 iu for 1.5 months prior)

 Last test:

Test date May 29, 2009:

Vitamin Di, 25-Hydroxy: 40.9 ng/ml

 Some supplementaiton but lots of sun since prior test

 

 

Doxy 100mgx2, Azithromycin 250mg MWF, Probiotics: PB8, JarrowDophilus. CFS since 2003. Last 5+ years lots of the usual research (Depression, Adrenal Fatigue, HPA, Mercury, Candida, Thyroid, etc.). iherb.com $5 coupon code: HAW103

Red

Great news, Biohazard!

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

I just had my D level taken for the first time last week. I had been taking 2,000iu/day for about a year and 2 months ago I slowly brought it up to 12,000iu/day. My level is now 59. I don't do sun.

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Red

Excellent news, Artile.   Keep it up!

Hi Lifeontheice.   There's no shame in this at all.   A lot of people have been avoiding the sun as the dermatological community has told us to do, and as you can see, others above were at this range.   I've also seen reports from people in the low single digits, so at least you're at reasonable, although still somewhat low, range.   Luckily you can supplement with Vit D3 and still avoid the sun if you like, as even though the sun provides vitamin D3, it does cause photodamage of course.   Are you supplementing at this point?    If so, please keep us posted on your progress.    And of course, continue sending us those wonderful progress reports on your health in general!

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Hi Red. This is with the 5000 IU supplement, for the past five years. Before the antibiotic era I was diligent about my supplementation, after that I took them maybe once or twice a week. Now, without the ABX, I take them more often.

Cured of multiple sclerosis, stopped the Wheldon's protocol in Nov,2008. Use only LDN.

Life, the latest recommendations really are for 10-15,000 iu/day. My primary care physician was shocked when I told him what I was taking and then wrote me an email that said (rather shamefacedly) that he hadn't realized that the recommendations had changed. NSI, through Vitacost, has 4,000iu softgels. 3/day gets you to the 12,000 zone.

PPMS-misdiagnosed 2001-diagnosed 2006. Probably caught cpn in birth canal but it didn't pass BBB until my 40s. Minocycline 7 mos.- resulting bronchitis 5 months.Go to private m.d. out-of-plan. Wheldon CAP 3/2/07 Stopped 12/12; resumed 12/13

Just recently I have been taking 10,000 IU per day. I will get to 15,000 if my level is still low after 3 months.

Cured of multiple sclerosis, stopped the Wheldon's protocol in Nov,2008. Use only LDN.

Red

Glad to hear it Lifeontheice.    You'll get there.   Keep us posted on your progress though...

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

I tested Vit D, 25-hydroxy level again in Early April and had been continuing on the D3 10,000IU since Mid October 2008, my level in April was 72.9 (reference range from LabCorp at that point was 32.0 - 100.0, my target is in the 100.0 ball park. 

I have continued on the 10,000IU very consistently now for  a total of 9 months and I will test again next week, as another 3 months period has passed.  This time I am going through LEF labs (LifeExtention Foundation) this time and I am also making use of several of their other self ordered lab testing services.   Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

I just got results last month for my test from Life Extension via LabCorp: 58.2 ng/ml
This is from taking 10,000 iu of D3 a day for 6 months plus some lunchtime sun on arms and legs.
My starting level was 8 ng/ml in August of 2005. It has amazed me how hard it has been to raise my levels. My mom was tested recently and she had been taking 4000 iu with no sun exposure and her levels were almost the same as mine. Chronic infections like Cpn must do something to use up the D??

I have now dropped down to 5,000iu since I have been spending more time in the sun gardening, sailing and kayaking. But when I go back to work in Sept, I will go back to 10,000 iu. because I will be spending more time inside.

Raven

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

Hi Everyone, I'm new here and trying to figure out how to post. I've been deathly ill for 4 yrs and have been to every type specialist in the medical field. I have been told I have vasculitis, possibly fibro and lupus etc etc. Anyway with a new PCP my Vit D level was checked and it was only 5. Barely any in my system and I have only seen a Neuro Opthamologist who is new to me. He took 40 vials of blood and found that I have CPN, I want to say that level was 1024 but that was when I glanced over at the papers showing extensive lab results. He put me on Azithromycin 250 bid. I've been afriad to take the Vit D yet because I want to make sure I'm not allergicc to any new treatments.

Hi Des12, on the left side of your screen is a column find content and then blog entry and select it.  This is a good way to introduce yourself and your situation everyone who signs up can do blogs which tell us a lot and give us the ability to give you better comments. 

Welcome,   Louise

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

des12

Welcome to our world.  There are (believe it or not) many here like you.  Obviously, you need to get on the supplements, and, while you are at it -   read, read, read.  You might begin with the Getting Started at the top, and David Wheldon's protocol.  Start your own blog (in the box at left), because it will then be seen by many more.  Ask questions that are not answered in the explanations (can't think of the word), protocols, documents, papers, etc. at the top.

Most of us had very low Vit D levels and didn't know it, but now that we do, we work hard at getting it right.  This is not always fun, but most of us would say do it even when it isn't fun because it is necessary to get from here to there.

Rica

3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

 des12, your vitD level is too low and you should start supplementation for it certainly. Why do you worry about allergy so much, do you have a allergic body?

 yılmaz

KEREM'S TAKECARER;Suspıcıon of MS (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.

VitaminD Test Results Update Dec. 14, 2009   Vit D 25 Hydroxy(OH)   65ng/mL    Reference Range [30 - 80]Dosage - 10,000 IU Vit D3/day x 14 months at this dosage.Since this test, I've increased the dosage to Vit D3 - 12,000 IU/day.  Will retest again in April after three months time on this dosage increase.

  • CAP(TiniOnly): 06/07-02/09 for CFS
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDN 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support

My 25D was recently 46.1
My 1,25D was 93.6 (10.0-75.0) HIGH.

I am very concerned about my 1,25 being so high and am not sure what to do now about taking D or spending time in the sun. This high 1,25D seems in the danger zone to me and a good indicator of severe inflammation. If I supplement with D I will only be raising my 1,25D more.

Any ideas what can be done?

CAP since 11/06 for Cpn, Lyme, Bartonella, Babesia, Myco P, CMV, HHV-6 infections.
Rifampin 600mg daily, Zithromax 500mg daily. NAC 2250mg daily. All other supplements. Now Bicillin LA 2.4 mil injection weekly.

Vit D (OH) Test Results Update/Addendum (moved to beginning of posts)  -- 1/4/2010 - Vitamin Di 24 Hydroxy is now 51 (Quest)  Range 20-100 ng/nL(Again, this is taking 5,000 iu of Vit D daily -- increase of 10 since June of 2009)JeanneRoz++++++++++++++++++++++++++++++++NOTE: My Vit D (OH)  Levels:Precap                2/7/2007     18.6 ( I believe Quest)2 mos on cap:     7/25/2007     23.4   (Labcorp)   (Don't believe I tested in 2008)                          6/16 /2009      41.     Quest

JeanneRoz ~ DX'd w/ CPN 4/2007; 6/07 -"officially" dx'd w/CFIDS/FM; also: HHV6, EBV, IBS-C, 100 Doxy:BID; 500 mg Biaxin BID; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

All of you might want to check your 1,25 levels also. Curious if everyone has high levels.

CAP since 11/06 for Cpn, Lyme, Bartonella, Babesia, Myco P, CMV, HHV-6 infections.
Rifampin 600mg daily, Zithromax 500mg daily. NAC 2250mg daily. All other supplements. Now Bicillin LA 2.4 mil injection weekly.

Mycoplasma1, what does it mean to have  high 1,25 levels..... do you know, or perhaps Red?  I don't believe I've every had my 1,25 levels tested and didn't believe it was necessary according to most articles I've read.JeanneRoz

JeanneRoz ~ DX'd w/ CPN 4/2007; 6/07 -"officially" dx'd w/CFIDS/FM; also: HHV6, EBV, IBS-C, 100 Doxy:BID; 500 mg Biaxin BID; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

Red

Hi Micoplasma1,Read the section, Diagnosis of Vitamin D Deficiency, here (the whole article is actually well worth a read:Vitamin D in Clinical PracticeMost importantly, read the last paragraph of that section:"It is crucial to remember that serum 1,25(OH)2D [a.k.a 1,25-dihydroxyvitamin D or 1,25D] levels play no role in diagnosising vitamin D deficiency.   The kidney tightly controls serum 1,25(OH)2D levels which are often normal or even elevated in vitamin D deficiency.  Therefore, a patient with normal or high 1,25(OH)2d serum levels but low 25(OH)D levels is vitaminD deficient despite high serum levels of the active hormone.  Practicioners who rely onserum 1,25(OH)2D levels to make the diagnosis of vitamin D deficiency will routinely miss it."Figure 3, page 9 of the above article gives a high level view of Vitamin D metabolism... Hope this helps...

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-
Red

Duplicate post...

Treatment for Rosacea

  • CAP:  01/06-07/07
  • High-Dose Vit D3, NAC:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Interesting. From what I have read my level of 1,25D is much to high. I think it is a protective measure used by the bugs and caused by the infection (i.e. it should resolve with treatment). I am on the fence to supplement with Vit D because my Vit D levels are normal (only 1,25D is high) and I get fairly bad inflammatory reactions when I sunbathe too much (more heart irregularities, rashes, headaches etc...). I thought I had Lupus and even sarcoidosis for a while before the Lyme, Cpn, Mycoplasma showed up on testing.

Would be curious if all of us had high 1,25D.

CAP since 11/06 for Cpn, Lyme, Bartonella, Babesia, Myco P, CMV, HHV-6 infections.
Rifampin 600mg daily, Zithromax 500mg daily. NAC 2250mg daily. All other supplements. Now Bicillin LA 2.4 mil injection weekly.

  mycoplasma1, what's your 25D3 level, 46ng/ml or 46nmol/L? If it is 46 ng/dl, that is in normal range and we should expect normal 1,25 D3 levels also.  its difficult to explaine your high 1,25 level, by standart medical theories in this situation. So we can start thinking about marshalls theories again.If its 46 nmol/l (which means18-19ng/L), that's in the deficiency range and its normal to expect high 1,25D3 levels. Because when blood levels of calcium decrease due to 25D3 and resultant 1,25D3 deficiency, parathyroid hormone secretion is increased to facilitate convertion of 25D3 to 1,25D3, which may result in normal or even slightly high levels of 1,25D3 despite low 25D3 levels.  yılmaz

KEREM'S TAKECARER;Suspıcıon of MS (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.

If your blood level of calcium is okay, don't worry about your 1,25-D blood level. It might indicate inflammation, or it might just indicate a lack of calcium in your diet.

Yes, it is 46.1 ng/mL. Normal.
But my 1,25 D is 93.6 pg mL which is way too high.

Calcium levels are normal.

I think it indicates very bad inflammation like Sarc, but I don't test + for sarc (no biopsy though).

Not sure what to do really.

CAP since 11/06 for Cpn, Lyme, Bartonella, Babesia, Myco P, CMV, HHV-6 infections.
Rifampin 600mg daily, Zithromax 500mg daily. NAC 2250mg daily. All other supplements. Now Bicillin LA 2.4 mil injection weekly.

great post...I have been taking 10,000 IU total a day since about 08.  I guess I better get my levels checked as I havent in 4 years.peacer 

CFIDS/ME, FMS, MCS, IBS, EBV, CMV, Cpn, H1, chronic insomnia, Chronic Lyme, HME, Babesia, Natural HRT-menopause, NAC 2.4 gm,Full CAP 6-2-07, all supplements+Iodorol, Inositol-depression, ultra Chitosan, L lysine Pulse#27 04-19-10 1gm Flagyl/day-5 days<

Red