Post your 25(OH)D Levels Here

I thought it might be a great idea to have a thread where people can post their 25(OH)D levels over time.     I'll start this thread off:

While I don't have a baseline test result for comparison, after taking at least 10,000iu of Vit D3 a day for @ 13 months, at least 8,000 iu a day for @ 15 months, at least 6,000iu for @ 20 months and at least 4,000iu a day for @ 26 months, my recent test through ZRT labs showed a 25(OH)D level of 101ng/mL.

My dates are not pinpointed, but only approximate. About a year ago, after several years of 4000iu a day, my level reached "ok", as the office said, to which I said "What is my number, please?", to which they replied, 30. That is when I went to 8000iu per day, and six months ago reached 49.5. Since then I have been on 8000 or 7000 a day. My level will be checked late this month and I will post again.

Great thread, Red!

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Pre-capi, 9/08 my vit D level was 33. I have been ramping up to 7,000 units and get my level checked this week. Is anyone checking their homocysteinei levels also. Mine was 9.4 It's all those fat soluable vitaminsi (A,D,E,K,B) that CPNi seems to rob us of. Melanie

Mel W.  asthmai for 20 years, PCOSi, insulin resistant, hypothyroid, high cortisol9normal 2/09), low ferritin, low D3--34(2/09).  Recent PCRi-PCN not detected.  Dr. treating empirically.  Doxyi 200mg.  Azith 250mg MWF 11/10.  Flagyli pulse #3

My 25 (OH) D level on Dec. 22, '08 was 15. 

Wheldon Protocol for rrmsi since Oct '05.  Added LDN 4.5mg qhs Oct '07.  All supp's.  Positive IGGi's for Lyme Disease,Babesia, & Erlichiosis Sept. 2008.  Currently:  Mepron 750mg bid and Azithromycin 250mg qdi for Babesia.

Kitkat2, What dosage of D3 where you on at that time and how long of a duration had you been at that dosage?
  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Hi Red,

Maybe we ought to start posting Vit D levels in our sig line.  I have 5 yrs of nearly every 3 months of 25D and 1,25D labs. 

My latest 25D was taken in Dec '08 and it was 53.5 ng/mL

I am taking about 2600 ius Vit D/day and I live in (typically sunny) Arizona so since I'm going to aim for a D level of 60, I'll stay on my current dose of D until I achieve that rather than lowering my D intake as I have in the past in the Springtime.

NACi 2.4g, Zithi 250mg/MWF, minoi 200mg, Tinii 5day/1g/5 pulses, Valcyte
Supplementsi, CFIDSi/FMSi, Hashimoto's, Psoriasis, PA, IBSi, Sec Addisons

Don't believe everything you think!  

My level tested @ 20.0 ng/ml on 9/26/08. I started supplementing withy D3 regularly about 12/10/08 ramped up to 2000 IU per day before I had huge herx type symptoms. Started back supplementing 800 IU per day then 400 IU per day. Tested again 1/26/09 now @ 25.1 ng/ml.

 

Summary

9/26/08: 20.0 ng/ml

1/26/09 25.1 ng/ml (supplementing 400-2000 iu for 1.5 months prior)

 

Doxyi 100mgx2, Azithromycin 250mg MWF, Probiotics: PB8, JarrowDophilus. CFSi since 2003. Last 5+ years lots of the usual research (Depression, Adrenal Fatigue, HPA, Mercury, Candida, Thyroid, etc.). iherb.com $5 coupon code: HAW103

02/19/08 - 25(OH) = <4 which means was not measurable. Had been avoiding Vit. D foods & supplementsi & sun exposure since 7/2004.

07/08/08 - 25(OH) = 17 ng/mL (was not supplementing) was eating foods with vitamin Di and getting a small amount of sun exposure.)

10/17/08 - 25(OH)D = 35 ng/mL  (supplementing at 400-800 IU D3 daily.)

12/09/08 - 25(OH)D = 55 ng/mL  (supplementing at 1200-1600 IU D3 daily.)

I am now taking 2,000 IU daily but have not been tested lately. Slainte! MM

PS - Should I mention my labs were through Quest in view of the testing issues noted via them? Undecided

2002:CFSi. (2008-09:CPNi - CAPi/5 pulses)  3/2010: Restart CAP: 200Doxy/250Zith-MWF/Tinii pulses. 6/2010: HighBP/Benicar, 7/2010: EBVi, HHV6. 2012: 6,000 IU daily vit. D., Citioline CDP choline = sleep improvement dramatic. 

Hi Red,

My 25-0H vitamin Di in Jan 09 was 33ng/ml

(my only other test was done in March 2005 and it was then 66ng/ml)

Due to herx reactions to my initial attempts at supplementing with vitamin D, I have only had a daily dose of sunshine and vitamin D foods. Will re-try the vitamin D supplement more slowly when I am through my current Flagyli pulse which is taking it's toll!

CFSi<i< / sarcoidosis. Cpn diagnosed 2002. Doryx and nutritional supplementsi since 2002. Added NACi and zithro 2007. Flagyli pulses Jan 2009.

2003 vitamin Di was 20 1/25D was 40.

2005 Avoided sun and D in foods for 18 mos - 25D was 17 and 1-25D was 38

Returned to normal sun and food 25D was 20.

200825D was 18.

Started 6,000 iu of D3 and now 25D is 39.

I have upped the D to 8,000 iu and will retest in a couple of months.

I feel lousy.

Paula Carnes

Paula Carnes

Just got my D level back: 45 using 2000 units a day, and absolutely zip sunshine in Ohio!

I'll see if I can find a level from when I started with Dr. Powell. All I remember is that it was "low" and he had me on prescription D (probably D2, but who knew then) for a while.

 

CAPi for Cpni 11/04. Dxi: 25+yrs CFSi & FMSi. Currently: 250 aithromycin mwf, doxycycline 100mg BIDi, restarted Tinii pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Vit D levels last spring: 8. For two weeks weekly 25000 iu. After that I took 1000IU/day and the levels were only around 25. Since 6 weeks I am on 2000iu/day and at the last test two weeks ago it was 29. Not much sunshine here. Pity we can't make use of the rain. Wink

 

abxi since Feb. 08, full Wheldon protocol since April 08. Cpni diagnosed

Cpni diagnosed. Monotherapy Feb08 - April 08. Then full Wheldon protocol. Feb.09 first steps toward intermittent. NACi, Vit D 2000IU, B complex

Ok-so I was really excited about getting my dr. to order vit D levels.  I posted earlier that my level in 9/08 was 33.  (Should I mention that I have a backyard pool and girls 9 and 12 years old and was out at the pool often.)  I was not taking any vit/supp at the time.   12/08 thru 2/09, I slowly ramped up to 8,000 units of vit D3.  Been taking that amount for 2-3 weeks.  Had vit D level checked 2/13/09 and a whopping 34.  I can't imagine what it would be w/o taking the vit. D!  Both were tested at the same lab.  I guess I will keep going with the D and get as much sunshine as I can-although my dermatologist said I have had all the sunshine I need for my life(had a couple of moles that were "changing"). 

One question: the labwork says Vitamin Di Total 34ng/mL.  Then:  This assay accurately quantifies the sum of vitamin D3, 25-hydroxy and vitamin D2, 25-hydroxy.  What does that mean?  The reference range was 30-80.  I just barely made it above insufficiency level(20-29).  Optimum level was 30-80.

Thanks for the thread:)

Mel W.  asthmai for 20 years, PCOSi, insulin resistant, hypothyroid, high cortisol9normal 2/09), low ferritin, low D3--34(2/09).  Recent PCRi-PCN not detected.  Dr. treating empirically.  Doxyi 200mg.  Azith 250mg MWF 11/10.  Flagyli pulse #3

Finally got my test results from Grassroots Health<

I had been taking 9,600IU D3 for about a month. Prior do that I had taken a break from D. When asked how much I'd taken daily on average over the last 6 months I guestimated at 4,000 IU.

My D level is 98 ng/ml (I was expecting it to be half this!). The Lab reference range is 32-100ng/ml.

Looks like I might have over done it with the D ...

To be fair though, I couldn't live with the inflammationi I was getting at those levels, so since cut back to zero for a while, and am now slowly starting to building up again. I'll be testing again in a few months time.

Hunter: Don't think - experiment

Garcia, to test for a dosage response indication, it would be best to pick a figure and hold to it.    From the level goal set by my MD for me, 100ng/mL you look just about perfect not overdone IMHOi

Just goes to show how individual this really is.   My three months on 10,000IU D3 resulted in 68ng/mL.   So I continue on my 10,000IU/day. 

From our suggest supplement page;

Vitamin D3

2000iu

Work up to twice a day

Has antibiotic properties, may cause some die off symptoms

Actually reducing to 4000IU would be moderate level to test from.

I will be looking forward to your spring test results.  Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

My Vit D (OH)  Levels:

Precap                2/7/2007     18.6 ( I believe Quest)

2 mos on cap:     7/25/2007     23.4   (Labcorp)

Have not tested since 7/07 -- Will be testing this month and curious to see where I am... have been taking 5,000 iu/day  for about 8 months.  Prior to that only 2,000 iu/day.

I did not realize I was initially so  low until I looked these up.  Am interested in asking to have my homeocystine levels checked due to some other issues.

JeanneRoz

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi<; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

March 5, 2009   After months of intensive Vit D - 4000iu, then months at 8000iu, and slowly rising levels, mine finally is up to where I was aiming for - 83.2, and Richard's, after six months of 4000iu daily, is 55.8. I told my doctor that we have virtually indisputably tied Vit D levels to our recovery. He is so interested in what we are doing. I have been at 7000 or 8000 per day and Richard at 4000. I am a little uncertain about maintenance levels. I want to keep mine at least where it is and Richard's to go up some, so will put both of us on 4000 per day.

Great idea, Red!

Rica

3/9 Symptoms returning. Began 5 abxi protocol 5/9 Rifampin 600, Amox 1000, Doxyi 200, MWF Azith 250, flagyli 1000 daily. Began Sept 04 PPMSi EDSSi 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

Rica my 3 months increase in dosage to VitD3 10,000IU brought my level up to 68.  My past experience of lowering my dosage from 6000IU to 4000IU dropped my level from 43 to 29.  That is when I went to the 10,000IU per day dosage.  My current target test level is 100 set by my intergrative medical provider.

I have continued Since that January 09 report at the 10,000IU and will test again later this spring.  My MD is very comfortable with this approach for me.   I have bone to build and protect as well as bacterial infection to deal with so I am interested in maintaining a top of the scale, therapeutic level of VitD3 intake.

These variations speak to the possible need to test VitD3 levels in those with chronic infectionsi and other health conditions to establish a therapeutic dosage that will be dynamic in health mantainance and return to health. 

I find Red's results very interesting.  He lives in a sunny warmer area of the country and has not tested until recently, he had been taking 10,000IU for some time and his level was 101.       Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Wonderful news, Rica!!!   And I'm so glad to hear tihat everyone else's 25(OH)D levels are rising too!   Keep those great (and encouraging posts) coming!

Hi Louise, You know, as a rosacean, I pretty much avoided the sun for years.   I would say that for the last 10 years or so I could get a pretty severe sunburn in as little as 15 minutes of unprotected time in the sun, even late in the afternoon.  So I avoided the sun, and even flourescent lighting (which also caused burning for me and many other rosaceans) like the plague.  

I now believe this was likely due to the excess porphyrins that built up in my skin.    And, although I now really don't burn like I used to, I still get the resulting die-off and secondary porphyriai type reactions a couple of days following from too much sun, similar to what I saw at each increasing dose of Vit D3 brought (and when I was in early CAPi as well).  

Because of this, I've really relied almost solely on Vit D3 supplementsi to help bring my 25(OH)D levels up.    This is certainly not the only way.   Getting some sun when the sun is high over head will also give you a big dose of Vit D as you know...

Continued good luck! And keep those encouraging posts coming!

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-

Red, now that I have your ear (reading eyes),   I have been thinking about an opinion that I had (have?) heard in the past is that even if you get Vit D synthesis from the sun, that this happens on the surface of the skin and in combination with natural skin liposacarides (oils) that it is made. 

The thinking that I was familiar with was that unless you avoided showering for a length of time after the exposure (guessing 12 - 24 hours) it would be washed off and of little benefit because little would be absorbed if washed off.  

I am not so curious to do the searching about the validity of this concept but I think that you may have come upon this perspective in you quest for VitD3 info and naturally producing it if you are lucky enough to be in an area of the globe with climate that allows for year round skin exposure.  Just thought that you may have a ready response for me. 

Did I make that question clear or more confusing???  Thanks,  Louise

  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Does anyone have a journal article that discusses high doses of Vitamin Di causing die off or other adverse symptoms?   I could use such an article for a friend to present to her doctor.  She is on the shots, having significant issues a couple of days post injection, and her doctor (from Harvard) does not believe it to be related to the Vit D injections.   

I did a quick literature search and found nothing.  If someone could help with a journal article, it would be greatly appreciated.

thanks, Timaca

on valtrex 500 mg tid

http://whispersfromthefather.me/<

 

 

 

In a way, I would see it as no more dramatic than most patients experience with aggressive antibiotic treament, (such as I experience early in Abxi therapy)  after a period of time homeostasis returns and in the long run, the good effects of an increased level of VitD3 overshadow the uncomfortable experience of temporary die off.  In the long term you come out of the experience with an improved immunei system.
  • CAPi(TiniOnly): 06/07-02/09 for CFSi<
  • MethylationProtocolSupplements: Started08/08
  • Intermtnt CAP: 02/09-02/10
  • Full MethylProtocol & LDNi 02/09
  • Off CAP: 02/10, cont LDN & MethlyProtocol support
  • <

Hi Louise,

Sorry for the late response.  Your question was interesting to me, and I wasn't certain of the answer so I did some googling.    

It appears that while Vit D is produced by a photochemical reaction in our epidermis (the outer layers of our skin), most of the Vit D is produced in the deeper layers of the epidermis and would then not be all that likely to be washed off I'm thinking.   Good news for the more than once-a-week shower set!Smile

If you google "7-dehydrocholesterol vitamin di skin stratum spinosum and stratum basale" you can find a lot of additional info, but good old Wikipedia has some good, easy to read detail:

"Production in the skin

The skin consists of two primary layers: the inner layer called the dermis, composed largely of connective tissue, and the outer, thinner epidermis. The epidermis consists of five strata; from outer to inner they are: the stratum corneum, stratum lucidum, stratum granulosum, stratum spinosum, and stratum basale.

Vitamin D3 is produced photochemically in the skin from 7-dehydrocholesterol. The highest concentrations of 7-dehydrocholesterol are found in the epidermal layer of skin, specifically in the stratum basale and stratum spinosum.[11] The production of pre-vitamin D3 is therefore greatest in these two layers, whereas production in the other layers is less."

 

Read more on the Wikipedia site here:

http://en.wikipedia.org/wiki/Vitamin_D <

And here:

http://en.wikipedia.org/wiki/7-dehydrocholesterol <

 

Interesting question.   Thanks for givin' me something to google over a couple cups of coffee this Saturday morning!

 

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-
My vitamin Di level is 32 My dr. just upp'ed dose from 2000 to 4000/day :)

5oo mgs Ceftin 2 x/day, 500 mgs Zithromax, 500 mgs 2 x tinii pulses,100 mg diflucan, 4.5 ldni; Wheldon protocol for MSi April, 2006 to May 2008. 2008 MRI shows NO NEW DISEASE ACTIVITY, 2012 MRI no new disease activity.

Vit D (OH) Test Results Update

6/12/09 - Vitamin Di is now 41  (Quest)

I have consistently taken 5,000 iu of Vit D daily .... not as high as I thought it would be, but it is increasing.  

 

JeanneRoz

JeanneRoz ~ DXi'd w/ CPNi 4/2007; 6/07 -"officially" dx'd w/CFIDSi/FM; also: HHV6, EBVi, IBSi-C, 100 Doxyi:BIDi<; 500 mg Biaxin BIDi; Tindamax Pulses, B12 shots, ERFA Dessicated Thyroid,Cortef, Iodoral 25 mg, Vit D-6,000 uni

Vitaming D levels as of 06/17/2009 are 64 ng/ml on 8000 IU/day.  Just in the week since I got the test done, I've gone to 9000 IU/day and will be at 10000 IU/day in early August.

This currently has me taking 9 capsules of 1000 IU each.  They're small so i swallow them all at once.  When I run out of supplies, I'm going to switch over to a dosage of 5000 IU per capsule or pill, depending on the availability of brands and price.

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

John, I've not seen 5000iu pills/tabs in stores, but Iherb has a couple of choices in the 5000iu size. They look identical, though, so don't make my mistake and substitute eight 5000iu gels for eight 1000iu gels. I felt pretty toxic til I realized my mistake.

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Hang tough Mac!

I wouldn't want to make that mistake, I bet it felt awful!  I hope you're recovered from it already!

No, what I take right now are capsules, not gel caps, little white capsules.  I won't get them mixed up with a gel cap, although it is possible I might mix them up with the vitamin E caps.  I only take 2 of those each morening.

best, John

RRMSi/EDSSi was 4.5, 5, 6, 6.5, 6.9999, 6.5 on Wheldon/Stratton Protocol beginning 04/12/2006
naci 4x600 mg/day
doxycycline 2x100mg/day
azithromycin 3x250mg/day MWF
metronidazolei 3x400mg/day then 3x500mg/day

Great news, Jeanne and John. You're getting there! Mac, sounds like you got quite a lot of "the sun". Hope you've recovered!!

Treatment for Rosaceai<

  • CAPi:  01/06-07/07
  • High-Dose Vit D3, NACi:  07/07-11/08
  • Intermtnt CAP, HDose Vit D3:  11/08-01/09
  • HDose Vit D3, Mg, Zn: 01/09-
Mine is 65. I take 2000 iu a day.

minocycline, azithromycine, metronidazolei 2007-2009, chelation for lead poisoning, muscle pain, insomnia, interstitial cystitisi (almost well), sinus, dry eyes, stiff neck, veins, hypothyroid, TMJ, hip joints (no longer hurt)

  My 25(OH)D3:  62,  I got only 3 months of D3 supplementation, started with 2000 ıu reaching upto 6250 ıu daily. I mede 2 shots of 12000 ıu also.

   Interestingly my CPNi IgG  titer is: 1/1280, ıt was 1/177 when I just started to CAPi. After one year of treatment it's 1/1280 now. (But the tests were done on different labs., so I should check it in the same lab again).

  YILMAZ.

KEREM'S TAKECARER;

Suspıcıon of MSi (transient nystagmus during conjugated gaze on february 2008, blepharospazms and some optic complaints on february 2009-no plaque on MRI), Vit D3 started 400 IU and elevated to 2000 ıu ın 40 days.

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