Okay, I finished my 23rd pulse on Friday and then just did the regular daily medications over the weekend. Perhaps I should say regular weekend medications as my last dose of azithromycin was Friday. In any case, I thought I would recap some things I noticed during the pulse and things I've noticed over the weekend.
What I've noticed is not any improvements in my symptoms...unless you consider having more pain and discomfort an improvement. Pain...that's a relative term. It's more like inflamation and soreness then pain per se. Hard to describe how it feels but I think many of you know what I'm referring to - a hotness in one's extremities (my legs mostly).
I used to get this feeling after taking flagyl while on a pulse but this time I didn't notice it as much. But sitting here writing this blog 2 days post pulse, I'm having it. I took my last meds about 2 hours ago - second dose of Rifampin and a dose of NAC. That was after taking a dose of doxy, INH, and NAC about 2 hours before that. Yikes!
I have been taking doxy and INH later in the afternoon apart from Rifampin in the morning and Rifampin in the evening. I've definitely been getting more reactions taking Rifampin by itself, apart from Doxy/INH. I do however take it with Azithromycin M, W, and F in the morning and don't notice anything from it for the most part on those days.
I have been taking more mineral vitamin C with Calcium Pyruvate also in the morning during the week. Over the weekend, I haven't taken any. Not sure if it's providing any anti inflammatory benefit although it may be.
Anway, just thought I would jot down some notes of what's going on. Hopefully, the road to recovery is making progress. My understanding is that Dr. Stratton says it takes 3 - 5 years and I'm only at 2. So onward I go, provided medical care isn't retracted. I'll cross that bridge if and when I come to it.
all my best
RRMS/EDSS was 4.5, was 4.???, now 5 on Wheldon Protocol (nac, doxycycline, azithromycin, metronidazole) since 04/12/2006. Added Rifampin 2x150mg/daily on 08/19/2007. Added INH 300mg/daily on 03/17/2008.