I write on behalf of my brother - he has progressive MS. As I have written before he is finding CAP hard to tolerate. He feels he wants to stop on an almost daily basis, his partner, my Mum and Dad, and I have all been encouraging him to continue. My Mum also has MS but a different type to my brothers. I have started to read back through the site and I'm wondering if he may be suffering from porphyria - from what I can make out the symptoms sound similar to MS; exhaustion, fatigue, weakness. I was wondering what other peoples experiences of porphyria whilst on CAP were or are.
I will copy and give the porphyria section of the handbook to the consultant in the hope that he can help. In the meantime I was wondering if anybody had suggestions of practical means of dealing with it (he currently takes 12 activated charcoal tablets a day plus the other recommended supplements). As always, any help or advice is greatly appreciated.