I am really struggling and need some guidance. I believe that I am dealing with porphyria, but can't seem to get a handle on it. I have read ALL of the discussions on this condition in the handbook. I just feel lost. For almost a week and a half I have been dealing with some crazy symptoms, and I believe they are porphria, but I just don't know. I've had chest pain, anxiety, stomach pain (like I got punched in the gut) no appetite, body agitation, memory problems, weakness, back pain (like I got punched in the back) and fatigue.
I need some help with how to mitigate this. I am super senstive to supplements, but i've been taking charcoal here and there which seems to help to some degree. I've tried glucose tabs that help to some degree...I think. But i have no idea how much to take or how often. And I don't know why it keeps going on and on. Why does my stomach ALWAYS ache? And why does my chest hurt? It's super unnerving!
I would love to talk with anyone who has experience with this. What are your symptoms? How were you tested? How do you prevent attacks? How do you continue treatment when you feel like that?
(tested positive for CPN and borderline postive for porphyria)