porphyria and foods
I always have reacted to these foods.
Acute Intermittent Porphyria and Nutrition
EAT THE FOLLOWING:
To help ward of attacks and reduce their severity:
Consume at least 300mg of carbohydrates daily.
Eat some carbohydrates every three hours. The largest amount of carbohydrate intake should occur upon waking after overnight sleep.
Fiber intake should be about 40 grams per day. Foods high in soluble fiber are varied. Such foods include rice bran, oat bran, oatmeal, beans, peas, barley, citrus fruits, strawberries and apple pulp.
On a daily basis, most of your diet should consist of carbohydrates (50% or more), some protein (about 15-20%) and fat (less than 30%).
AVOID THE FOLLOWING:
Limit dietary cholesterol. To accomplish this goal, limit or avoid concentrated sources such as organ meats, egg yolks and whole-milk products (cheese, butter.) Of course, for porphyria patients, it is best to avoid such products because often these products contain triggering elements such as steroids, sulfur, and chemical toxins.
Be sure to keep the saturated fats to a minimum. The fats from meat, egg yolks, milk, and milk products (butter and cheese) are the main sources of saturated fats in most diets.
Avoid processed grain products, such as cookies, cakes, muffins, and pastries, because these usually contain saturated fats.
Avoid chamomile containing foods. Acute porphyria patients are known to have sensitive reactions to chamomile.
Avoid Porphyrenogenic foods, which contain chemicals that stimulate heme synthesis. These include: cabbage, red plums, red grapes, red/purple grape juice, and purple prunes.
Tomatoes contain sulphur and should be avoided since sulphur is a trigger.
Acute porphyria patients should avoid soy products. Soy contains phytoestrogens. Soy is a natural estrogen and therefore considered a trigger of heme synthesis.
High fructose corn syrup is often used in soda pop and sports drinks and should be avoided by porphyria patients. Ingestion of high fructose corn syrup causes a close down of normal metabolism function which needs to be avoided by acute porphyria patients. When fructose reaches the liver,the liver goes bananas and stops everything else to metabolize the fructose.
Table of Food Guidelines for Porphyria Patients
High-Fiber, High Glucose Foods
Avoid These Foods
Saturated Fats & Cholesterol:
baby food (fruit varieties)
cookies, cakes, muffins
eggs, particularly egg yolks
whole milk, cream, butter
Foods that Stimulate Heme Synthesis:
red/purple grape juice
Kool-Aid (made with sugar)
oat meal, oat bran
soybeans, soybean oil, soy protein
Foods containing Sulphur/Sulphites
catsup, tomato sauce, tomato paste
lemon and lime juice
raisin bran cereal
whole wheat bread