Pleased with my Doctor.

Submitted by paron on Tue, 2006-01-24 18:30

I am; he called me today and asked me to give him a little time to research before he recommended a course of action (following the wierdness of my 2nd dose of Zith.) He said I could decide for myself, take the next dose or not.

I know, in a perfect world, he'd have the research all done. Of course, in a perfect world, we wouldn't need Doctors at all, would we?

It's great that:

  • he didn't try to snow me; he just went to get some more information
  • he allowed me to be a part of the decision process
  • he doesn't think he has to know everything about everything; but he's willing to find out
  • he's willing to try something out of the mainstream
  • he's actually interested in this whole problem 

It's so nice to find a Doctor that's willing to partner up like that.

Ron 

Ron-

That's great! Hold onto this guy. Any doc who is willing and interested in actually researching things is a true scientist, as is one who knows his given knowledge is limited. Any doc who supports you making decisions about your own body and treatment has the potential to be a true healer. Let him know that Dr. Stratton and Dr. Wheldon have been generously available for consultation by phone or email-- it he's open to researching your condition, he may be interested and pleased to talk to world experts on this thing.

On Wheldon/Stratton protocol for Cpn in CFS/FMS since December 2004.

 

CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

I gave the doctor I had been seeing a "CANCELLED" notice.. I am doctor free and sick as can be.. There is always next year... To have confidence in oneself..ohh how much different my life might be
To have confidence in oneself..ohh how much different my life might be

Yes, it's really hard. I am just happy to have a Dr. who's at least interested enough to put the idea to the test. I ran through so many that took the money to be a physician and then spent the time playing amateur psychologist! I have become pretty defensive about the emotional component of the illness.

Seems like if you leave that door open the tiniest crack, some of them will bolt through it and stop looking for anything physical. 

 

On Stratton protocol for CFS starting 01/06.

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

Update: 6 months into the CAP

The reason I posted this under this old blog: I am still happy with my Doctor.

He had me in for a 6 month "progress check". I told him that I believe I am improving, that the pulses cause worsening of symptoms, but I recover to my new level in 4 - 5 days. I would estimate I am about 30% recovered, with 90% still to go. Image removed.

We talked about going to a 4-day pulse; still with 7 day recovery. I need 4-5 days to recover, so he wasn't too enthusiastic about shortening the 'interpulse' time. Honestly, the remaining days are pretty important for evaluation of my progress, and to get some things done that are just too hard during a pulse. And, as I said elsewhere, I'm to add the colostrum back to the regimen, since it helped me before the CAP.

Finally, he told me that he now has several patients using the CAP. I knew he was a good'un. His office nurse said that this protocol isn't for everyone, and I have to agree. It might benefit everyone, but will they be sufficiently scrupulous in their compliance?

If you happen to be one of his other CAP patients, I'm willing to compare notes; send me a private message. If you are looking for a doctor in NE Ohio, U.S., send me a private message and we'll talk (I have his permission to refer, but not to broadcast, and that seems reasonable to me).

 Ron

On Stratton protocol for CFS starting 01/06 (NE Ohio, USA).

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent

30% recovered, with 90% still to go?  You're almost as clever as Cypriane's 'MsScaregiver", Ron.  Sounds all good to me.  That doctor sounds like a peach!  As for recovery time, is it something in the water out that way?  You and Jim must hold the world's record for consecutive pulses in the shortest possible time!  Take it easy, will you!?

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems.  Mohandas Gandhi

The difference between what we do and what we are capable of doing would suffice to solve most of the world’s problems. Mohandas Gandhi

Mac: the 30%, 90% was a concession to my estimate vs. my wife's!

I believe the short cycle is due more to CFS vs. MS -- CFS tends to be a higher general load, but less CNS; MS is typically higher CNS, but less overall. That's how I understand the theory, anyway. So, since CFSer's are rebuilding cells that reproduce quickly and aren't so specialized, there's a short recovery. OTOH, since the overall load is higher, they start us with a shorter pulse so we don't make so much endotoxin.

I think.

Ron


On Stratton protocol for CFS starting 01/06 (NE Ohio, USA).

Ron

On CAP for CFS starting 01/06 (NE Ohio, USA)

Began rifampin trial 1/14/09

Currently: on intermittent