Hi all, i really need your advise. Specially from those living in the uk and progressing.
i am reaching cracking point. I had the occupational therapist i have phoned the council but i seem not to get good advise.
from the services you can get buy or pay ,.... which one is the one you value the most? Eg cleaner, someone to look after children take them to school, carer. I have the help of my husband but he is reaching a point where all this is too much, keeping his work, looking after children, cooking, shoping.... all too intense because of his demanding job. And he travels a lot too.
i am progressing rapidly, staggering to go upstairs, walking with extreme difficulty, awful balance, difficult to get dressed and go in/out shower, i have a scooter to move outside that is my only blessing....but i am unable to do anything at home unless sitting down and not for long.
i have no experince on what are my needs going to be in the short future and i struggle to come with ideas.
if any of you is in the same situation and found an answer i would like to hear from you.