Please Help

I have a question.  6 years ago I was diagnosed with reiters syndrome caused by cp.  I took antibiotics for 6 months and had been relatively healthy since.  A couple of months ago I was diagnosed with walking pneumonia which I was treated with doxy for 3 weeks, pneumonia cleared and then I had a sinus infection which my doctor gave me a shot of penicillin and a course of augmentin.  3 days into the augmentin I felt like my brain was going to burst, worst headaches ever and developed symptoms that look like porphyra.  I stopped the anitbiotics and although the headaches have subsided the insomnia brain fog and digestive issues remain plus what seems like hypogylcemic reactions.  


Any thoughts on this would be greatly appreciated, feels like my brain is broken.  Ive never taken peniciillin type antibiotics before. No problem on the doxy.  Three weeks since my last dose, did I stir something up?   







Welcome Peter

Please read, especially the tab at the top - Getting Started.  Begin the supplemants, especially Vit d3 and NAC.  You already know that you have this bug and can deal it a death blow early, unlike many of us who have fought and will fight it for years.  Learn about it - then you will be armed for battle. 

Keep all your abx (antibiotics) - we must use several at a time to corner and kill this thing, or it wil haunt you.  I am not being melodramatic.  I don't want to scare you - just want to make you realize that this is not a game.  Do lotas of reading and ask lots of questions.  Give us time to answer, too.


3/9 Symptoms returning. Began 5 abx protocol 5/9 Rifampin 600, Amox 1000, Doxy 200, MWF Azith 250, flagyl 1000 daily. Began Sept 04 PPMS EDSS 6.7 Now good days EDSS 1 Mind, like parachute, work only when open. Charlie Chan  In for the duration.&am

I'd put my 2 cents in here and say your headaches are a herx! However, I know that AUgmentin is prescribed for lyme too, and you may be herxing from that, so I would advice you get tested for lyme and co infections as well as treating cpn!!!
Diagnosed with MS on March 2009, started CAP on Jan 2010. Doxy 200mg- Roxy 300mg- NAC and all major supplements.

pete- the amoxi in the Augmentin and the penicillin are both EB killers, so could indeed be from what has been building up in your system over time in between more obvious infections. As you might be gathering from the info on the site here, the courses of doxy may suppress the actively replicating infection, but drives some into cryptic form that is not affected by either doxy or penicillin. Good chance it has disseminated into other organs and blood vessels and remains as a reservoir for recurrent fulminating infections. And as Shabah noted, other bacteria are affected by those abx also, so think about your possible exposure to tick country. At any rate, the Cpn is a pretty obvious one given your history, so treat what you know.


CAP for Cpn 11/04. Dx: 25+yrs CFS & FMS. Currently: 250 aithromycin mwf, doxycycline 100mg BID, restarted Tini pulses; Vit D2000 units, T4 & T3, 6mg Iodoral

Thanks for your comments.

What is the difference in symptoms between primary and secondary porphyria?  I want to try the charcoal to see if it lessens symptoms but I am scared because of the level of constipation I'm experiencing.  

 What type of reactions have you gotten from the abx?

 I go through phases in the day where I feel lost, anxious, blood sugar drops, adrenaline rushes.  The insomnia which started a day after that pencillin shot has not subsided.  I'm normally a decent sleeper.  

 Very confused.  Ive been on a lot of antibiotics(although it seems like the same ones over and over)  Even when I had the reiters I had no adverse reaction.  I tried to take a doxepin for sleep and I woke up to a seizure and a day of borderline psychosis.  Any reccomendations for sleep aids?

I would love to hear your personal experiences with porphyria and the symptoms involved.




Are you taking magnesium? This will help with the intestinal issues as well as muscle and nerve repair. Raven

Feeling 98% well-going for 100. Very low test for Cpn. CAP since 8-05 for Cpn/Mycoplasma P.,Lyme, Bartonella, Mold exposure,NAC,BHRT, MethyB12 FIR Sauna. 1-18-11 begin new treatment plan with naturopath

To relieve constipation try cracked or home milled golden linseed; 1 tablespoon in at least 500ml/10 oz   water a.m. If this doesn't work by the next morning same dose x 2

It's gentle, effective & nutritious.


You can try large doses of buffered C, it can help with porphyria a lot as well as with die off. And how about melatonin for sleep? If it does not help (did not work for me) GABA works fast.

Stratton/Wheldon protocol 02/2006 - 10/11 for CFS and many problems 30 years