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I've been thinking for a while that we should have a separate place for panic posts. It is so necessary at times to be able to get a wider view than just one's person support for a particular problem, but I have found myself reluctant to ask for wider help because of the risk to making things worse for others who are also having a hard time or those who are just visiting or new to the site.

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Hi Michele, When was Ellas's last pulse? Is her balance getting worse? Is she falling as much or more as you recently reported? Is she foggy? What's happening with her legs? Is she running a fever? Are there new things going on? Is she getting depressed? If you share some details, the ability to identify with commonalities will help the "old-timers" help you. In the meantime, I'll take her case to a special advocate. Please close your eyes and feel the warmth of dozens of caring hands on your shoulders. Your bud,

Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDN.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity. 

Thanks Joyce for your eagle eye on us and your caring concern.   I was talking in a general sense about a place on the site where only those seeking or giving reassurance might go.  Like a confessional only without the penance, we have enough of that already.

Ella has had a 'bad' reaction to the last pulse, which came on top of extra sun exposure during a week on Gran Canaria.   Loss of balance resulting in a number of falls, loss of sensation, aching skin on arms and shoulders, return of aching knees, loss of power, fatigue, some eye disturbances, and a 48 hour cycle of exacerbations, headaches, cough and yawning; but temperature normal, appetite good, hand weakness improving and brain fog non existant.   We are hoping it won't take three months to get better.

Michele: on Wheldon protocol since 1st May 2006 for a variety of long standing ailments including IBS, sinusitis, alopecia, asthma, peripheral neuropathy, also spokesperson for Ella started Wheldon CAP 16th March 2006 for RRMS

Michèle (UK) GFA: Wheldon CAP 1st May 2006. Daily Doxy, Azi MWF, metro pulse.

Michele, Thank goodness for that. You and I have so much in common, it's almost eerie. I just thanked someone else on another thread for their "eagle eye."

Joyce~caregiver-advocate in Dallas for Steve J (SPMS) / Cpn indicated by reactions; Mpn, EBV, CMV positive; elevated heavy metals; gluten+casein sensitive / Wheldon CAP since Aug. '06 - doxycycline+azithromycin+flagyl pulses; antivirals; chelation; LDN.

Joyce~caregiver-advocate in Dallas for Steve J (SPMS).  CAP since August 06, Cpn, Mpn, B. burgdorferi, systemic candidiasis, EBV, CMV & other herpes family viral infections, elevated heavy metals, gluten+casein sensitivity.